Charcot-Marie-Tooth Disease Survey - Preliminary Results



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Diagnosis

CMT Symptom Information

CMT Symptom Information II

Skin Problems

Deformity of Hands and/or Feet

Mobility and Dexterity

Mobility Aids

Specific Medical Problems:

Eyes

Hearing

Heart

Breathing

Immunity

Speech

Kidney

Bladder

Stomach

Bowel

Back

Facial Weakness

Swallowing

Pain

Depression

Extreme Stress

Other Medical Problems

Allergies

Pregnancy

Course and Treatment

Other Aids and Assistive Devices

Lifestyle and Activities

Feedback






Other Aids and Assistive Devices

TYPE UNKNOWN

TYPE 1

TYPE 2

Percentage of Each CMT Type in Surveys Received

35.27%

46.43%

18.30%

use a bath chair

24.14%

29.79%

12.00%

have tub or shower bar

34.48%

23.40%

40.00%

have a non-slip tub or shower floor finish

48.28%

42.55%

64.00%

use a computer for most tasks

68.97%

61.70%

76.00%

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Lifestyle and Activities
CMTers who Drive a car

79.31%

65.96%

88.00%

use Hand Controls

10.34%

6.38%

4.00%

Estimated Overall Degree of Disability
  • 0=no aids, working, nuisance disease

0.00%

7.00%

0.00%

  • 1=may use AFO's, minor difficulties, balance ok

24.10%

42.30%

16.00%

  • 2=working, difficulty with balance, activity level reduced, having some difficulty

31.00%

17.10%

48.00%

  • 3=use aids, cane , difficulty with balance and walking, not working, needs help with life activities

27.60%

20.37%

24.00%

  • 4=using walker, and/or wheelchair part time, on disability, needs more help

3.80%

10.50%

8.00%

  • 5=in wheelchair full time or scooter, needs help with Activities of Daily Living

3.40%

6.00%

4.00%

Smoke cigarettes

24.14%

25.53%

28.00%

Drink alcohol

31.03%

27.66%

4.00%

have been involved in any 12-Step program

6.90%

2.13%

0.00%

have Financial problems because of CMT

19.23%

27.50%

29.17%




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