Let
me introduce myself, I'm Bruce, 42
years of age, 5'4, weighing about 100
lbs. I live in Tipton, Indiana in a home built by Habitat, about 10 miles
from my parents, and it's 50 minutes north of Indianapolis.
I'm one of the rare adults who has a disease called "Recessive Dystrophic
Epidermolysis Bullosa" "RDEB" for short. Basically EB is
disease that were born with, that we didn't get my second layer of skin.
I was born December 2, 1966, two months premature, and I have a twin sister
"who is EB Free" I'm older by 5 minutes "grin". I
also have two older brothers that were fine.
Doctors didn't know what was wrong with me at first, just knowing that
I was shedding my skin. Also, at the same time, my parent and doctors
didn't know my mom was going to have "Twins", so it became a
big surprise to say the least. I was born in Elwood, Indiana and spent
the first month in the Elwood Hospital, then was transferred to Marion
Hospital for another month before going home. While in the Marion Hospital,
a lady pediatrician doctor took one look at me, and diagnosed me with
"EB". She had seen one case in Harvard Medical School. Pretty
much when I was born, the only thing that wasn't wrapped on me was my
head and bottom.
For more about my life with EB from birth to present, please click on
'My life with EB" below.
