Charcot-Marie-Tooth Disease Survey Results



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Diagnosis

CMT Symptom Information

CMT Symptom Information II

Skin Problems

Deformity of Hands and/or Feet

Mobility and Dexterity

Mobility Aids

Specific Medical Problems:

Eyes

Hearing

Heart

Breathing

Immunity

Speech

Kidney

Bladder

Stomach

Bowel

Back

Facial Weakness

Swallowing

Feedback





Specific Medical Problems:
Other Body System Disorders

TYPE UNKNOWN

TYPE 1

TYPE 2

Percentage of Each CMT Type in Surveys Received

35.27%

46.43%

18.30%

Eyesight problems

93.10%

72.34%

92.00%

  • Far Sighted? eg.:see things better in the Distance

24.00%

35.45%

31.58%

  • Near Sighted eg.:see things better Close to you

52.00%

31.74%

63.16%

  • Diagnosed with Optic Atrophy?

8.00%

16.67%

0.00%

  • Other Eye Disorders

12.00%

10.85%

10.53%

  • Wear Glasses?

93.10%

72.34%

92.00%

Problems with Speech eg:slurring?

34.48%

27.66%

12.00%

Hearing problems

44.83%

40.43%

36.00%

  • Hear things More Clearly than most people

10.34%

8.51%

24.00%

  • Noise bothers them

34.48%

34.04%

64.00%

  • don’t hear as well as other people

51.72%

48.94%

48.00%

Heart problems

17.24%

12.77%

16.00%

  • told they have low Blood Pressure (below 120/80)

10.34%

23.40%

44.00%

  • Pulse Rate Less than 100 beats per minute

44.83%

25.96%

52.00%

  • pulse rate more than 100 beats per minute

3.45%

7.66%

8.00%

Breathing problems

41.38%

38.30%

32.00%

Immunity

  • Frequent colds or flu

20.69%

14.89%

20.00%

  • Longer recovery period than normal from colds or flu

17.24%

23.40%

32.00%

Kidney problems

20.69%

12.77%

12.00%

Bladder problems

20.69%

27.66%

28.00%

Bowel problems

48.28%

42.55%

40.00%

Stomach problems

62.07%

38.30%

28.00%

Scoliosis or significant Back Pain

51.72%

61.70%

80.00%

Facial Weakness

6.90%

19.15%

16.00%

Swallowing problems

24.14%

23.40%

28.00%

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