Spine-Line Online |
REAL STORIES FOR ADULTS LIVING WITH SPINA BIFIDA We are expanding the Real Stories section of our website!� Through our Recurrence Prevention Campaign, many young adults with spina bifida have contacted us with regards to our Real Stories section of our website.� They told us that they would like to share what it's really like to live with spina bifida.� If you're an adult with spina bifida and you'd like to share your Real Story, please email Adriane K. Griffen at [email protected] to receive a confidential questionnaire.� All submissions are subject to review and may be used, in part or in their entirety, for the purposes of programs of the SBAA. �Please consider sharing your Real Story experiences through this survey.� Kris Chynoweth Karyssa Miller Graham Webb - Opening address at the International Conference The Oldest Person with Spina Bifida Good News from Raelene Decker |
PA adults between the ages of 19 to 64 whose family income does not exceed 200% of the Federal Poverty Guidelines may qualify for AdultBasic insurance. Some of the benefits in the program include: doctor visits & preventative care, emergency and diagnostic care, X-rays, inpatient hospitalization, outpatient services, maternity care. AdultBasic is funded from the revenues provided to the Commonwealth from the National Tobacco Settlement. Eligibility requirements and enrollment forms are available at our office. |
This newsletter is published 12 times a year by the Spina Bifida Association of Lancaster County (a not for profit organization), Patricia Fulvio, Editor. Items must by received by the 15th of the preceding month to be considered for inclusion. Newsletter items may be reproduced without permission, but with credit given. Although every effort is made to ensure that information is accurate and current at the time of publication, the reader is advised that knowledge in the field of spina bifida is growing rapidly. Views and opinions offered are those of the authors and do not reflect the opinion or the endorsement of the Board of Directors or the membership. ****************************************** Board of Directors Amy Graver, Chairman Jim Brown, Vice Chairman Jean Hopkins, Treasurer Katrina Stirn, Secretary Patricia Fulvio, President Directors: Dennis Carney Sue Mooney Committee Members & Consultants: Clark McSparren, MD Barry Bruce Peter Faranda-Diedrich Albert Fulvio Don DeHart Corey Craver Family Councils: Lancaster Council Al & Patricia Fulvio 717-786-9280 Jim & Jean Hopkins 717-786-1047 Rick & Amy Graver 717-786-2233 York/Adams Council Kim & Bob Gladfelter 717-235-3635 SB Council Central PA Dennis & Linda Carney 717-258-6402 Committees: Legislative Contacts Chester County Deb Reinhart 610-399-1290 Cumberland County Anne Falsone 717-737-0175 [email protected] Franklin County Pete Lagiovane 717-264-8231 [email protected] Lycoming County Nancy Regopoulos 717-322-0431 Early Intervention Linda Radzik 717-843-0942 [email protected] Latex Allergies Donna Verwey 717-687-7956 Lipomyelomeningocele Network Chris McAfee 610-582-5937 [email protected] SBAgPA Office Hours 9am-5pm, M-F, and by appointment Location 215 East State Street, Suite D, Quarryville, PA 17566-1268 Phone 717-786-9280 toll free in PA 888-770-SBPA (7272) Fax. 717-786-8821 E-mail [email protected] Home Page http://www.geocities.com/SBAofgPA Spina Bifida Association of America Phone..202-944-3285 Information/Referral..800-621-3141 E-mail..................[email protected] Home Page http://www.sbaa.org |
Spina Bifida- Our Association SpineLine Online What Is It? Updated 09/06/06 Calendar Links Folic Acid & Prevention |
ARTICLES ARTICLE ARCHIVES SBAA NEWS FUNDRAISING RECREATION LOAN CLOSET LINKS RECIPES FORMS REAL STORIES VOLUNTEERING RESEARCH KIDS/TEENS CALENDAR BIRTHDAYS |
updated 03/24/07 updated 03/24/07 updated 03/24/07 updated 03/24/07 updated 03/24/07 updated 03/24/07 updated 03/24/07 updated 03/24/07 updated 03/24/07 updated 03/31/07 updated 03/24/07 updated 03/24/07 updated 03/24/07 updated 03/24/07 updated 03/24/07 |
PATF Offers a Vital New Funding Source for assisitive Devices
Are you in need of a ramp, hearing aid, adaptive seating or other type of assistive technology to help with everyday activities? If so, Pennsylvania Assistive Technology Foundation (PATF) now has two loan programs to help people of all income levels purchase a wide range of assistive devices, many of which are not covered by medical insurance or other funding. Since 1998, PATF has been helping Pennsylvanians purchase assistive technology such as adapted vehicles, wheelchairs, and home modifications with low cost loans. The current interest rate is 4%. Repayment periods are based on the useful life of the device, or up to ten years for a home modification. PATF routinely extends loans to people who do not qualify for a loan through a traditional bank, or who receive social security or other fixed income source. The newest program, the PATF �Mini-Loan,� provides 0% interest cash loans to purchase assistive devices costing between $100 and $1000. For more information call PATF at 1-888-744-1938 or visit the website at www.patf.us |
Adult Get-togethers Do you want to meet other adults with spina bifida? We are scheduling summer get-togethers now! If you would like to help with planning, call Pat. We can meet in a restaurant or a meeting room where we can bring refreshments in or even a park! Call or email Pat if you would like to meet others in your area. Please have the following information: Name, phone number, county, city, email Best day of week and time to meet Second best day and/or time Suggested accessible location We are looking for individuals aged 18 and older. Your spouse or date is welcome. |
Online Children�s Book
I just received a nice storybook/coloring book about a child that has spina bifida. It is geared towards the 4-7 year age group. It was put together by Children�s Hospital in Los Angeles, CA. Right Under My Nose was created to help children with spina bifida understand their condition, discover new ways to enrich their lives and help their parents and caregivers answer many of the tough questions that arise. With a fully interactive story, activities, tips, and a printable version of the whole book, this site is intended to be educational and fun. Enjoy! You can access it online at: www.MySpinaBifidaBook.org You can also listen to an audio version of the book. A Spanish version is available at the same site. Written by Claire Austin, MPh and Stacey Mizokawa, PhD. |
Housing
Looking for an Affordable Apartment? Use the Pennsylvania Affordable Apartment Locator ! www.phfa.org/pal. |
2007 SBA SCHOLARSHIP PROGRAM
The 2007 Spina Bifida Association (SBA) Scholarship Program is now open. All students living with spina bifida are encouraged to apply. With the assistance of donors who recognize the value of education, the SBA Scholarship Program offers two different programs for people living with spina bifida. SBA Scholarship Programs: 1. SBA Four-Year Scholarship 2. SBA One-Year Scholarship If you have any questions concerning the SBA Scholarship Program, feel free to contact: Caroline Alston Director of Programs and Field Initiatives 4590 MacArthur Blvd, NW, Suite 250 Washington, DC 20007-4226 800-621-3141 ext. 23 202/944-3295 (fax) [email protected] Download at: http://www.sbaa.org/site/c.gpILKXOEJqG/b.2021333/k.5C5D/SBAA_Scholarship_Fund.htm |