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ONWARD ~ and ~ UPWARD

Judith Florian, R.N.

 

Featuring articles and discussion of diverse topics and issues, including:

 Disabilities, Home Health Care, Sexual Abuse of Children, and Advocacy.

 

CONSUMER ADVOCACY 

ESPECIALLY FOR THOSE WITH MENTAL AND PHYSICAL DISABILITIES

 

Overview of what an Advocate Does

In hospitals and nursing homes, there are "patient representatives" (in some hospitals they are known as an advocate or an ombudsman).   

These employees have one sole function: To assist patients and their families with almost any type of complaint or problem regarding services.  An advocate should be knowledgeable enough to know certain things, like:

  • WHO and WHERE to call to resolve a problem;

  • WHAT can be done to resolve a problem (or know which office can answer the "what-question";

  • HOW to cut through the red tape that often accompanies a service problem;

  • And, WHEN they will have an answer to resolve your problem.

Advocates know their own Institution's policies, procedures and protocols for handling complaints.

 

In addition, an advocate or ombudsman often knows community resources which may be obscure to a patient and family.  They can assist to find answers, often in an overwhelming situation for those involved.  While they can't resolve "personality conflicts" with doctors or personnel, they can often smooth misunderstandings and problems.

 

An advocate must rely on their knowledge and experience, as well as a professional but caring/passionate belief that every person deserves proper care.  An advocate usually makes telephone calls on a patient's behalf, with the intention to resolve problems or to coordinate care; their work is primarily verbal, so they need to be personable and be able to communicate well.   It is rare that *most* advocates write letters on a patient's behalf, simply because most situations need to be handled quickly (letters would simply delay getting a resolution in most situations).  Sometimes, an Advocate also needs to be persuasive, with a goal towards a "win-win" for all concerned.

 

Some advocacy jobs are volunteer positions, while others are paid.

 

One website describes the job duties and skills for a "Volunteer Resident Advocate" position, dealing with nursing home residents:

Skills Required:

Ability to communicate orally and in writing.
Sensitivity to the institutionalized elderly.
Open-minded and non-judgmental – the ability to be fair and honest.
Resourceful in coping with a variety of situations.
Sense of humor in dealing with day-to-day concerns.
Perseverance – working on a problem until it is solved.
Tactful and diplomatic with staff residents and families.
Good listener – the ability to determine the true nature of the problem behind a complaint.

Duties:

To receive, handle and try to resolve residents complaints, including those made on behalf of a resident, within the facility, under supervision of the Regional Ombudsman.
To assist in the protection of residents rights.
To monitor the exercising of residents rights within the facility.
To provide education for residents and their families about the facility’s rules, regulations, and procedures which insure a better understanding of the services to which residents are entitled.
To establish good working relationships with the facility’s administrator and staff.
To refer unresolved complaints to the Regional Ombudsman.
To work with resident and family councils to encourage interaction among residents and between residents and their community.
To encourage and assist in developing resident and family councils where none exist.
To maintain current and accurate records as required – by the Ombudsman office.
To assist residents and their families or legal representatives in understanding rights in relation to transfers within, and discharges from nursing homes.
To have knowledge of the responsibilities and functions of regulatory and community agencies

Some of these jobs list specific QUALIFICATIONS, like: 

Minimum Training & Experience include a Bachelor's Degree from an accredited college or university with a major in Law or Pre-law, Criminal Justice, Sociology, Social Work, Psychology, English, Political Science, Philosophy, Public Administration, History, Statistics, Business Administration/Economics/Management, Computer Science or a related field
AND
Ability to communicate effectively in verbal and written form using correct grammar
AND
Intermediate level skill in using MS Windows based computer application programs for word processing and data entry functions.
(Plus other requirements specific to a locality, or type of advocate.)

 

As various offices involving human services have grown, and specialized services are needed, more advocates are sought.  Some services are so complex that advocates are needed to work through the maze of offices or services. For example, there used to be no advocates for victims of rape or domestic abuse, but advocates have been employed to assist victims as they move through the criminal justice system and medical system.  

 

But, even though situations like being a crime victim may require the help of an advocate, it IS still possible to act as your OWN advocate.  Indeed, YOU are your own best advocate!  YOU know YOUR situation, your needs, your problems and your complaints the best of anyone!.  Often, you just need to know where to start, who to call, what can be done and what your rights are in the situation.  Knowing who to call may require that you make extra phone calls to get TO the right agency, right department, right office, and the right person.  You will need to be able to communicate calmly, despite how you feel about the situation or others involved.   Emotional outbursts can cloud the issue(s) you want addressed, and make others think it is too difficult to deal with you.   You'll need to be factual and clearly state the problem, along with the resolution you need.  You'll need to be persistent: When you are stuck, ask "Who can you refer me to who has the authority to resolve my problem?"  It is much like dealing with a utility company or credit card company when you need a dispute resolved: Communicating clearly in a pleasant way, and being persistent without being demanding or emotional.   

 

Unfortunately for many disabled or mentally ill or physically ill persons, there is NO advocacy program for many of the problems that can arise in dealing with different social agencies and medical services.  You may HAVE to become your own advocate, unless you can find someone who is able to "fight your battles" for you.

 

On the next pages, I describe some ways to become your own advocate, especially in the area of home health care.   Fortunately, the ways to be a self-advocate in one situation is much the same in other situations.

First, read self-advocacy for some practical steps.

 

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The title "Onward ~ and ~ Upward" is a "motto" I used as a teenager and young adult --- then forgot about for a number of years.  I feel it is a fitting motto to strive for and a fitting title for the topics of this website.

 
(c) Judith Ann Florian
159 E. Main St.
Girard, Ohio 44420

Disclaimer: This website is intended to convey information and discussion ONLY, on a variety of topics, and reflects the views of this author and submitters to this website.  The information provided on this website is not intended as a substitute for a medical opinion or diagnosis.  If you are suffering from an illness, injury, pain or other symptoms, please seek help and diagnosis from a medical professional.  If you are feeling suicidal or are thinking of harming yourself, in any way or by any means, call your therapist, your local 911, your local police department or other law enforcement, your local hospital emergency room, and your local crisis numbers. The webmaster of this site will not reply to emails from any person in a crisis situation.

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This page was last updated on Thursday, April 20, 2006 13:09

 
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