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I have a 4.4 year old daughter wiht severe seizure disorder. She has grand mal and myoclonic seizures. We are trying several diferent medications but none of them is working.

I want to try this diet. My daughter is on gfcf diet with no improvements. Nothing seems to be working as we are giving her these seizure medications that are making her hyper and her mental growth has basically stopped.

We started a new medication named Keppra for her seizures, looks like this medicne contains maize starch. I was wondering if we do the sc diet, will we see any benefits, as we are givng her keppra(I think this may be sc ilegal). I read the book BTVC and it said that we have to change the vitamins also to have an affect of this diet.

Please advise.

thanks
sha

Hi Sha,

I recall that a lot have been tremendously helped with the SCD who were suffering with seizures, so hopefully your daughter will be one of them.

Sometimes compounding pharmacy can make SCD legal meds. I don't know about this drug, but a pharmacist should.

Some people can do the diet with small amounts of illegals in their meds and vitamins and have no problems. I am not one of them. The tiniest amounts of any illegals have sent me into a flare. It really depends on the individual.

Sheila,
SCD 20 mos, UC 19 yrs

****************************************************************************

<< I know that there is absolutely no way to add any casein back into my sons' diets.
Is this going to negatively impact the results we might see by using the SCD? >>

Hi Jody,

Keep him on the diet!! We have been on SCD without caesin for five months with wonderful results, GI, behaviorally, socially, and language boost. We are thinking of reintroducing caesin because I am wondering if it was ever part of the problem. I would like to get him on some yogurt because I think it would be very beneficial to his gut issues.

Alison B.

*****************************************************************************

PST and SCD

Does anyone have a child that is on the SCD and has problems with the PST pathway? I am wondering if you have given your child any of the foods that are high in salicylates that you avoided previously, such as apples, tomatoes, berries, etc.? And have you had any problems with it?
Thanks, Erin

Erin

Our son has always been very sensitive to the PST pathway type foods - apples, grapes, tomatoes, chocolate and especially oranges.

About 8 months ago we cut his starch intake drastically (though not completely) and substituted fruit instead. We are not completely SCD yet (working towards that), but he is having very little starch.

I was surprised to find that he was able to tolerate the fruit without problems. He is having apples, grapes, raspberries, blueberries, strawberries and oranges maybe 2 or 3 times a day and no red ears or cheeks. Eg in a typical day he will have 1 apple, a small portion of grapes, 2 or 3 little oranges. I suspect that overall the load on his detoxification pathways have been reduced (less starch = less yeast = less toxic byproducts = less detoxification required) and so he is able to tolerate things which previously would have caused behavioural problems. Maybe someone else will correct me if my reasoning is wrong, but this is what we are finding in practice.

Caroline

****************************************************************************

Please read the book,Breaking the Vicious Cycle, before reading this section.After reading the book you will be able to understand this part of the website.

ALMOND FLOUR


She[my daughter] can only handle nuts that have been turned into "flour" she
doesn't
digest them just out of the bag. Good Luck!
Marisol


Where do you buy the almond flour?

Lucy's Kitchen Shop
Intestinal Health

For filbert,pecan,and almond flour call 845 356 3504

You can also make it yourself:

For those who are new to this:
Before we realized my daughter couldn't do almonds we blanched them first, then
dehydrated them, then ground them (made us feel like we lived in pioneer
times!) and the final product was as good as anything we could have purchased.
If you don't dehydrate them they will turn to "butter" when you grind them.
Just FYI.
Marisol


Yes, we grind up pecans and walnuts, whole, in our Vitamix and get a decent
"flour" from it from which we make her muffins or coat her chicken. Good
luck!
Marisol

You might want to start with the blanched almonds and work up to using the
whole ones... Or like somepone else wrote earlier use another nut if the
almond seems to bother him... I am a almond freek I would eat them allday
every day!


Linda, I'm cheap ;-) Ive been buying bags of almonds from Costco (I know its
not organic but.... Its about $5.00 for 3 lbs) putting them thru my food
processer with the grater attachment on, I do 4-5 lbs this way and then put
them in a ziplok in the refig. Then when I need flour I pour them into the
coffee grinder I found at costco Its made by DeLongi, it was $25.00 you can
adjust the grind, it actualy kind of smashes the nuts, usualy I use the drip
grind... if you go to fine it will make almond butter down in there and then
its a MESS to clean! It needs to be shaken, turned upside down ect while
grinding, but it will work!

Makes a really fine fluffy flour, kind of between white and whole wheat in
texture. Most people don't know its almond....



For extra sensitive kids:


That's what Sally Fallon suggests in the book "Nourishing Traditions".

Soak the almonds or pecans (4 cups nuts to 2 tsp sea salt, add filtered water), leave in a warm palce 7 hours or overnight, then dry in a dehydrator or a warm oven (no more then 150F) for 12 to 24 hours. I find it takes the full 24 hours. .

That book talks about this making them more digestible, the soaking breaks down enzyme inhibitors. . But doing it does not really take much work, and it definitely makes a difference, for me it doesn't give you that heavy feeling, less gas, that eating a raw nuts always gave me. (Though we are not eating whole nuts at all right now, and are only starting to try to re-introduce nut flour.) Even with this soaking method though, I think that whole nuts should be avoided totally, and just go slow with the nut flour. We are trying to make our own, so we can do this to the nuts first, to see if it helps my son tolerate them better..

Sonya.










ANTI-FUNGALS (natural)



Have you tried any natural anti-fungals like oil of oregano or garlic
or cranberry?
Jen and Colin










Dear Julie, You wrote asking about nystatin. You said: << Because he is dairy free we have not yet tried the yogurt >>. I have several comments, based on personal experience and BTVC.

I believe it would be a real risk to put him on Nystatin when he is not able to have yogurt. Nystatin is a mold-based anti-fungal. If you kill off the candida with the Nystatin, what will replace the candida in the intestine? Without the yogurt passing through to replace the candida as it dies off, you have a risky situation. Unless you can use pro-biotics. Even so, I believe Elaine recommends the yogurt above all. It would be worth trying to see if he can tolerate probiotics or yogurt. Maybe you want to try dripping it as detailed in BTVC as that is easier for many sensitive ppl to tolerate. He needs to build up those good flora. And then he may not need the nystatin. Healing happens one step at a time.

Nystatin is not always the best choice of anti-fungals. If you could have him tested, some labs test the particular strain of candida he has to see what will kill it and what won't. On a scale of 1 to 3, my particular strain(s) of candida reacts to Nystatin only at a 2. Three would be best. It doesn't seem worth it to take Nystatin in this case.

My experience is that the positive effect of eating yogurt is so much greater than the killing effect of anti-fungals. Still, you may have to start with the a-f's. What other choices do you have? The grapefruit seed extract is a good choice. These things can take time. But you need to get some good flora in him above all. Esp. with the gr seed extract killing off candida--what is replacing it?

I hope this will help in your difficult decision about Nystatin. I know a good legal dairy-free acidophilous here in America if you are interested.
Best wishes, Christine in Oregon.

Greetings.
I just wanted to remind everybody of this:
Yeast and mold and fungus are all related, like cousins. Anytime you introduce one, they ALL have an orgy and produce multidinous offspring exponentially. So if you eat blue cheese (mold), it will cause yeast and fungi to boom in your intestine.
I feel the same applies to Nystatin (mold) for some ppl. Likewise, if you eat mushrooms (fungus), there can be an explosion of yeast and mold in your system. Also, they all thrive on sugar, and it will cause the same kind of population explosion.
Hope this helps.
Love, Christine.
Oregano oil is a popular and effective supplement for people with candida overgrowth and intestinal imbalance. It is an anti-fungal of excellent repute. It is prescribed by naturopaths for people who do not do well with Nystatin and other pharmaceutical anti-fungals. Naturopath Dr. G. Young writes "Oregano oil is a powerful anti-infectious agent (for respiratory, intestines, genital, nerves, blood, and lymphatics) with large-spectrum action against bacteria, mycobacteria, fungus(yeast), virus and parasites."

A note of caution: Oregano oil does contain one natural phenol--methyl chavicol. If one is phenol sensitive, perhaps Grapefruit Seed extract would be a better choice.

A personal note: I am quite sensitive to synthetic phenols, but not to natural ones. Perhaps others are in this category. For me, oregano oil is much more tolerable and effective than any pharmeceutical anti-fungals. I also take GSE. The combo is working well.
Love, Christine.
Dear Sonya, You wrote:
<< I also menat to ask about the garlic and onions and oregano >>
Hi...sorry so late a reply. I have been taking an oregano oil which my Naturopath recommmended because it is emulsified, thus easier to digest and utilize. I really like it a lot as there is no reflux from it and it seems quite effective.
It is Biotics Research's A.D.P. They are in Rosenberg, Texas 77471.
Love, Christine.

Dear Julie, You wrote:
<< We are currently using nystatin for candida overgowth, and seeing considerably increased 'babbling' and zoning out. James also has a really bad cold, still, now 6 weeks and counting............ >>
You are having such a difficult time! I'm sending up a prayer for you. It sounds like he is reacting to the mold-base of the Nystatin. Have you considered trying the Grapefruit Seed Extract? It is said to not kill the good bac's, while it wipes out the bad ones. Many ppl do much better with that than with Nystatin, and with the oregano oil (see previous post).
Love, Christine.


Oil of oregano, garlic, onion, coconut, cinnamon (I think), are all natural anti-bacterials/fungals. I've rotated all of these with Colin. They are all used in the recipes (well oregano in the spice form not oil) and seemed to have helped Colin. However, the best of all was the yoghurt.....! :) We are currently trying monolaurin until we can get C successfully back on his yoghurt.
Best,
JenandColin


[email protected] wrote:Dear Sonya,
Greetings ! You asked: << Is this supposed to be helpful with candida, yeast, etc? >>
Yes. Oregano oil is the most effective natural anti-candida and anti-yeast remedy. Lots of ppl swear by it. Naturopaths nearly always prescribe it.
Interestingly, oregano flowers are the favorite flowers of my bees. They must protect their hive against mold and fungus in the wintertime and I feel certain they somehow know to get the oregano into their honey to protect themselves.
Love, Christine.




BEGIN THE DIET

mom2kyle21113 wrote:
Okay, I got Elaine's book yesterday and read it. I would very much like to do this diet. But I know how hard the gfcfsfpf diet has been on me and my husband and our sitter. I would really appreciate someone's help in figuring out how to do this diet and do it so that it doesn't completely turn our world upside down yet again.

Is there a menu planner I could use somewhere? How about set menus that I could doctor up for him? Is there a way to make stuff and freeze it and then use it like a tv dinner type thing? I work full time and have a 4month old, not complaining, just being honest with myself about how much time I have now to devote to doing more.

Okay, in the book Elaine says if you have a reaction to a food then not to eat it. Well the only true hives reaction Kyle ever had was to soy and peas. Although he had recurrent sinusitus with peanuts and other offenders. Applesauce causes him to break out in a bad yeast type rash on his butt.


I really want to do this and see if we get any changes over the course of a month. I suspect that we will see great changes, which is my motivaton of course for doing the diet.

I mean what kid refuses to eat foods only to eat cookies, chips, and french fries. It totally plays to what Elaine is saying aobut the carbohydrates. But at the same time I'm dealing with a kid who reacted enough to peas, peanuts, fish, eggs, and soy for the dr. to tell me to excludet those from his diet.





Kyle's Mom,
I know you are feeling overwhelmed. I hear you--I am a single Mom. I quit my job when Colin got diagnoised to get him started on this diet. It does take a lot of work.

However, the way I always explain it to myself--feeding kids in general takes work. To cook a meal, you always have to cook a meat, veggie, etc. But with the SCD you just have to plan the meals more, the snacks, the juice, and always be prepared.

Here are some suggestions:

  1. Try a few basic foods at the beginning. Either the intro diet (boiled burgers, chicken, fish), gelatin, broth, etc. or a variation of that.
  2. Add new foods slowy.
  3. Once you know some SCD foods he tolerates, spend one day a weekend cooking and freezing ahead. If you have the funds, you can hire a helper (or friend!) to help you cook and freeze.
  4. Prepare snacks and have them on hand.
I put cute bags full of cooked, sugar free bacon in the fridge, backs of goat gouda, and have ripe bananas frozen on a stick or ready to give plain. I also am cooking necterines and peaches ahead (it tastes like applesauce). If you son doesn't have diar. you could eventually try dry fruit and nuts; but I wouldn't in the early weeks. I wish I could give you menus. It's not that easy. We really got to know our son one food at a time. No one can tell you what he is ready to digest. That is only something you will know by observation---whether he gets gas, burping, his stools, etc. Keep a diary.

I know it turns your world a little upside down at first. It is like being our grandmothers again; I understand why mine was always in the kitchen now! She cooked everything from scratch. But you know, my son still thanks me for helping him. His tummy was in pain and he couldn't tell me that before. That is what keeps me cooking despite the effort. I have to cook him food that doesn't hurt him. The GFCF always did.

Best,
JenAndCOlin




Hi Kyle's Mom,
Way to go! I'm glad you're going to give the diet a try. Jen has already given you some great advice. Here are a few of my thoughts. The diet does take some extra preparation, but I do a lot of it on weekends and just freeze or refrigerate the items until I need it. For example, the Lois Lang bread is extremely easy to make (I just throw all the ingrediants in my mixer and then pour it in the pan) and one loaf lasts me a week (in the fridge). I eat it plain, toasted, or sometimes add shredded cheese (don't get the kind that is already shredded because it probably has additives) and melt the cheese on top. I make a batch of muffins and freeze half and use the other as a snack (they have honey so they are nicely sweet). The banana bread is yummy and also serves as a snack. We keep veges available that can be quickly steamed or stir fried (takes approx 10 min either way). If we cook a steak during the week, we cook an extra big one so I can have left overs during the week or freeze for a later time. Same goes for roast, which is what I'm doing today. Once you're sure that you son will tolerate yogurt, get a yogurt maker that will make the most yogurt at one time. I actually use two, make them both on the same day and have enough yogurt for the week (unless I cook with it, and then I make it biweekly). Good luck,

Pam

Is there a way to make stuff and freeze it and then use it like a tv dinner type thing?



Dear All,
It has been my experience (and I know I have said this before), that before removing the whole spectrum of grains including corn, spelt, etc. etc., people (and especially children) will react adversely to just about all the legal (allowed foods) in SCD. They, parent, therefore, come to SCD with trepidation based on their previous bad experiences.

After introduction of SCD with the removal of the glutenfree products (ughh, uggh and more ugg) especially the horrible corn and corn syrup and the rice, after they are removed, then introducing the legals carefully, slowly and working up, most of the time the children will do just fine.

Elaine



INTRODIET



>HI-- >
>I am already on SCD...but how do I get my son started when he won't eat
>barely anything on the intro diet....Suggestions? He is two.
>
>He hasn't been diagnosed but he has diarrhea constantly since he was
>born...and I find that milk makes it worse...so that has already been
>dropped. I make yogurt smoothies for everyone but he is so picky...
>
>Any suggestions are appreciated and thanks in advance.
>
>Carleen
>UC 19yrs
>SCD 2 months

Hi Carleen

Think like a kid for the intro.
For the homemade gelatin - cut it into kid shapes
If he won't eat eggs you could mix them ,cook them flat & then cut them into
more shapes.
Apple cider or grape juice (1/2 juice, 1/2 water) frozen into popsicles
The broiled beef patty rolled into little kid size meatballs.

Unless his symptoms are severe - cramping and Diarrhea, one or two days on
the intro diet are sufficient (BTVC p51)

If it is only a day or two than you could just make as much as you need from
the intro diet and let him fill up on that. Then after that give him a
balance of foods from what he will eat that is SCD legal.

My son sounds like yours. He had D since he was born. Between 5-8 mushy or
D diapers a day. He would never drink milk. I started the diet Feb 2001,
hubby joined me 100% SCD in May of 2001. The kids were almost there so in
March of 2002 we decided to put them on the diet. My little guy, who just
turned 3, responded excellently. He started having trophies right away. As
long as he has variety within what he can eat he is quite happy with SCD.
He tells my parents that he can't eat polysaccharides 'cause it makes him
sick. He occasionally gets into things he is not ready for like raisins or
unpeeled aples and that sets him back a bit. But his setbacks get shorter
each time. Hope that helps.

Sheila,
UC 18 yrs, SCD 18 mos

Daniel 3 yrs old,
undiagnosed, SCD 6 mos









Basically, Start out on the intro diet for at least 2 days and then very slowly add small amounts (1 Tbsp) of new items. Wait a few days in between to see how each new food react. You will be making a baseline from the intro diet to add new foods to and gauge her response.

When you start adding veggies they should all be cooked, peeled and deseeded. You should wait a while on cruciferous veggies - vegetables in the Brassica or cabbage family. These include cabbage, broccoli, brussel sprouts, cauliflower and turnip. Same thing for when you decide to try the 24 hour yogurt. Start with a Tbsp a day and work up to more.

Sheila



Sue, I can empathize with your situation. I know it is emotional--I can only compare it to the detoxes I've witnessed (for alcohol) on TV! My son was so addicted to carbs and sugars. It killed me to watch him beg for his old foods.
However, I knew it was for his best interest. I considered it tough love, because I truly believed I was responsible for restoring his health and that he needed this diet. I also thought about other (healthy) countries--such as China, Japan, etc.--they eat the same thing for breakfast as they do all day (meats, veggies, etc.).
I went cold turkey in order to clean out his carbs and sugar cravings and attack the yeast and bacteria full force. I ate with him (which helped) exactly what he had. We ate soup for breakfast and squash "pudding" with honey. If he didn't have problems with eggs (breathing) I would have served those too. We ate ostrich or turkey patties for lunch, lamb, etc. I added fish, shrimp, other cooked veggies. After 2-3 months I realized he wasn't "healing" on the meat and veggies alone (even with probiotics). So, we added yoghurt. It was really then that we saw the true healing occur. How about eggs, sugar-free bacon, jello (not all do well on gelatin however--including Colin), ripe bananas....and then cautiously add the yoghurt? You could eventually add nut flour products to the AM too which helps you in expand a lot.
Best wishes,
JenandColin





IMPORTANT TIPS FOR BEGINNERS

Reread the book and you'll see Elaine has a chapter devoted to what's "legal" to eat and what's not. None of the foods listed under headings such as NOT ALLOWED means you should avoid them under all circumstances.

BUT, and this is an important "but" ... if you read the book carefully, you'll learn that what is OK for people who have been on the diet for 1 year is not OK for folks who have been on it for 6mos.. And newbies should not think it is OK for them to jump quickly into eating foods that are OK for people who have been on the SCD diet for 3mo.

We all have to start out with the diet for beginners ... and usually we find it helpful to return to this very simple list of foods when we're having a flare. After the first few days, personal experience should be the guide as to what can and can't be eaten at this stage, i.e., what makes for more, rather than fewer symptoms. Some people are allergic to foods that others can tolerate well. Some people are sicker than others when they start the diet.

Sometimes when people on strong medications such as Prednisone begin to taper off, they find they have to take it easy on some foods that had once been OK.

The SCD diet isn't an easy one to follow. It requires patience and careful observation.

But nearly everyone on it seems to agree: The SCD diet is WELL WORTH THE TIME AND EFFORT it takes to follow it

ENZYMES


I use Digest Gold by Enzymedica.It was recommended by
Karen De Felice.
I get it from
www.getbigger.com
It is also available on other internet sites such as
vitaminlady.com.
My daughter does OK without enzymes if she follows the
diet.
I sent Elaine the ingredients and she had no
objections.
All the best,
Mimi




From Karen DeFelice:

The Houston ones are a bit different and although some people can find alternatives to them, others find they are the only ones that work. Guess that is because Dr. Houston is a true medically trained enzymologist and not just a supplement company stuffing different enzymes in capsules. :)

The rice bran may just not be an issue either because the enzymes would digest that and they go on to other foods, so they self-digest the bran. That may be why you are doing so well on them. But if this is a concern, here are some other suggestions. Enzymedica has enzyme specialists too and their products contain no fillers. They have several to choose from. I have tried several of their products. The Carbo or Digest or Digest Gold is a good substitute for Zyme Prime as a general all-purpose one. They don't have a sub for the Peptizyde BUT because the SCD has fermented foods which pre-digests the casein, this may not be an issue for some and you may find that any strong protease products (like Digest, Repair, Purify, etc) will do just fine. The No-Fenol is the kicker and most likely to also help with fiber. The closest match to an Enzymedica product would be the Candidase because it contains cellulase and protease (but doesn't have the other stuff).

But as long as you start with some type of digestive enzyme, that will help with food breakdown and assist with the SCD.

Karen.

There are two enzyme products which look particulary well suited for SCD goals and foods. The first one is a product that has been sold about a year online. I talked with the owner/formulated at length today in 3 separate conversations. He was really forthcoming with information and detail, and thoroughly knew his stuff. The product is called Ultra-zyme Plus by Thorp Nutrition:

http://www.throppsnutrition.com/ps_ultrazyme.htm

90 capsules/bottle - $18/bottle
3 bottles or more = $16/bottle
12 bottles or a case = $13.50/bottle

I like the balance of the enzyme types and quantities. No token amounts just to say 'we have more enzymes than anyone else'. It looks like a good, thought-out mix of things that would coordinate well with the purpose and foods of the SCD. I am trying a bottle myself. The price is good. I am calling their manufacturer about the trace minerals (which some people think make the enzymes work better). It includes magnesium stearate for the 'fill' helper which is SCD approved. A good one to consider.

Another product is the Digest Gold by Enzymedica. This is a good one too but much more expensive (unfortunately), so it would be cheaper to try the Ultra-zyme Plus first, and then the Digest Gold. A note on the acidophilus in Digest Gold. The probiotics in enzymes are generally 'token helpful' amounts. Not nearly enough to take the place of the yogurt or a straight probiotic product. It is just a nice-to-have in enzymes if anything. Some people do not think probiotics are beneficial if taken with meals anyway. The Digest Gold has some ingredients that appear would be beneficial on SCD (the other one has these as side-activities or listed differently). Enzymedica makes products I think of as 'clean', no fillers, amounts that go to work, and good quality. They just are a bit expensive for regular use, as enzymes go.

Karen.

Dear Friends, Elaine sent a post from Susan about enzymes saying that their doctor recommended:
<< digestive enzymes containing protease, amylase and lipase >>
Digestive enzymes help me.
I have tried many over the years, and far and away the best for me are indeed the plant-based enzymes. I personally do not do well with betaine hydrochloride. Prevail Vitase Digestion Formula is the best for me. It contains:
Pure Plant Enzymes:
Amylase
Protease I, II, III and IV
Lactase II
Cellulase I
Lipase II
Maltase (Malt Diastase)
Sucrase (Invertase)
Other Ingredients: microcrystalline cellulose and ascorbyl palmitate.
www.prevail.com.
I buy at Wild Oats.

Christine


<< Does anyone have any experience with legal pancreatic enzymes and which ones are recommended >>

Pure Encapsulations offers one. It is called "Pancreatic Enzymes" as I have mentioned before.

Mary




GOAT YOGURT




GOAT YOGURT (AS STARTER FOR MAKING YOGURT)






THIS YOGURT IS ONLY TO BE USED AS A STARTER TO MAKE HOMEMADE YOGURT.
SCD ONLY ALLOWS HOMEMADE YOGURT TO BE EATEN


Here is the link for goat milk and yogurt in Ontario. I don't know if they ship to other parts of Canada.

Family Farms Goat Milk Products
Bill and Coby Zandbergen
Zandbergen Farms Ltd.
R.R. # 2
Brinston, Ontario
K0E 1C0
Tel: 613-652-2243 Fax: 613-652-4752

http://www.family-farms.on.ca
e-mail :
[email protected]

If you call or e-mail they will tell you the nearest retail location that stocks their products. Some are HFS, some are local grocery stores.
Alane

THIS YOGURT IS ONLY TO BE USED AS A STARTER TO MAKE HOMEMADE YOGURT.
SCD ONLY ALLOWS HOMEMADE YOGURT TO BE EATEN

Here you go! The goat farm in Pennsylvania:

Bob and Mary Ellen Spots

610-689-5498

Their goat yogurt has: all three bacteria we need, plus some vanilla, and creamorous.

Caution: They will try to sell you Kefier with 7 strains of bacteria (including bifidus). For kefier questions ask Seth on the long island list or ask someone on this list or the kids list whom I think is using kefier...

Luv,

JenandColin

THIS YOGURT IS ONLY TO BE USED AS A STARTER TO MAKE HOMEMADE YOGURT.
SCD ONLY ALLOWS HOMEMADE YOGURT TO BE EATEN

GOAT MILK(FOR MAKING YOGURT)

Call the Department of Agriculture in your state to find the names of goat farmers.Also ask health food stores in your area about goat farmers.




Hello Marisol,
I went to the "real milk" websit (www.realmilk.com) and found several people who will ship it to you. You could look there (they give a listing by state) and see if there is anyone close to you, as I am not sure where you live. Go to the website and click on the WHERE section, or more directly, the listing is at: http://www.realmilk.com/where2.html

The 2 I found that I thought would work for me was one in Ohio and one in Texas. I decided to try the one in Ohio because I live in Virginia, and they ship it frozen, and I thought it would be better because it is closer. But it probably didn't matter because I think the one in TX also does 2 day delivery, so it would haevprobably taken the same amount of time. Anyway, here is the info from teh website about the one which I ordered from:

North Benton (Ohio): Raw goat milk is available at O'Brocks Goat Dairy. Ken O'Brock, O'Brock's Goat Dairy, 9435 12th St., North Benton,Ohio 44449, 330-584-4681, [email protected]. We ship frozen raw goat milk by UPS to customers within 400 miles and they report it gets there by the second day and is still partially frozen. The price is $6.00 per gallon, minimum 2 gallons. Shipping is $12.00 for 2 gallons. It can also be picked up fresh at our farm if you call ahead.

I then emailed him to ask about what the goats eat, any hormones/other yucky stuff given, etc and he wrote this to me:

Thanks for writing,
We do grass feed our goats when there is grass. However, due to the drought the grass is sparce and the goats are being hay fed. That's just dry grass. The milk is $6.00 per gallon sold only in multiples of 2 gallons.UPS shipping is $12 for the 2 gallons. It is fresh frozen and wrapped and boxed well so that it arrives still partially frozen and can be refrozen. No antibiotics or hormones are used. Our goats are very healthy and our facilities are very clean. We don't have a large herd. We have been raising dairy goats for nearly 40 years. I could email a digital photo of our goats, where they live and our milking parlor if you wish. To order milk you send us payment in advance. $24 total for each 2 gallons. Some people pay a month in advance and we ship then 2 gallons or 4 gallons a week. We ship only on Mondays or Tuesdays so the milk will get there before the weekend. They usually get it by the second day.

Ken O'Brock
O'Brock's Goat Dairy
9435 12th St.
North Benton,Ohio 44449
330-584-4681
[email protected] wrote: >Hello!
>I am interested in knowing if it is possible to mail order your milk? I
live
>in Harrisonburg Virginia. If you ship it frozen, and it is partially
thawed
>upon arrival, can you freeze it again? How long will it keep in freezer?
>
>The message I read about your farm said raw milk, but I was wondering if it
>is also grass fed? antibiotic-free, hormone-free, etc?
>
>Many, many thanks for your time!! I am desperately trying to find a source
>for this and wish I could just get a goat!!!
>
>Sonya
>
>.
But, I did want to add that on the Real Milk listing website, also under Ohio, they listed another dairy, and it said this is the only place in Ohio licensed to sell raw milk (selling raw milk in some states is illegal -- it must be pasteurized---I am not particularly worried about this because we are heating it fro the yogurt, not drinking it plain. PLus the raw is supposed to make a better yogurt because it still has active enzymes and etc) Anyway, right after the listing for O Brock's it gave the other listing: Yellow Springs: Young�??s Dairy. This is the only dairy that can legally sell raw milk in the state of Ohio.

But it's possible that has changed, I don't know.

And then there was a place in Texas who shipped anywhere, and I think they are the big one, and I know one woman on the LI list a long time ago used to buy it from there. And that is:

Raw goat milk shipped frozen anywhere in the US. White Egret Farm (512)276-7408 [email protected]

I also emailed them, and they wrote this to me:

Sonya, The milk is shipped frozen. The milk can stay in the freezer from 3 to 5 months. Once it has been thawed and put in the refrigerator, it lasts 4-5 days. It is always best to fill up a box when ordering because if you don't, then the milk will thaw during shipping. The increments are 2 1/2 gal, 5 1/2 gal, 10 1/2 gal, and 18 1/2 gal. You can, of course, order less. I need your zip code to give you some shipping costs. Let me know if you have any more questions.

Rebecca King
White Egret Farm
15704 Webberville Rd
Austin, TX 78724
(512) 276-7408
Okay, phew, sorry so long, but wanted to share all my info in case it is helpful.

HAVE to go to bed now!
Love,
Sonya



Dear Moms,
You are all so awesome and amazing to go to these lengths to get the Mystic Lake Goat Yogurt for your starter. Your kids are blessed. 2 Hints:

  1. ) I only need to use only[ 1/4 cup per quart] for starter. Sometimes it just looks so good I use a heaping [3/8 cup]. It seems to turn out the same. And I am even using non-fat milk since I have auto-immune disease.
  2. ) I still drip my yogurt for 30 minutes after it is done. I find this makes it much easier to tolerate--I am problem free that way. I really recommend dripping.
Good luck! I am so excited for you all and your kids. Keeping my fingers crossed and a prayer in my heart.....

Love, Christine.




For directions to make the goat yogurt, click here

GOAT CHEESE

It is Arina Goat's Gouda that I get from Whole Foods. I called last year (to Whole Food's headquarters--I think it was in TX) to verify that it is aged more than 6 months. Colin does fine on it. I believe they carry sheep's cheese that is aged as well; I can't recall the brand as we don't use it. Best,
Jen and Colin

| <

I called this dairy:
http://www.chevre-tournevent.qc.ca/s03_pr_chevrenoir.html
T�l�phone : 819.478.8857
They make wonderful goat milk products.Their Chevre Noir is a cheese made from raw goat milk and is aged for over 6 months.I bought some ;it was delicious and my daughter finished it all.They sell goat butter ,goat lactoserum and even goat leven.
Unfortunately their goat yogurt has tapioca.
All the best,

Mimi


SCD legal DCCC from goat's milk

I get fresh raw milk to make my SCDiet yogurt with from White Egret farm in Austin, Texas. They also make SCD legal DCCC from goat's milk. They are a wonderful, health-conscious farming community (the owners are microbiologists from UT Austin so they really care about the quality of their products). I am fortunate because the farmer delivers directly to us in San Antonio, but they can send you anything by mail. You can call them at 512-276-7408

. Erin Graf, Undiagnosed, SCDiet 4 months

MILK SUBSTITUTE


Hi Sonya,

++ I don't have the name of a brand of legal coconut milk but I do have how to make your own. I vaguely remember Deborah posting that (according to a fellow who's in the know) all canned coconut milk has added gums whether it is on the label or not.

Nut Milk
A milk made from raw nuts can often be used in place of dairy milk. To make a nut milk liquify one cup of blanched almonds with 4 cups of water in blender., Add 2 tablespoons raw honey for sweetness. decrease water for creamier milk store in refrigerator 4 or 5 days at the most the remaining almond paste after it is strained can be tossed on vegetables or in soup. This can be used to replace milk in recipes such as custards and puddings
It is fine to drink also. More nuts in proportion to water gives a richer milk. This is somewhere between whole milk and half and half in richness. 1 cup and approx two tablespoons almonds For a less rich milk use 1/2 cup almonds then 2 1/2 cups water works best if warm Put nuts in blender and blend approximately 2 minutes (more or less) depends on your blender. The nuts should be pulverized. Strain the resulting stuff to remove the nut chunks.I use a mesh coffee filter (ex, Melitta gold filter) and a rubber spatula to force the liquid through. Paper coffee filters are too fine, and kitchen seives are too coarse. this makes approximately 2 cups You can also line the seive with cheesecloth

Coconut Milk

In blender or food processor combine 1/2 cup each grated unsweetened coconut and boiling water.

Blend until coconut is finely ground. Strain through a fine sieve or a piece of clean muslin.

Squeezing to extract all the liquid. Discard coconut, Makes about 1/2 cup

Sheila's Note:
Instead of discarding the almond or cocnut paste you could warm it with some raisins & cinnamon, or cut up apple pieces and then serve with some yogurt. My new motto is waste not want not. :)

Sheila

Also, what is a legal brand of coconut milk?

COOKING THE FOOD WELL AT THE BEGINNING OF THE DIET


Our first priorities is to get the maximal amount of food in a
digestibale,
absorbable form leaving little for bacterial growth (or yeast - they ride
piggy back on each other).
Don't worry about cooking the food well. We have to cook it to break down
the cell walls of the plant material or else the substances inside the
cells
of carrots, apples, etc. will not be absorbed because of the rigid cell
walls in uncooked food. It then keeps going down, down and feeds those
critters which adapt to any energy (calories) that come down.







PROBIOTIC ( Dairy free )

We use acidophilus from customprobiotics.com. If you ask for L.
Acidophilus
only, it is 100% legal. We use three small scoops in Colin's juice a
day.

Best,
Jennifer




< What do you guys think, should probiotics be given on an empty
stomach or
with food? >>

I always try to take my probiotics before I start to eat a meal, as I
have
read that the stomach acid is lowest at that time.
If I forget to do that, then I take them btw meals.
If I really need them, I take them whenever as I figure some of them will
make it to my gut no matter what.
Love, Christine




Yes. I posted this to the SCD list and no one objected.
It agrees with me very well and I like it because it is so simple.
It is Nature's Life Milk-Free Acidophilous.
Ingredients: Carrots, Green Peas, lactobacillus acidophilous, gelatin
capsule
and magnesium stearate.

Their web site is www.natlife.com.
I hope this will help! Best to you and William, Christine.




Probiotics yeast die off
[email protected] wrote:To Jen,

Hi! I am glad to read your post! I had been wanting to ask you about
Colin. I am so glad he is doing well. It is truly amazing!! I am also
wondering about the probiotics, I know Colin takes those, and you mentioned
about the "die-off" of the yeast. I was wondering about that, if that could
be what was happening to us. Because initially when we took the custom
probiotics pure acidophilus powder, it gave us all those symptoms, and then
we stopped for a few days, and tried again, and it still did it. But for
right now, we are doing okay, but I feel like I need to be replacing the good
bacteria. Did that happen to COlin initially? A sort of die off reaction?



[Jen answered] I just responded to this in another e-mail...but here it is again. :)

Die-off in Colin included throwing up (his first experience with probiotics; I
think we gave him too much!), diar., constipation, and light-brown-yeasty
looking stools. You just have to keep experimenting with the amount.

And, it works better on an empty stomach. We give it to him with a little juice
mixed with water. I know a little legal sugar can help get the bacteria to
start eating and doing their job!!!


FOR KIDS WHO HAVE EXTREME SENSITIVITY TO THE PROBIOTIC

Yes, the custom probiotics acidophilus is very high concentration. Jen gave Colin three of the small scoops. The small scoop, if you don't have it, is very very small. Call Harry and ask him to send you one. We had major problems tolerating the probiotics at first, and I also was thinking of Elaine's recommendation for 3 billion. So, here's what I did:

I took one of the large scoops (which is about 1/4 tsp), and blended it in exactly one cup of filtered water. I then gave William 1 tablespoon of that water. So if you do the math, then theoretically, (if you blended it well and the liquid was homogenous) each tablespoon should have about 4 1/2 billion cfu's (4.7 billion to be more exact).

I also took one tablespoon of it, and then I tossed the rest. I know this may seem wasteful for an expensive product, but for us it was the only way, and we had to try very small amounts, and I wanted to be exact, to know how much he was getting. Then, I slowly increased that amount. I began giving it twice a day. Now, we are tolerating it much better, and use a small scoop to measure and don't have to waste any, don't have to measure out the water, etc.

Sonya

USE THE CUSTOM PROBIOTIC ONE

THIS ONE HAS DAIRY,PLEASE BE CAREFUL.

Hi Gretchen,

I e-mail my order to the company. Here are the details:

Lyo-San inc.
500 Aeroparc boulevard P O Box 598
Lachute Quebec Canada J8H 4G4

Telephone : (450) 562 8525
Toll Free : (450) 562 8525 (Montreal)
......... : 1 800 363 3697 (Canada)
Fax...... : (450) 562 1433
E-Mail... : [email protected]
Internet. : www.yogourmet.com

Lots of people get theirs from Lucy's kitchen shop, she's in the U.S.
www.lucyskitchenshop.com
It's a great site with lots of SCD items, including her cookbook.

The Lyo-san acidophilus capsules contain: skim milk powder, lactic acid bacteria (LAB) and a coating of cellulose. (The skim milk powder is digested by the LAB)

Sheila

,



STEAMING THE VEGETABLES


:
Hi Sonya,
When I say steam, I mean I steam my veggies until they are super tender.
(Even when I first started I used to steam the veggies then puree them in
the blender. I used to do that when they were babies.) I bought a little
collapsible steamer from Wal-mart (about $5 Canadian). It is also quicker
than boiling because steam is hotter than boiling water. You could try a
little bit of an already well established vegetable as the next "new
thing".
In other words, just try a well steamed vegetable in tiny amounts,
then wait
a day etc. Also, my kids really prefer the steamed veggies well over
boiled - much tastier. If you steam, the veggies you don't lose all those
wonderful vitamins in the cook water. Can you tell I am a great fan of
steamed veggies? :)
Sheila

>I am struggling a bit with that right now, as I want to steam things and
try
>to rpeserve all the vitamins. I was taught to just "barely" cook a lot of
>vegetables, you know, leave them still slightly crispy, to preserve
vitamins,
>but now I am cooking everything into mush in tons of water. At what point
>should I start lessening the very soft cooked vegetable stage? I
don't want
>to give him anything too indigestible.
>Sonya

Vegetables

I have always thought it was good to eat the veggies just lightly steamed,
very crisp, preserve more nutrients, etc. BUT, in the very beginning,
peeling and cooking them breaks down the cell walls and makes the intestine
able to absorb them.
(Sonya)



vegetables


Hi all. We always peel and boil vegetables really well. In my mind, I always
thought it was better to make sure Colin's stools were regular first. If your
body isn't ready to digest raw or steamed food....then you will continue to
feed the bad bacteria....and may not absorb the vitamins anyways. Once the gut
is more healed, and you can truly break down the vegetables, then you can
abosorb these nutrients.
Colin still can't do raw veggies. Some people on the regular SCD list have had
similar experiences. For Celiacs if you recall from the book--Meat is the
easiest to break down, then fats, then everything else (even the SCD legal
foods). But everyone is different. Each individual damaged gut is just
that--individual. Colin's was especially damaged. I am waiting patiently...
Best,
Jen and Colin






APPLES

Yup, the pectin as an added ingredient is illegal. Pectin, like that which is
found in apple peels, can be used by harmful bacteria. That is one of the
reasons why at the beginning of the diet you should peel, core and cook apples.
When it is concentrated, as when it is an added ingredient, you are getting
a huge hit of pectin (which is a complex sugar) and any remaining "bad
bacteria" will eat it up and say thank you.



CONSTIPATION
PS If constipation lasts more than a few days, try boiled down prune juice and
OJ mixed together. Elaine has the exact amounts..
Jen


HYPERACTIVITY
I just know the power of the gut. If Colin is hyper some days, I just give him
extra acidophilus and/or some natural anti-fungals (cranberry, garlic,
monolaurin, etc.) and he is fine again.





_________________________________________________________________






SUPPLEMENTS
Dear Ann,
So sorry I took so long to reply to your Q. Root canal this week. You asked:
<< Just wondering if you've found any vitamin, mineral, etc supplements that are SC compatible? >>
Yes. A few. I really make an effort to eat as many high nutrient foods as possible so I can minimize supplements. But I feel a few can be so important and helpful.

I love the Freeda vitamins as compared to the many other multiples I have tried. I also take their B and C Stress blend. Thanks, Elaine for the Freeda's !!

I take the plant-based enzymes from Prevail detailed in an e-mail I sent a few minutes ago, the Vitase Digestion Formula. They are effective and gentle.

I take a wonderful calcium supplement from Thorne Research. They have several. I believe the choice of which one is personal as ppl's mineral needs vary in amount so much. I find these excellent and well-absorbed as they are in caps, not pressed.

I take magnesium from Tyler, Magnesium Glycinate Plus. I have found it is the best absorbed and utilized, if a bit pricey.

I take a C-500 Complex Bioflavanoids Rutin from Nature's Life with my meals. The Vitamin C is as Ascorbic Acid. The Lemon BIoflavanoid Complex provides "Hesperidin, Naringenin, Eriocitrin, Flavanols, Flavones and Phenols from Acerola Berry Powder, Hesperidin Bioflavanoid Complex, Rutin Complex." So caution to those who react to natural phenols on this one. Otherwise, they can be helpful. The "other ingredients" listed at bottom are: calcium carbonate, cellulose, silicon dioxide, magnesium stearate, bell pepper, rosehips powder and micro-cellulose coating." I wonder if Elaine has any comments about these "other ingredients".

Finally, I like to keep on hand a bottle of parsley leaf tablets from Nature's Way for when I am too busy to get enough parsley in my diet.
It is so full of minerals and good things, I feel we should eat lots of it all the time, as well as other greens.
I hope this helps. Write if you have any Q's.
Love, Christine.
SUPPLEMENTS * * * * * * * * * * * (* * * *
*DR. E. ZIMMERMAN 20.00% OFF OR IF YOU ORDER OVER $100.00 THERE WILL BE NO SHIPPING COSTS OF THE FREEDA VITAMINS - ORDER FROM:
. 1.800.777.3737. 36 East 41st Street, New York, N.Y. 10017-6203 [ASK FOR THE "SCD compliant ones" AT THE BEGINNING OF THE DIET] GET THE ONE W/O GLAZE, RESINS, OR GUM.
ASK HIM TO SEND YOU A COPY OF THE, "FREEDA VITAMIN PRODUCTS WITHOUT GLAZE OR GUM", TO USE WHEN ORDERING.
WEBSITE: HTTP://WWW.FREEDAVITAMINS.COM/SHOP

Make sure that the ultra Freeda without iron is only one per day. The bottle prescribes 3[from Elaine]
Get the first two:
*#0027 Quin B Strong w/Vitamin C and Zinc cut in half [1/2, one a day] When you order you must specify "SCD compliant"!

*#0281 Freeda Ultra Vitamin w/o iron [one a day] in cold climates in the winter] or when feeling tired, Ultra Freeda has a sensible and well balanced mineral supplement in it as well as A, D, and E.

#0106 Calcium Ascorbat Powder supplement with magnesium, potassium, zinc, manganese, and calcium;
#0061 Vitamin A 5000-10000 IU w/o Vitamin D in the Spring, Summer, and Fall [1 per day];
#0110/3 Vitamin E Liquid [alpha-D-tocopherol] [for the heart 1 every other day];
Folic Acid .4mg-.8mg especially if on medication like Azulfidine [sulfasaliazine], and if pregnant [1 per day], to prevent colon cancer, if you drink, or if not on Azulfidine .1mg a day will be enough;
#0237 Vitamin D3 400 IU, during cold weather areas;
*For dry skin the fat soluble Vitamins A, E, AND D in the cold climates;
TYLENOL
Tylenol (Dr. Zimmerman assured me it's legal) ADWE Pain Relief extra strength, 60 caps. 500 mg.acetaminophen.
*SHIPPED ALL AROUND THE WORLD BY DR. ZIMMERMAN. .
WEBSITE: HTTP://WWW.FREEDAVITAMINS.COM/SHOP

ASK Marilee about MAGNESIUM POWDER
Marilee "Marilee Stauffer" WROTE:
Here is Natural Calm at a good price suggested from the SCD-List:
http://www.coastherbal.com/natural_calm3.htm

Seth WROTE:
Ingredients are: cellulose, stearic acid, and mangesium stearate.
http://www.vitaminshoppe.com/browse/sku_detail.jhtml

These gave been posted from the SCDiet listserve. Loving Care, Gay

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