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Revised: March 29, 2003

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Special Needs Hotlist

Contents

Assistive Technology

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Advocacy, Law & Government

  • ADA: US Dept. of Justice, The Americans with Disabilities Act of 1990
  • The ARC: Formerly the Association for Retarded Citizens
  • Family Voices ~ a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs.
  • Mothers Against Munchausen syndrome by proxy
  • Mothers From Hell 2 ~ A humorous look at advocacy. Visit this site for a laugh!
  • Social Security Online
  • TASH ~ an international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm. TASH is an organization of members concerned with human dignity, civil rights, education, and independence for all individuals with disabilities.

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Chats, Listservs, and Bulletin Boards

These links may lead you to people in a similar situation.

  • Bereaved Parents Chat ~ at Parents Place. For anyone who has lost a child due to stillbirth, miscarriage, or death. Wednesdays at 10 p.m. eastern time.
  • CAL-DD ~ an unmoderated mailing list for anyone interested in California's system of services for children and adults with developmental disabilities. Subscribe by writing to: LISTSERV@MAELSTROM.STJOHNS.EDU In the body of the msg: subscribe cal-dd firstname lastname
  • #Disabled: IRC channel on AnotherNet, a sister channel on NewNet.
  • Delphi Disable Hotline: chat every Friday evening
  • Duchenne Muscular Dystrophy Forum ~ complete with a link to the DMD chat!
  • eosinophilgastro ~ This list is for people who have eosinophil gastroenteritis, severe food allergies and are on elemental formulas such as Neocate.
  • Equal Access Cafe Chatroom
  • General Disability Online Discussion Groups: At Family Village
  • Guardian Children's Listserv ~ This list is for children with motility disorders, their siblings and friends, to have a safe place to voice their concerns, make friends, or just talk. Please contact guardian@lists.best.com.
  • Homeschooling Kids with Disabilities Listserv ~ address email to majordomo@MailingList.net and type subscribe hkdl in the body of the message.
  • OK-Prayer List ~ Subscribe by writing to clarkei@cadvision.com and asking to join.
  • Our-Kids
  • PVL Mailing List ~ provides support and information to parents of children with Periventricular Leukomalacia
  • Parenting with a Disability: Bulletin board at ParentsPlace.com
  • Rare Disorder Boardlist ~ a resource to non-profit organizations or anyone wishing to start a non-profit dealing with a rare genetic disorder. To subscribe, address mail to requests@challengenet.com and send the command Subscribe RD-Boardlist.
  • Rubinstein-Taybi Syndrome Listserv ~ address email to LISTSERV@MAELSTROM.STJOHNS.EDU and put SUBSCRIBE RTS-LIST in the subject line.
  • Trisomy Listserv
  • specpar ~ A list for parents of multiples (twins, triplets,or more) where one or more of the children has special needs.
  • Special Needs Listservs: A Validated Listing ...

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Equipment & Supplies

The links below will hopefully guide you to what you need to live more independently.

  • Adaptations by Adrian ~ a non-profit group that makes clothes easier to get on
  • eQuip For Life ~ offers free classified ads for people buying or selling used disability equipment. Supported by National Lottery Funding.
  • www.plastic-pants.com ~ cloth diapers and plastic pants for children, youths, and adults
  • AMBUCS Amtryke ~ Information about an adaptive tricycle with hand and foot pedals.
  • The Disability Equipment Register ~ Used equipment for people in the UK
  • kidABILITY ~ clothing, books, daily living aides, toys, computer products...over 1,000 products, shipping available now
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Financial Assistance

  • AirLifeLine ~ a national non-profit charitable organization of private pilots who donate their time, skills, aircraft and fuel to fly medical missions.
  • Angel Flight ~ The mission of Angel Flight West is to arrange free air transportation on private aircraft in response to health care and other compelling human needs.
  • Katie Beckett Program ~ "a special eligibility process that allows certain children with long term disabilities or complex medical needs, living at home with their families, to obtain a Wisconsin Medical Assistance card."
  • Needy Meds
  • A Special Wish Foundation, Inc. ~ To enhance the quality of life for those children/adolescents having a life-threatening or terminal disorder by allowing their special wish to become reality.

General Disability Links

The following are miscellaneous links that many people find helpful.

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Medical

The following are links I and others have found helpful for medical information and support.

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Parents & Caregivers

These links are important for parents and caregivers of children or adults with disabilities.

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Personal Pages

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Special Education

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Treatments & Therapies

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Webrings

I think Webrings are one of the best ways to browse one particular subject. They send you from one website to the next. No problems with search engines.

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