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Brianna's
Birth Plan
Wish List for Brianna Shannon T---
Induction Scheduled 11/27/00
Brianna has been diagnosed with bilateral renal agenesis,
and is not expected to live very long beyond birth. We may have
only seconds or minutes with her alive, but we may also be blessed
with hours. Whatever we are given, we mean to make the most of
it, and we ask for your help and support in accomplishing that.
Some of the things that we think will help us through this
difficult time are listed below. We know that circumstances beyond
everyone's control may prevent or change some of these things,
but we thought it would help all of us to have this down on paper,
to refer to, in time of indecision or great stress.
This is our wish list:
- We hope to have a vaginal birth, aided by pain relief. C
needs to be alert during and after delivery, to the extent medically
possible. C would very much like an epidural when the time is
right.
- We would like for Brianna to be monitored throughout the
labor and delivery and to be immediately informed if Brianna
is experiencing distress. If there becomes a point in time where
it appears that Brianna could possibly die during labor, due
to her breech presentation or other complication, we want to
have a c-section to get her out and prevent that from happening.
We would want to take the time to properly medicate C so she
does not have any pain during the procedure, but at the same
time, we want to ensure that C is alert throughout it and that
K is by her side. We want C to have as best a physical outcome
as possible, but our primary goal is to ensure that Brianna has
every chance to meet us and that she is protected from unnecessary
pain and suffering. We have come so far in our journey to meet
her and then let her go, that we will want to do whatever we
can to prevent missing out on that chance.
- If Brianna is born alive and conscious, and is interested,
C would like to breastfeed her.
- Since Brianna is expected to be with us for such a short
time, we want every second possible with her in our arms, beginning
from the moment of her birth. Please help us in this by delaying
(or even preventing, if applicable and possible) any procedures
that can be put off until later. (PKU, ointment on her eyes,
Vitamin K shot, etc.) If any procedures must be done, we would
ask that they be done while Brianna is in our arms.
- We would like for mechanical assistance to be used only temporarily
to initiate Brianna's breathing, if necessary, immediately after
birth. We do not want any extraordinary measures taken to maintain
breathing or to initiate a heartbeat. We are prepared to let
Brianna go when her time comes, even if it is at the moment of
her birth.
- We wish for K to be able to baptize Brianna as soon as possible,
during birth, whether she is alive or not. If possible, we would
like this to occur prior to or as the cord is being cut, since
Brianna may die almost immediately. We plan to have holy water
with us for this purpose (we are Catholic), but any water may
be used. If it is not possible for K to baptize Brianna, then
we ask that any one of our attendants do so, making the sign
of the cross on whatever body part is visible, saying, "I
baptize you in the name of the Father, the Son and the Holy Spirit,
Amen." This baptism is very, very important to us.
- Since we have been diagnosed with a genetic disorder, it
is important that cord blood be drawn to be sent out for genetic
testing. We will provide the information needed for sending out
the cord blood. Dr. Rosengren at CT Children's Medical Center
is our genetics doctor.
- We have brought clothing for Brianna that we would like to
dress her in, when the time is right. We have a pink nightgown,
caps, booties, a sweater and even a couple of bibs.
- To help us celebrate and remember this special time with
our daughter, we have thought about mementos and other things
that we would like to do. Here is a list of those things; if
there are others that you think we might want, we would be grateful
for those suggestions.
- Bassinet Card
- Hats
- Baby Blanket
- Photographs (please help us to take pictures)
- Video (after the birth)
- Hand and foot prints
- Hand and foot molds (we have kits with us)
- Lock of hair
- Hospital bracelets
- We want to bathe and dress Brianna at an appropriate time
- Once Brianna has passed on, we will want to keep her with
us for a period of time. We would like space to grieve, but at
the same time, may need your help with notifying relatives and
the funeral home, and in making decisions about next steps. At
this time, we do not plan to have an autopsy performed on Brianna's
body. We do expect that geneticists will examine Brianna, and
if there is a recommendation that there is a specific need for
an autopsy, we will consider it at that time.
- We wish to keep Brianna with us until the funeral home comes
to get her, if possible. We realize that this is dependent upon
time of day and other circumstances, so we will be open and flexible
as to what is appropriate.
- We wish for K to remain with C, overnight and as needed throughout
this time. If a c-section becomes necessary, as listed earlier,
we very much need to be together to the extent possible during
that time as well. We expect that K will stay overnight with
C possibly throughout her hospital stay.
- We do not know at this time at which point we will want to
call family members and have them come to be with us. If Brianna
lives for some period of time, we want to be able to call our
immediate family and have then join us, regardless of time of
day. We have a 20-month-old daughter, M, whom we may want to
have come immediately, with her grandparents. Please help us
with phone calls and getting visitors in at any time, as time
will be of the essence for us, and we do not want to have any
avoidable regrets or missed opportunities.
This is a very difficult time for all of us, including you,
as you work to support us and care for us throughout this part
of our journey. We truly appreciate your help and support, and
ask that you understand if we seem indecisive or even angry at
times. We also appreciate and find great comfort in your expressions
of grief, be it through tears or even through humor, so please
do not hesitate to cry or be sad in front of us, if that is how
you feel.
We have tried our best to prepare for this short time with
our beloved Brianna, and we want to be able to spend as much
time with her as possible. Thank you so much for helping us and
supporting us through this celebration of our daughter's short
but precious and meaningful life.
C and K T---
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