BEFORE HE WAS BORN
ONLY TWO DAYS OLD
7 MONTHS  VSD REPAIR
16 MONTHS
MORE SURGERY?
18 MONTHS
HEART CATH AND SURGERY
PRESENT
18 MONTHS  AND SURGERY

This surgery went unbelievably well!  The Doctors decided on a modified Konno procedure.  The toughest part of me was the pre-surgery time.  I was searching everywhere for information on this procedure and found very little.  My advice to anyone else looking for it, is to look at all information on the Ross-Konno and subtract the Ross.  The Ross part is a valve replacement, the slicing-dicing and patching part is the Konno.

A week before his surgery we confirmed that his Coronary Artery was "in the way."  The Surgeon has to go in at a specific angle to get to the aorta, and the artery was blocking his path.  This REALLY added to the complication of the surgery, but we were lucky in that it was spotted before the surgeon went in.  Our Cardiologist told us that sometimes the artery can hide beneath the heart muscle and it is not discovered until the Surgeon slices it and the patient begins to bleed out.  So I thank God that we knew going in.  The doctors made sure to prepare me for all the risks involved, from a possible pace maker, to deterioration of the heart muscle which would lead to a transplant, to death.  I was VERY scared this time, ten times more than the other surgeries.
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I was amazed at how well this surgery went.  His first night in the PICU (Pediatric Intensive Care Unit) was very hard for him and me, he was so confused and uncomfortable that he didn't go to sleep until 3am, but I didn't leave until he fell asleep.  They had given him every sedative and drug possible and he still kept fighting.  What a strong little boy!  That strong little boy went to the floor the next day and went home three days after that.  Daniel's surgery was on January 31st and he went home on February 3rd.  It was truly a miracle and testament to his strength and HEART OF GOLD.
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