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ONWARD ~ and ~ UPWARD
Judith Florian, R.N.
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Featuring articles and
discussion of diverse topics and issues, including:
Disabilities, Home
Health Care, Sexual Abuse of Children, and Advocacy.
CONSUMER ADVOCACY
ESPECIALLY FOR THOSE WITH MENTAL AND PHYSICAL DISABILITIES
Overview of what an Advocate Does
In hospitals and nursing homes, there are "patient
representatives" (in some hospitals they are known as an advocate or an
ombudsman).
These employees have one sole function: To assist patients and
their families with almost any type of complaint or problem regarding
services. An advocate should be knowledgeable enough to know certain
things, like:
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WHO and WHERE to call to resolve a problem;
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WHAT can be done to resolve a problem (or know which office
can answer the "what-question";
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HOW to cut through the red tape that often accompanies a
service problem;
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And, WHEN they will have an answer to resolve your problem.
Advocates know their own Institution's policies, procedures and
protocols for handling complaints.
In addition, an advocate or ombudsman often knows community
resources which may be obscure to a patient and family. They can assist to
find answers, often in an overwhelming situation for those involved. While
they can't resolve "personality conflicts" with doctors or personnel,
they can often smooth misunderstandings and problems.
An advocate must rely on their knowledge and experience, as well
as a professional but caring/passionate belief that every person deserves proper
care. An advocate usually makes telephone calls on a patient's behalf,
with the intention to resolve problems or to coordinate care; their work is
primarily verbal, so they need to be personable and be able to communicate
well. It is rare that *most* advocates write letters on a patient's
behalf, simply because most situations need to be handled quickly (letters would
simply delay getting a resolution in most situations). Sometimes, an
Advocate also needs to be persuasive, with a goal towards a "win-win"
for all concerned.
Some advocacy jobs are volunteer positions, while others are
paid.
One website describes the job duties and skills for a
"Volunteer Resident Advocate" position, dealing with nursing home
residents:
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Skills Required:
Ability to communicate orally and in writing.
Sensitivity to the institutionalized elderly.
Open-minded and non-judgmental – the ability to be fair and honest.
Resourceful in coping with a variety of situations.
Sense of humor in dealing with day-to-day concerns.
Perseverance – working on a problem until it is solved.
Tactful and diplomatic with staff residents and families.
Good listener – the ability to determine the true nature of the problem behind
a complaint.
Duties:
To receive, handle and try to resolve residents complaints,
including those made on behalf of a resident, within the facility, under
supervision of the Regional Ombudsman.
To assist in the protection of residents rights.
To monitor the exercising of residents rights within the facility.
To provide education for residents and their families about the
facility’s rules, regulations, and procedures which insure a better
understanding of the services to which residents are entitled.
To establish good working relationships with the facility’s
administrator and staff.
To refer unresolved complaints to the Regional Ombudsman.
To work with resident and family councils to encourage interaction among
residents and between residents and their community.
To encourage and assist in developing resident and family councils where
none exist.
To maintain current and accurate records as required – by the Ombudsman
office.
To assist residents and their families or legal representatives in
understanding rights in relation to transfers within, and discharges from
nursing homes.
To have knowledge of the responsibilities and functions of regulatory and
community agencies
Some of these jobs list specific QUALIFICATIONS, like:
Minimum Training & Experience include a Bachelor's Degree from an
accredited college or university with a major in Law or Pre-law, Criminal
Justice, Sociology, Social Work, Psychology, English, Political Science,
Philosophy, Public Administration, History, Statistics, Business
Administration/Economics/Management, Computer Science or a related field
AND
Ability to communicate effectively in verbal and written form using correct
grammar
AND
Intermediate level skill in using MS Windows based computer application programs
for word processing and data entry functions.
(Plus other requirements specific to a locality, or type of advocate.) |
As various offices involving human services have grown, and
specialized services are needed, more advocates are sought. Some services
are so complex that advocates are needed to work through the maze of offices or
services. For example, there used to be no advocates for victims of rape or
domestic abuse, but advocates have been employed to assist victims as they move
through the criminal justice system and medical system.
But, even though situations like being a crime victim may
require the help of an advocate, it IS still possible to act as your OWN
advocate. Indeed, YOU are your own best advocate! YOU know YOUR
situation, your needs, your problems and your complaints the best of
anyone!. Often, you just need to know where to start, who to call, what
can be done and what your rights are in the situation. Knowing who to call
may require that you make extra phone calls to get TO the right agency, right
department, right office, and the right person. You will need to be able
to communicate calmly, despite how you feel about the situation or others
involved. Emotional outbursts can cloud the issue(s) you want
addressed, and make others think it is too difficult to deal with
you. You'll need to be factual and clearly state the problem, along
with the resolution you need. You'll need to be persistent: When you are
stuck, ask "Who can you refer me to who has the authority to resolve my
problem?" It is much like dealing with a utility company or credit
card company when you need a dispute resolved: Communicating clearly in a
pleasant way, and being persistent without being demanding or
emotional.
Unfortunately for many disabled or mentally ill or physically
ill persons, there is NO advocacy program for many of the problems that can
arise in dealing with different social agencies and medical services. You
may HAVE to become your own advocate, unless you can find someone who is able to
"fight your battles" for you.
On the next pages, I describe some ways to become your own
advocate, especially in the area of home health care. Fortunately,
the ways to be a self-advocate in one situation is much the same in other
situations.
First, read self-advocacy for some practical steps.
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The title "Onward ~ and ~ Upward" is a
"motto" I used as a teenager and young adult --- then forgot about for
a number of years. I feel it is a fitting motto to strive for and a
fitting title for the topics of this website.
(c) Judith Ann Florian
159 E. Main St.
Girard, Ohio 44420
Disclaimer: This website is intended to convey
information and discussion ONLY, on a variety of topics, and reflects the
views of this author and submitters to this website. The information
provided on this website is not intended as a substitute for a medical opinion
or diagnosis. If you are suffering from an illness, injury, pain or
other symptoms, please seek help and diagnosis from a medical professional.
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This page was last updated on Thursday, April 20, 2006 13:09
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