| TYPE UNKNOWN |
TYPE 1 |
TYPE 2 |
Percentage of Each CMT Type in Surveys Received |
35.27% |
46.43% |
18.30% |
CMTers who have had at least one EMG |
89.66% |
85.11% |
96.00% |
CMTers who have had a Muscle or Nerve Biopsy |
10.34% |
25.53% |
28.00% |
CMTers who have had DNA Testing |
3.45% |
14.89% |
16.00% |
CMTers who's Nerve Conduction Velocity (NCV) was slow on EMG |
48.28% |
51.06% |
60.00% |
CMTers who's Nerve Conduction Velocity (NCV) was absent on EMG |
10.34% |
19.15% |
8.00% |
CMTers who had a nerve conduction block on EMG |
3.45% |
12.77% |
12.00% |
CMTers indicating their EMG was VERY painful? |
41.38% |
46.81% |
64.00% |
CMTers who were misdiagnosed |
37.93% |
61.70% |
56.00% |
Average age of onset of symptoms |
14 |
13 |
21 |
Average age of CMTers completing survey |
52 |
44 |
44 |
Average number of years that CMTers have had symptoms |
36 |
31 |
23 |
CMTers with a family history of CMT |
68.97% |
76.60% |
80.00% |
|
31.03% |
25.53% |
60.00% |
|
20.69% |
55.32% |
28.00% |
| CMTers who have arm reflexes: |
55.17% |
36.17% |
64.00% |
CMTers who have leg reflexes: |
24.14% |
31.91% |
32.00% |
CMTers who can stand on their tiptoes |
24.14% |
27.66% |
16.00% |
CMTers who can stand on their heels |
13.79% |
6.38% |
8.00% |
Average age CMTers first started to walk (as a baby) |
14 months |
15 months |
11 months |
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