Charcot-Marie-Tooth Disease Survey Results



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Diagnosis

CMT Symptom Information

CMT Symptom Information II

Skin Problems

Deformity of Hands and/or Feet

Mobility and Dexterity

Mobility Aids

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CMT Symptom Information II

TYPE UNKNOWN

TYPE 1

TYPE 2

Percentage of Each CMT Type in Surveys Received

35.27%

46.43%

18.30%

Complaints of easily sprained ankles

68.97%

80.85%

76.00%

Complaints of Tripping over feet

89.66%

87.23%

92.00%

How often do CMTers fall?

  • 0= Never

0.00%

3.61%

4.00%

  • 1=Rare 1 to 2 x/year

20.69%

16.84%

20.00%

  • 2=Occasional 3 to 4 x/year

27.59%

26.98%

24.00%

  • 3=Frequent 1 x/mth

24.14%

38.10%

16.00%

  • 4= Over 1 x/month

13.79%

9.70%

24.00%

  • 5=Over 1x/week

3.45%

6.00%

20.00%

Occurrence of foot ulcers

3.45%

8.51%

4.00%

Occurrence of callouses

68.97%

72.34%

72.00%

  • a)Require Professional removal of callouses

3.45%

27.59%

12.00%

  • b)Remove callouses by self

37.93%

40.43%

20.00%

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Skin Problems

TYPE UNKNOWN

TYPE 1

TYPE 2

a)rashes

20.69%

17.02%

40.00%

b)sores

3.45%

4.26%

12.00%

c)poor or slow healing

27.59%

25.53%

44.00%

d)pin point red spots on skin that are very itchy

20.69%

19.15%

16.00%

e)an increase in the number of freckles that are very itchy

0.00%

2.13%

16.00%

f)Occasional appearance of a sore that appears as a blister and then breaks, and turns into an ulcer, which takes a long time to heal

3.45%

2.13%

12.00%

g)unexplained bruising

27.59%

38.30%

36.00%

h)blue,mottled skin (in feet and/or hands)

31.03%

36.17%

40.00%

Deformity of Hands and/or Feet

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TYPE UNKNOWN

TYPE 1

TYPE 2

have high arches

86.21%

85.11%

80.00%

have flat feet

13.79%

14.89%

20.00%

have hammer toes

62.07%

65.96%

68.00%

have clawed feet

24.14%

42.55%

44.00%

have weak wrists

62.07%

78.72%

80.00%

have clawed hands

20.69%

21.28%

16.00%

have weak thumbs

79.31%

72.34%

64.00%


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