 |
ONWARD ~ and ~
UPWARD
by Judith Florian, R.N.
|
Featuring articles and
discussion of diverse topics, including:
Issues concerning Disabilities,
Home Health Care, Sexual Abuse of Children, and Advocacy.
FOCUS:
Physical, Emotional,
Psychological (Mental)
DISABILITIES and
ILLNESSES
Jump to Sections Discussed
Within This Topic:
Difficulty
Adjusting to Change...
Illness
and disability obviously causes changes in your health. But there are
other changes most people don't realize, or minimize. In addition to
changes in health status, there are other personal changes, like to your
body or body image (surgery, scars, artificial limbs, parts of your body
that don't work right), and emotional changes. Also, there's changes
made to your home (hospital bed, your room switched to the first floor,
adding medical equipment or oxygen). If your spouse leaves
or friends drop away, or if it is too hard to go out of your home, there are
changes to your daily social life. Your employment may change,
maybe forcing you into retirement or onto disability payments.
Maybe you can no longer drive and someone must drive you everywhere.
Your hobbies may be interrupted, or you might not be able to do those things
again. This list is a whole lot of "changes" to adjust to --
all at once!
The
irony in home care services is that the thing that is supposed to help you
the most, can also cause more chaos and difficulties. It is hard
enough to cope with all the changes listed above, without also dealing with
multiple changes in companies, or home care employees. Companies
can actually increase the chaos and stress you feel when they have staff or
scheduling problems. If you also get bad workers, that can increase
chaos.
Patients who have Depression, Post Traumatic Stress Disorder or other
problems, are certainly not being helped by all this chaos! But, even
with a smooth adjustment into home care services, patients still must figure
out ways to adjust to all the other changes!
|
Adaptations...
Adjusting,
trying to get well, trying to cope, trying to accept, trying to make
improvements, is ALL an ongoing process. One day, you
think you've got a handle on one aspect, only to hit obstacles the
next day. You start to "get better" in one
way, only to be hit with a complication of some kind.
It
is okay that you have not "adjusted" to everything all at
once. You may find some things harder to accept than other
things. Indeed, you may not want to adjust or accept
some things! Uncle Charlie might believe that the
absolute last thing he can do is to use a walker, so he doesn't want
to try it -- regardless of who thinks he should! Another
person might refuse to let someone else bathe them. Not being
ready to adapt is okay. When (and if) you are ready, you will
make new decisions.
|
Try
to base your decisions on several things that are all about YOU, which are
these:
What
will help keep you safe?
What
will help keep you as healthy as possible?
What will keep you as emotionally comfortable as possible?
What
are you willing to put up with to get your basic needs met -- and what
things won't you accept ?
Others
might have your best intentions at heart, but that person is not you.
YOU get to make the decisions about how you want to live.
Powerlessness and helplessness (and struggles between independence and
dependence) are just some of the many "normal" stages and issues
one goes through repeatedly in trying to adjust and accept the totally
different life they now have after an acquired disability (eg from accident,
injury, illness). These issues are compounded or lessened depending on
the way one is treated by caregivers (such as those who try to take over and
treat you like a child simply because some help is needed). Caregivers
struggle to find a balance on these issues, too, and some are totally
unaware that they are adding to the problems). Do as much as possible
to set your own boundaries, make decisions about your daily life and your
future life, and don't allow others to control those decisions or control
your life. Be clear about what you need help with - and what you
don't need help with.
Page 1: Disabilities
Causes and Types
Page
2: Issues
Page
3: Communicating
your needs...
Page 4:
Difficulty
Adjusting to Change...
Page 5: How
others respond...
Sadness...Despondency...Suicidal
Thoughts
Disabilities Articles 1 - My
experience is not your expectation....
Disabilities Articles 2 - EVER
ONWARD...EVER UPWARD
Disabilities Articles 3 - Hard
Days, Hard Nights
Home
Health Care and Medical Care Issues
The
Training of Caregivers and Home Health Aides (& needed
changes)
The
Criteria Used in Training of Home Health Aides
Life
for a Patient Receiving Home Health Care - Excerpt from book
with link to A Day in the Life of a
Nursing Home Patient
On
Advocacy & Being Your Own Advocate
Advocacy - 2
Sign
Guestbook

Coping Index...
Coping
through Writing... Coping
Through Music... Coping
Through Dreams
Coping
Through Inspiration-1 (large photo)... Coping
Through Inspiration-2 (small pictures)..
Coping
Through Inspiration-3.. Coping Through Day-Dreaming...
On-Frustrations...
On-Rejection...
On-Encouragement...
Life-Coaching...
|
Jump to: Top of Page
|
If you have corrections to the content
of this site or if you find broken links, please email me. |
The title "Onward ~ and ~ Upward" is a
"motto" I used as a teenager and young adult --- then forgot about for
a number of years. I feel it is a fitting motto to strive for and a
fitting title for the topics of this website.
(c) Judith Ann Florian
159 E. Main St.
Girard, Ohio 44420
Disclaimer: This website is intended to convey
information and discussion ONLY, on a variety of topics, and reflects the
views of this author and submitters to this website. The information
provided on this website is not intended as a substitute for a medical opinion
or diagnosis. If you are suffering from an illness, injury, pain or
other symptoms, please seek help and diagnosis from a medical professional.
If you are feeling suicidal or are thinking of harming yourself, in any way or
by any means, call your therapist, your local 911, your local police
department or other law enforcement, your local hospital emergency room, and
your local crisis numbers. The webmaster of this site will not reply to emails
from any person in a crisis situation.
Copyright Notice - Information
provided is for personal use only and may not be used on any other website.
All graphics and content on this web site are under copyright. No portion
may be reproduced, in part or in whole. Contact the webmaster for
information about publication rights. © 2005-present, Judith Florian,
Copyright - All rights reserved.
Credit: Visit
"The Art of Penny Parker" for elegant backgrounds and images.
This page was last updated on Saturday, April 22, 2006 18:47
|
|
|