Blue Jay sitting on small branch

ONWARD ~ and ~ UPWARD

by Judith Florian, R.N.

 

Featuring articles and discussion of diverse topics, including:

Issues concerning Disabilities, Home Health Care, Sexual Abuse of Children, and Advocacy.

 

FOCUS:

Physical, Emotional, Psychological (Mental)

DISABILITIES and ILLNESSES

 


Jump to Sections Discussed Within This Topic:

 

Page 1:

Types of disability...
(genetic or acquired....physical and psychological...)
Hidden disabilities...
Adjusting to a new disability...
Pushing oneself to "get well"...

Page 2:
Issues
   Loss of Independence....
   Finding a balance between Independence and Dependence....

Page 3:
Communicating your needs...
Lack of Control...
Powerlessness...
Hopelessness...
Frustration at oneself...
How others view your anger...

Page 4:

Difficulty Adjusting to Change...

Adaptations...the ongoing process...

Page 5:

How others respond...

Sadness...Despondency...Suicidal Thoughts


 


 

Difficulty Adjusting to Change...

Illness and disability obviously causes changes in your health.  But there are other changes most people don't realize, or minimize.  In addition to changes in health status, there are other personal changes, like to your body or body image (surgery, scars, artificial limbs, parts of your body that don't work right), and emotional changes.  Also, there's changes made to your home (hospital bed, your room switched to the first floor, adding medical equipment or oxygen).    If your spouse leaves or friends drop away, or if it is too hard to go out of your home, there are changes to your daily social life.   Your employment may change, maybe forcing you into retirement or onto disability payments.   Maybe you can no longer drive and someone must drive you everywhere.  Your hobbies may be interrupted, or you might not be able to do those things again.  This list is a whole lot of "changes" to adjust to -- all at once!

 The irony in home care services is that the thing that is supposed to help you the most, can also cause more chaos and difficulties.  It is hard enough to cope with all the changes listed above, without also dealing with multiple changes in companies, or home care employees.   Companies can actually increase the chaos and stress you feel when they have staff or scheduling problems.  If you also get bad workers, that can increase chaos.  

Patients who have Depression, Post Traumatic Stress Disorder or other problems, are certainly not being helped by all this chaos!  But, even with a smooth adjustment into home care services, patients still must figure out ways to adjust to all the other changes!

 

Adaptations... 

Adjusting, trying to get well, trying to cope, trying to accept, trying to make improvements, is ALL an ongoing process.   One day, you think you've got a handle on one aspect, only to hit obstacles the next day.   You start to "get better" in one way, only to be hit with a complication of some kind.  

It is okay that you have not "adjusted" to everything all at once.  You may find some things harder to accept than other things.  Indeed, you may not want to adjust or accept some things!   Uncle Charlie might believe that the absolute last thing he can do is to use a walker, so he doesn't want to try it -- regardless of who thinks he should!  Another person might refuse to let someone else bathe them.  Not being ready to adapt is okay.  When (and if) you are ready, you will make new decisions.

 

 

Try to base your decisions on several things that are all about YOU, which are these:

What will help keep you safe?

What will help keep you as healthy as possible?

What will keep you as emotionally comfortable as possible?

What are you willing to put up with to get your basic needs met -- and what things won't you accept ?

 

 

Others might have your best intentions at heart, but that person is not you.  YOU get to make the decisions about how you want to live.  Powerlessness and helplessness (and struggles between independence and dependence) are just some of the many "normal" stages and issues one goes through repeatedly in trying to adjust and accept the totally different life they now have after an acquired disability (eg from accident, injury, illness).  These issues are compounded or lessened depending on the way one is treated by caregivers (such as those who try to take over and treat you like a child simply because some help is needed).  Caregivers struggle to find a balance on these issues, too, and some are totally unaware that they are adding to the problems).  Do as much as possible to set your own boundaries, make decisions about your daily life and your future life, and don't allow others to control those decisions or control your life.  Be clear about what you need help with - and what you don't need help with.

 

 

Page 1: Disabilities Causes and Types

Page 2: Issues

Page 3: Communicating your needs...

Page 4: Difficulty Adjusting to Change...

Page 5: How others respond...

Sadness...Despondency...Suicidal Thoughts

 

Disabilities Articles 1 - My experience is not your expectation....

Disabilities Articles 2 - EVER ONWARD...EVER UPWARD

Disabilities Articles 3 - Hard Days, Hard Nights

 

Home Health Care and Medical Care Issues

The Training of Caregivers and Home Health Aides (& needed changes)

The  Criteria Used in Training of Home Health Aides

Life for a Patient Receiving Home Health Care - Excerpt from book

with link to A Day in the Life of a Nursing Home Patient

 

On Advocacy & Being Your Own Advocate

Advocacy - 2

 

    

Sign Guestbook

ViewSign  

 

Coping Index...   Coping through Writing...   Coping Through Music...   Coping Through Dreams

Coping Through Inspiration-1 (large photo)...  Coping Through Inspiration-2 (small pictures).. 

Coping Through Inspiration-3..    Coping Through Day-Dreaming...   

On-Frustrations...   On-Rejection...    On-Encouragement...    Life-Coaching...

 


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The title "Onward ~ and ~ Upward" is a "motto" I used as a teenager and young adult --- then forgot about for a number of years.  I feel it is a fitting motto to strive for and a fitting title for the topics of this website.

 
(c) Judith Ann Florian
159 E. Main St.
Girard, Ohio 44420

Disclaimer: This website is intended to convey information and discussion ONLY, on a variety of topics, and reflects the views of this author and submitters to this website.  The information provided on this website is not intended as a substitute for a medical opinion or diagnosis.  If you are suffering from an illness, injury, pain or other symptoms, please seek help and diagnosis from a medical professional.  If you are feeling suicidal or are thinking of harming yourself, in any way or by any means, call your therapist, your local 911, your local police department or other law enforcement, your local hospital emergency room, and your local crisis numbers. The webmaster of this site will not reply to emails from any person in a crisis situation.

Copyright Notice - Information provided is for personal use only and may not be used on any other website.  All graphics and content on this web site are under copyright.  No portion may be reproduced, in part or in whole.  Contact the webmaster for information about publication rights.  © 2005-present, Judith Florian, Copyright - All rights reserved.

Credit: Visit "The Art of Penny Parker" for elegant backgrounds and images.  

This page was last updated on Saturday, April 22, 2006 18:47

 
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