Charcot-Marie-Tooth Disease Survey Results



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Pain

Depression

Extreme Stress

Other Medical Problems

Allergies

Pregnancy

Course and Treatment

Other Aids and Assistive Devices

Lifestyle and Activities

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Specific Medical Problems cont'd: PAINtop

TYPE UNKNOWN

TYPE 1

TYPE 2

Percentage of Each CMT Type in Surveys Received

35.27%

46.43%

18.30%

Pain

75.86%

76.60%

92.00%

Description of Pain:
  • burning

27.59%

23.40%

40.00%

  • stabbing

31.03%

27.66%

16.00%

  • sharp electric like jolts

27.59%

40.43%

28.00%

  • aching

55.17%

55.32%

76.00%

  • cramping

24.14%

21.28%

40.00%

  • ’shin splints’

6.90%

6.38%

16.00%

  • spasms

10.34%

14.89%

20.00%

  • like a sprain

6.90%

6.38%

0.00%

  • stiff and sore

20.69%

14.89%

24.00%


Specific Medical Problems : Other

top

Pressure Palsies

3.45%

8.51%

0.00%

Depression

58.62%

44.68%

40.00%

  • Treated for Depression

36.67%

21.28%

40.00%

Symptoms Worsen with Extreme Stress

65.52%

63.83%

56.00%

Complaints of Fatigue

86.21%

87.23%

100.00%

legs get tired after exercise and feel like "jello"?

51.72%

51.06%

64.00%

Difficulty Sleeping?

41.38%

63.83%

64.00%

Have many airborn, skin and drug allergies

48.28%

42.55%

36.00%

Have had a major problem with a general anesthetic or local anesthetic

20.69%

19.15%

12.00%

Remember things more clearly than most people

6.90%

19.15%

20.00%

Appear to Forget things more easily than others?

41.38%

31.91%

8.00%

Course and Treatment

top
Progression has been slow and even with a steady decline

75.86%

70.21%

52.00%

Progression has been intermittent with sudden deterioration over a few months, followed by a plateau before another sudden deterioration

24.14%

27.66%

48.00%

Pregnancy
  • % of Surveys from Females

58.62%

63.83%

52.00%

  • Females completing survey who had a major progression in CMT, during and/or after Pregnancy

5.88%

26.67%

15.38%

Top



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