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The nation was stunned
when Christopher Reeves had his accident and became paralyzed.
I remember seeing him on TV for the first time in his
wheelchair, and thinking how he would be just a shell of his
former athletic body. Over time, you could see his weight gain
from inactivity (and possibly steroids given for medical
conditions?). I watched him PUSH his breath to be
able to speak, timing each word to coincide with his
ventilator. But far from being a "shell" of his
life, Christopher Reeves let his mind and spirit shine. At the time of his accident, I wasn't thinking
much about "dreams" and "dreaming." It
wasn't until I was facing my own "activity-bound" life
that I realized how important dreams become when you become
disabled. Christopher Reeves dared to dream big, focusing
his energies on his Foundation and on stem cell research for
those who are paralyzed. He undoubtedly had dreams for his
young son, and his marriage, and dreams he wished for
himself. But, those dreams are only known to his family,
not the larger world, not like his Foundation work.
Despite his injury and his activity-bound life, he built upon a
dream. Having
once been a able-bodied person, I think it is normal that most
people don't even consider that the disabled have dreams!
I had to face the painted walls of my apartment for several
years of disability before I even thought about my own
dreams. With disability comes the
inevitable questions of "what now?" and "is this
all my life is to be now?" I started thinking about
my former self, and what my dreams had been
before. I realized that it had always been hard for
me to simply dream or give any concrete shape to the dreams of
my heart. I knew that my childhood had a lot to do with
stifling the dream process. If you hear enough times that
you'll never succeed, or that someone else's wishes are more
important than yours, you simply don't let yourself dream. It's
no wonder I could never answer "What did you want to be
when you grew up?" The fact was, in my childhood I
was surrounded by talk and fear of impending death because my
dad was ill so many years. It's hard to form dreams when
the seriousness of (possible) death is a constant. But
I do remember some childhood make-believe fantasies, which is
the way most kids start to formulate their dreams that one day
answer "What do I want to be when I drow up." It
seems silly now but I used to fantasize being on talk shows,
like when Merv Griffin interviewed one of his guests. In
my fantasy, I was the guest sitting beside him, balancing on one
on Merv's high bar-type stools. I was an
"expert" in some field of interest, and sometimes a
singer too! Once I started singing more in the school
chorus, my talk-show-guest fantasy leaned more towards singer,
or a singer in a group. Of course, neither my voice nor my
circumstances allowed this fantasy to become a solid dream I
could fulfill. When I was
trying to figure out a job I could do in my 20s, it was more
from practicality than dreaming when I decided to attend nursing
school. The practicality involved was simple: Nursing was
a 2-year school program which I felt I could accomplish; I had
been "nursing" my entire childhood with two ill
parents and taking care of my younger sister; death was not new
to me, having lost both parents; and, finally, nursing school
would ensure me of a job. That was it. Practical,
non-dreaming, a means-to-and-end plan for my life. Yet, my
nursing did highlight some of my passions (the basis of dreams),
like teaching/learning, sharing knowledge/insight, leading
others gently along the path of living and dying, and a deep
passion towards advocacy and fighting for the underdog, mixed in
with righting the wrongs within the community. I
searched for more evidence of dreams I once had, but found
nothing more than little fragments of ideas -- ideas, not true
dreams. It was no wonder that I have watched as others had
successes in careers and families, seeming to have a clear idea
where they wanted to go. My childhood never had the
fulfillment of any dreams - of anyone. There was little
support of success, except the expectation to get good grades
(which wasn't very hard for me to do). But beyond grades,
there was no "life" attached to the grades, no dreams
attached to my life, a life filled with illness and possible
death (at any moment, on some unnamed day). It
was for other reasons I sought a "Life Coach" a few
years ago; I had a book I wanted to finish, but was at my lowest
point in life with facing my own illnesses, and hadn't had much
instruction or support in completing goals. (After all, death
could intervene at any time, snatching away any hope, any dream,
and all the steps one had already taken towards a goal. My
father devoted himself to building a 5 bedroom home during his
lifetime, but it wasn't finished when he died...and other people
have lived there since. What a fleeting attempt to
completing a goal, it seemed to me.) The Life Coach asked
me to write a story about my life in the future. And a
writing emerged as though it had a "life of its
own." It included many of my strengths and interests
I'd identified from my nursing: teaching/learning, sharing
knowledge/insight, leading others gently along the path of
living and dying, and a deep passion towards advocacy and
fighting for the underdog, mixed in with righting the wrongs
within the community. This
is what has brought me forward to my goals for my life
now. But I still have trouble focusing my dream; there
seems to be so many "underdogs" and problems in our
country. Where can I, as one person - and an ill/disabled
person at that - devote my time and energy to change even
one thing about our world? How can I channel the
interests I have? I've
always wanted to make a difference in society's huge problem of
child abuse. But, shame and fear has always held me back
from stepping into that spotlight. And others seem so much
more capable of speaking out. Just this week, actress
Terri Hacher came forward with her story. The Larry King
Show had a half-dozen public figures as guests for a discussion
of the plague of child abusers and the life-long effects that
abuse leaves behind. When I think of the dreams I have
about child abuse issues, I don't think I can do something
better than those who have made their pasts' known. I
seem to still be pulled towards advocacy though as my life
unfolds. Maybe I can't make change happen,
though. After all, I am only one person. But I'm
willing to allow myself to dream now. Are
you willing to let yourself dream? What do you want to be,
from your bed, or wheelchair, or wherever your life has taken
you? Is there something that would fulfill
you? Is there something you know you could do? Dream
it... and do it.... It's never too late
to dream... It's never too late to
try.... Today is always the right time
to dream! Dream with me.
As I have traveled through the circumstances
of being severely disabled, I started to search for ways to COPE
with my situation. The articles on this website were written
about coping through soul-reaching activities. When a
person can't "go for a walk" or "get away,"
it is time to turn to things that can "transport you"
out of yourself and out of the situation you are facing.
These are specifically for bed-bound or house-bound persons, and
for those who feel trapped inside themselves after years of
childhood abuses.
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