Research Articles
The SBA is now providing results of a quarterly scientific publication search on Spina Bifida and related topics on the web. The following topics are frequently requested by Resource Center patrons. The purpose of this list is to highlight professional literature on the subject of Spina Bifida. You may search quarterly by months or by topics. Search topics include: Available Topics: Adult Issues Bowel/Bladder Educational/Learning General Genetics Latex Allergy Neurosurgery Occult Spinal Dysraphism Orthopedics Quality of Life Surgical Tethered Cord |
Research Reports by Date:
January 2005 - March 2005 April 2005 - June 2005 July 2005 - September 2005 October 2005 - December 2005 |
Spina Bifida Research Resource (SBRR)
The Spina Bifida Research Resource (SBRR) is a project, funded by the National Institutes of Health, to study the causes of spina bifida and anencephaly. To succeed, this project requires a partnership between scientists and families that are affected by these conditions. Families that join the SBRR are asked to complete an interview and to provide blood or saliva samples for genetic studies. No travel is required and there are no costs associated with joining the SBRR. Visit www.sbrr.info for more information, or you may contact: Katy Hoess, M.S., CGC SBRR, Project Manager Phone: 866-275-SBRR (toll free) or 215-573-9319 Email: [email protected] University of Pennsylvania School of Medicine, Department of Pharmacology 3620 Hamilton Walk, 124C John Morgan Bldg. Philadelphia, PA 19104 |
RESEARCH |