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Pain Behaviors
All persons in pain usually display what doctors call "pain
behaviors." In short, a behavior is something that is observed or can
be measured. It is not feelings, emotions, or how pain feels to a
person. Pain behaviors are ways the person
reacts to pain, and is the outward and interpersonal expression of a person's
subjective experience of pain and, and to a degree, the outward sign of the physical
effects of
pain.
Some behaviors are controlled by the body, like blood
pressure and pulse rate, and to a lesser extent how one breathes.
(Although pain
can sometimes change breathing, it is also possible for a person to consciously create a
change in their breathing). To a degree, blood pressure and pulse might be
altered by conscious means also.
Others
are not exclusively body reactions, like sighing, crying, and other behaviors
that a person can control, like verbal remarks, pacing, jiggling one's foot,
or choice of body position.
Doctors and personnel in the pain management
field look at pain behaviors a person can control, since these behaviors can be
modified completely or in part. Here are some examples of pain behaviors. See
if you can identify ones that a person can control or modify.
Observable Pain Behaviors
| Respiratory: |
Verbal: |
Physical: |
Emotional: |
|
breathing hard /or shallowly
holding breath
sighing
|
silence
short answers or yes-no answers
using words to describe pain (my back is in spasms, hurts,
grabs...etc)
exclamations (like oh God....ugh... or swearing to no
one in particular, like damn! crap! shit!)
pain words, pain noises
moaning
groaning
pain complaints |
pain faces, like: blank
faced; scowling; wrinkled forehead; grimacing
protecting painful area
bracing, rubbing the area
muscle tension or rigidity
restlessness
blinking, squinting, or keeping eyes closed, or eyes closed
tightly; or wide-eyed
keeping very still, or being agitated
laying down
shifting positions
if ambulatory, pacing
Deceased activity
appetite changes
sleep changes; disordered sleep
|
Silent, no visible emotions
Frowning, not smiling
Blank-faced
Crying, weeping
Whining
Depression behaviors, or looks like depressive behaviors
Fearful
Anxious
Angry, agitated
changes in mood |
| Circulatory: |
| Increased pulse
Increased blood pressure
Flushing (red faced)...
or pale face
sweating |
In addition there are behaviors which are attempts to alleviate
pain (warm baths, heating pad, pain medicine,) or relieve the source of pain
(some of the physical items in the above chart, such as changing position).
As you can see from this table, there is a wide range of how
pain may be expressed. In evaluating your pain and pain behaviors,
doctors may assess many areas, such as:
endurance
strength
flexibility
pain expression (gestures and vocalization)
muscle tension
sitting tolerance
assertiveness
comprehension of chronic pain treatment
anxiety and depression
interpersonal interactions
family relationships and interactions
secondary gains (in short: What's in it for you, like: attention of others, getting
others to "do" for you, having others feel sorry for you, not having to be as responsible for
day-to-day life as you once were or could still be; financial gains even if an injury is
real;
victim-behavior and comments, etc.)
As I said in the discussion of Treatment
of Chronic Pain, certainly society as a whole can have the same compassion
towards people in pain as what we do for animals in pain. Far too often,
patients complain: "They wouldn't let a dog suffer in pain the way I am
suffering!" In fact, veterinarians are extremely concerned with
relieving pain and conduct their own studies (especially since the late
1980s-1990s) of pain behaviors in animals. Not surprisingly, pain
behaviors are much the same in animals as in humans, including the historical
adaptations both species have made in trying to adapt to pain and hide
disability, and the current "social" setting in which vocalizations or
certain behaviors of pain by human or animals serve to draw the attention of
humans who may be able to help. See: http://dels.nas.edu/ilar_n/ilarjournal/44_3/v4403hansen.shtml
This article describes the "Melbourne Pain Scale (MPS1) (Firth
and Haldane 1999). This instrument consists of six broad categories
(physiological data, response to palpation, activity, mental status, posture,
and vocalization), each of which is divided into three or more levels and
assigned a different numerical weight. For example, the category "mental
status" contains four levels: submissive, overtly friendly, wary, and
aggressive; and these levels are accorded scores of 0, 1, 2, and 3,
respectively. In total, the maximum number of possible points for pain awarded
by the scale is 27." " Even if one attempted to force the
administration of analgesia to similar dogs by application of the MPS (or other
similar scales), some of those dogs would be assigned a low pain score because
the scale would not capture the right information. For example, 2 days after
limb amputation and without the use of postoperative analgesic therapy, a dog
may lie quietly, be unwilling to move, fail to eat, and appear very depressed.
If one were to apply the MPS to rate this dog's pain, observed responses would
yield the results of a total MPS score of only 4 point of a possible 27 (Figure
1)." Other pain behaviors and measurements to assess these behaviors
in dogs are discussed. The difficulties of knowing the pain level in
animals, who cannot communicate directly, is obvious. The article also
discusses how animals hide pain, since the weakest in the animal world becomes
an easy target of predators.
BIASES AND BELIEFS ABOUT PAIN CONTROL
Doctors observe how you move and handle your body in routine settings, from
the first time they see you as you enter their office, through exams the doctor
conducts, through the time you leave the office. Judgments are often
made by doctor's and medical personnel based on the observed pain
behaviors. Professional articles state that pain behaviors are
also influenced by cultural and ethnic differences as well as
upbringing. For examples, Mexican males may be stoic while Mexican females
may be more vocal about pain, yet neither sex expect medical intervention and
believe pain is just a part of living. Chinese remain quiet during pain,
neither communicating the amount of pain they feel nor expecting
intervention. African Americans and American Whites are often vocal and
expect nurses and doctors to respond, to control or eliminate the pain. There may be generational
differences in how much a person communicates pain as well. Additionally,
medical staff bring their own cultural, ethnic, and upbringing biases to the
observations of another person's pain, and in their response and intervention on behalf of
others who exhibit pain. One nurse's background includes a belief
that patients should be stoic and face pain with "a stiff upper lip,"
while another nurse expects patients to yell out. Nurses may not
even offer medication, even though a person is suffering; most studies show that
nurses under-treat pain, even for cancer patients during their last agonizing
days. In other
situations, a different patient might refuse medication because of their own
beliefs and upbringing. These cultural,
ethical. and upbringing differences are well-known and well-documented for both
patient perception and displays of pain, and for how doctors and nurses respond
to pain. But the fact remains that professionals are still governed by
their own biases, and these biases impact how they respond to patients who
display pain. And, overall, physicians and nurses under-treat
patients' pain, regardless of the patient's ethnicity, race, background, and
despite whether a patient requests pain medication. In the United States, professionals are probably very
influenced by the belief that all patients are potentially simply seeking drugs,
are current drug addicts, or are exaggerating the pain for some secondary gain(s).
And it seems too difficult to leave these biases outside the hospital or
examining room door.
Most Americans are aware
of the scams some people use who claim to be in pain, but who are not truly
suffering. (See Treatment). There has been
widespread coverage of persons who make claims of injury and appear for doctor
appointments or other evaluations using cane, walker, and wheelchairs, only to
be later observed to be able to hoist heavy boxes, reach overhead to shelves, or
even taped jogging when they claimed to not be able to walk.
Unfortunately, insurance carriers, worker's compensation, the Social Security
Administration, and doctors have been lied to deliberately by many
patients. As well, physicians carry a special and difficult burden of
making sure they are not prescribing controlled substances
inappropriately. "The Controlled Substances Act (CSA) of 1972, which supersedes and replaces the Harrison Act and all intervening federal drug legislation, makes it a federal offence to prescribe controlled substances to a drug addict for the purposes of treating or maintaining their addiction, except where the physician holds a separate DEA license to provide methadone
maintenance." (Quoted from the website article which discusses
pain treatment at: http://www.doctordeluca.com/Library/UWOD/UWOD5-DenominatorAbuse.htm)
Having been duped before, with the burden of potential loss of
license/fines/imprisonment, and believing the myth that all persons on pain meds
will become "addicted," doctors have been wary to prescribe ANY pain
medications, and especially narcotics.
Repeatedly in research on the internet,
I found the following quote: "The World Health Organization describes stress as a “World Wide
Epidemic." This was given with these two "statistics" -
-
"72% of Americans experience frequent stress related physical or mental
conditions.
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75-90% of visits to Primary Care Physicians are for stress related
problems.
Source: Murphy, American Journal of Health Promotion, 1996."
* These statements are in conflict with the 2002
CDC's NCHS-NAMCS-NHAMCS report on "Physician
Office Visit Data".
While the statistics credited to the World Health Organization may indeed be valid, the same WHO writings are used
by some groups, agencies, and individual authors as
further "evidence" that complaints of pain are invalid and
should not be treated. It is the same story as using depression stats and estimates as an argument against using
opioid therapies to treat benign chronic pain. Instead, BOTH and ALL may be
true in and of themselves: a person may have external stressor and may have have
very legitimate pain; a person may have legitimate external stressors and be
depressed; a person may have very legitimate pain and concurrently be depressed. And,
again, the arguments of depression and stress can be argued from two points of
view: Is the person depressed, thus causing psycho-somatic pain? OR did the
depression arise FROM the experience of ongoing, untreated, or under-treated
pain? Is the person stressed, thus causing psycho-somatic pain? OR
have a number of stressors come or has existing stress increased because or from ongoing pain? When a person is in
ongoing and untreated pain, various sources of stress and depression naturally
follow. It is almost impossible to rate these stressors in order of
importance because each person might rate them differently. Financial
stress might be ranked the highest among most people when untreated pain results
in loss of income because a person cannot hold gainful employment.
Interpersonal stress might be next highest, when pain interferes with marriage
and family relationships, not to mention loss of friends. Quality of life
is often ranked as third highest after the first two, because pain interferes with many
everyday normal activities like sex, sleep, household chores, errands, and
hobbies. When sleeplessness and depression increase and other stresses
mount, quality of life may become so bad that persons with untreated pain may
contemplate or attempt suicide, or ask for assisted-suicide. Dr.
Kathleen M. Foley, chief of the pain service at Memorial Sloan-Kettering Cancer
Center stated to the The New York Times Magazine, "those asking
for assisted suicide almost always change their mind once we have their pain
under control." (Who
Will Stop the Pain by Jacob Sullum, senior editor of REASON.
This article was reprinted on the cited web site, with permission, from the January
1997 issue of REASON Magazine.
Copyright 1997 by the Reason Foundation, 3415 S. Sepulveda Blvd, Suite 400, Los
Angeles, CA 90034.) Mr. Sullum writes of the "Torture, despair, agony, and death are
the symptoms of "opiophobia," a well-documented medical syndrome fed
by fear, superstition, and the war on drugs. Doctors suffer the syndrome.
Patients suffer the consequences." Mr. Sullom describes "opiophobia"
as the phobia of doctors who are reluctant to prescribe opioids to control
pain. The phobia can be so severe that doctors do not even obtain the
necessary paperwork for DEA license and for prescription pads that they are
required to have in order to prescribe opioids. Thus, if they don't
possess these needed items, they cannot write the prescriptions - easy!
One minus one equals zero - for the patients. Instead, doctors prescribe
antidepressants and muscle relaxers, and refer patients to "pain management
clinics" based on supposed "pain behaviors observed" in the
patient.
ADVERSARIAL OR HELPFUL?
The focus on pain behaviors can feel very adversarial to a
patient. In fact, the way a patient is spoken to about suspected pain
behaviors can seem pretty attacking - and oftentimes, doctors are deliberately
attacking. Unfortunately, sometimes this is also driven by the same myths
already discussed, and the belief that all patients are somatizing other
problems of their life into "pain".
Doctors may want you to focus on any pain behaviors you can
change. For example, do you hold your emotions in and end up with tense,
tight muscles? Muscle tension can increase the level and perception of
pain. If you can release muscle tension, you may reduce some of your
pain. You may be asked to try hypnosis, guided imagery, biofeedback or
therapy through attending a pain management program.
But, almost all physicians tend to use "pain management programs"
as their own back door to not give treatment to their own patient. "I
will not prescribe pain medication for you, but I will refer you to (the back
door) the pain management center."
| Patients with real pain which doctors have dismissed as
"in your head," often without adequate work-up, often are
shuttled into pain management programs. Some States' require entry
into pain management programs for worker's compensation.
But, there is a question of whether the concept of pain management is working long-term for patients?
And, for patients with real pain that has not been diagnosed, are pain
management programs of real benefit? Or, are patients
put through a grueling effort in the pain management program that
typically includes 4-8 hours of daily physical therapy, only to still be
in significant pain and disability with significant impairments in their
daily life? (Success rates across "pain
management" programs are largely self-reporting and lack objective
studies to conclude that such programs do reduce pain.)
Millions of patients with benign chronic pain know the answer. While
pain management may teach a few helpful ways to cope (relaxation,
imagery, hypnosis), patients still experience pain that is severe enough
to make them seek the help of medication. And, if they are lucky
enough to experience relief from a narcotic opioid prescribed on a
short-term basis, it is almost guaranteed that they will not be given
the same medication for long-term use because of doctor fears of
addiction and misuse.
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If you would like to read more about why doctors are afraid to
prescribe opioid narcotics, see these web articles:
Who'll
Stop The Pain?
Treating
Doctors as Drug Dealers: The DEA's War on Prescription Painkillers
Ideas
on Liberty
Dr.
Hurwitz Convicted on 50 Counts, Faces Life in Prison
"A Bad Prescription from DEA; The drug agency's misguided campaign against a painkiller"
by Eric M. Chevlen, published in The Weekly Standard, June 4,
2001. Full article online at http://www.cpmission.com/main/misguided.html
Dr. Chevlen also testified on April 25, 2000 as an expert witness before the Senate Judiciary Committee
Concerning "The Pain Relief Promotion Act" --- see http://commdocs.house.gov/committees/judiciary/hju62489.000/hju62489_0.htm
See also: Assessing
Pain in Older Adults (with Dementia)
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