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Telling
others is very important, but timing and content need to be appropriate
We have developed a template for the production of ID cards which contain
appropriate emergency contact information. Sufferers may become disorientated
or lost, even in well known places, their ID card is their way home. As
a carer, should anything happen to you, the ID card is your way of ensuring
your loved one is not left without appropriate support. These cards can
be produced for you at by Al's Place
For carers, establishing a network of support may prove vital for your
own sanity. For some with close and open relationships with friends and
family this may not be a problem. Others may find this to be a gigantic
hurdle. Al's Cafe provides information and advice to help you arrange
appropriate meetings with family and professional people. The aim is to
make them fully aware of the situation and put in place a support network
to assist you care for your loved one
Cared For people may not want to discuss their condition, especially in
the early stages, preferring to go about their lives pretending that nothing
is wrong and finding excuses to support this. They may not even be aware
that their behaviour is becoming more erratic. Later they will have to
face the fact that things are not right. Encourage them to talk about
it openly and use your empathy and understanding. If you project a relaxed
attitude, remaining interested and casual, they will adopt a similar approach
and become comfortable within themselves. This gives them the confidence
to talk about their condition, sometimes even with strangers. What matters
here is not the words used by the sufferer, but the clues you will be
given, which you may be able to use to improve their world
Sufferers may tend to recount certain memories with alarming regularity.
Recalling the school sports day may be their way of saying "I would
like to go running". Try it, it may be a dead end, or may lead to
a new activity and their world becoming a safer and happier place
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