Looking upward through trees to blue sky

ONWARD ~ and ~ UPWARD

Judith Florian, R.N.

 

Featuring articles and discussion of diverse topics, including:

Issues concerning Disabilities, Home Health Care, Sexual Abuse of Children, and Advocacy.

 

~ ON CHRONIC PAIN  ~

NEUROPATHY / NEUROPATHIES

POLYNEUROPATHY

Synonyms for neuropathy

  • Mononeuritis, Peripheral
  • Mononeuritis Multiplex
  • Mononeuropathym Peripheral
  • Multiple Peripheral Neuritis
  • Peripheral Neuritis
  • Polyneuritis, Peripheral
  • Polyneuropathy, Peripheral

More than 100 different peripheral neuropathies are recognized, each with a distinguishing set of symptoms, development path, and prognosis. Disorders affecting only one nerve are described as a mononeuropathies while disorders affecting more than one nerve are called polyneuropathies. If two nerves affecting different parts of the body are involved, the disorder is described as a mononeuritis multiplex. - from http://health.yahoo.com/ency/healthwise/nord246

 

Neuropathic Pain 

 

What if you experienced even one or a combination of these sensations ALL at the same time, EVERY day, 24 hours a day?  What if you had this experience FOR THE REST OF YOUR LIFE?  

 

What if you were told by doctors that there is NO cure very little that can be done to make the sensations stop, and even less to make the problem end?

 

The estimated 20 to 30 MILLION persons who suffer from neuropathy (neuro = nerves + pathy=abnormal) live with unspeakable pain, with few treatments that help.

The pain(s) associated with neuropathy does NOT respond well to narcotics.  In fact, patients can take very high doses of narcotics with little improvement of neuropathic pain.  If the patient has other pain conditions, the narcotics CAN be useful for those other conditions though.  But for neuropathy, doctors have been prescribing neuroleptic drugs (neuroleptic means anti-seizure medications).  The most widely used neuroleptic prescribed is Neurontin, which can be taken in relatively high doses.  A second choice is Trileptal, which has less sedation effects than Neurontin.  ALL neuroleptics have side effects and can result in developing seizures if stopped abruptly; they must be tapered in dose if a patient needs to stop one drug or a physician may substitute another neuroleptic drug if one drug needs to be discontinued.  As one can see, these are not medications that should be given or shared with others; these are serious meds!  For information on Neurontin call the manufacturer, Parke-Davis or Pizor , or for Trileptal, call the manufacturer,  Novartis.   Both drugs were formerly known as anti-spasmodics or CNS depressants based on the original intent which for the stoppage or reduction of seizures.

 

Two newer drugs are being used now: Lyrica and Cymbalta.  The FDA in January 2005 approved a new use of Lyrica [by Phizer] as a new pain reliever for diabetic peripheral neuropathy and for postherpetic neuralgia caused by shingles which afflicts an estimated 150,000 persons every year.   WebMD describes more about Lyrica.  Cymbalta [by Eli Lilly and Co.], an anti-depressant, was approved in 2004 to treat diabetic neuropathy.  Both of these have been helpful to some patients with this kind of pain.  However, both have side effects that may make it impossible for some patients to tolerate (dry mouth,   Cymbalta may cause an increased risk for liver problems, especially if patients had previous liver disease or alcoholism.  Signs and symptoms of liver damage can include dark urine, jaundice (yellowing of the skin and eyes), itchiness, abdominal tenderness in the liver area, or unexplained flu-like symptoms. Liver enzymes may be elevated (need blood tests).

Patients who experience ANY type of untoward (bad) effect from ANY medication can contact FDA's Medwatch program at (800) FDA-1088 [(800) 332-1088)] or online at www.fda.gov/medwatch

 

Some patients have found relief by using Infrared Therapy which claims to reduce nitrous oxide in tissues, thereby improving blood flow.  Medicare does not pay for these devices; it does not appear to be a product approved by the FDA.  

 

If the neuropathy is caused by mechanical nerve compression, physical or occupation may help along with splinting (such as wrist braces for carpel tunnel).  If severe enough, a neurologist may decide that surgery is needed to release the nerve.  

 

For the majority of patients, treatment is only with medications, which mostly help to "cover up" the pain but rarely takes the pain away completely.  Millions of people continue to suffer debilitating pain every day.  Neuropathy remains a little-understood condition, and is often overlooked by physicians for the utter misery that neuropathy causes.  If you experience any of the symptoms listed for neuropathy, bring these to the attention of your doctor and insist that your symptoms are investigated and treated.

 

 

Urge Congress and the National Institutes of Health to fund the research dollars necessary to investigate the causes of this vicious disorder, and develop better treatments and standards for treatment!

 

What is neuropathy or neuropathic pain?

Read a chart of "Pain Behaviors" that doctors watch for in pain patients.

 

If you would like to read more about why doctors are afraid to prescribe opioid narcotics, see these web articles:


Who'll Stop The Pain?

Treating Doctors as Drug Dealers: The DEA's War on Prescription Painkillers

Ideas on Liberty

Dr. Hurwitz Convicted on 50 Counts, Faces Life in Prison 

"A Bad Prescription from DEA; The drug agency's misguided campaign against a painkiller" 
by Eric M. Chevlen, published in The Weekly Standard,  June 4, 2001.  Full article online at http://www.cpmission.com/main/misguided.html 


Dr. Chevlen also testified on April 25, 2000 as an expert witness before the Senate Judiciary Committee Concerning "The Pain Relief Promotion Act"  --- see http://commdocs.house.gov/committees/judiciary/hju62489.000/hju62489_0.htm

See also: Assessing Pain in Older Adults (with Dementia)

 

 

Some say the biggest definition of true chronic pain is the loss of hope, when no one can say the pain will ever stop or there can be even a partial cure..  See http://www.immunesupport.com/library/showarticle.cfm/ID/5606/e/1/T/CFIDS_FM/

 

A Normal Event Common in Life

See Chronic Pain Treatment

See Pain Behaviors

 

What else would you like to read about chronic pain?  Email me.

 

    

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The title "Onward ~ and ~ Upward" is a "motto" I used as a teenager and young adult --- then forgot about for a number of years.  I feel it is a fitting motto to strive for and a fitting title for the topics of this website.

 
(c) Judith Ann Florian
159 E. Main St.
Girard, Ohio 44420

Disclaimer: This website is intended to convey information and discussion ONLY, on a variety of topics, and reflects the views of this author and submitters to this website.  The information provided on this website is not intended as a substitute for a medical opinion or diagnosis.  If you are suffering from an illness, injury, pain or other symptoms, please seek help and diagnosis from a medical professional.  If you are feeling suicidal or are thinking of harming yourself, in any way or by any means, call your therapist, your local 911, your local police department or other law enforcement, your local hospital emergency room, and your local crisis numbers. The webmaster of this site will not reply to emails from any person in a crisis situation.

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This page was last updated on Tuesday, May 09, 2006 23:34

 
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