The LPHS Foundation is still mostly unknown to the rest of the world.  But its growing success is also due to the strong support we offer to others suffering from LPHS.  We are considered to be a family - providing help and comfort for a mutual illness that the rest of the world, publicly and medically, is still largely oblivious to. 

Follow the links around the site to find out more about the disease and to contact other members of the foundation for support, information and advice. 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

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Many doctors have a sceptical view of the disease and debate whether or not the disease actually exists.  Convincing the doctors that the pain actually exists can be half the battle to diagnosis of LPHS. 

It is a rare disease which affects the kidney area, which is one of the main reasons it is so often mis-diagnosed.  Once other kidney diseases have been excluded, medical professionals will start to question the severity of your pain and may put your problem down to a simple hematuria disease or infection. 

It is the pain that is questioned because they may believe that someone suffering from LPHS may just be using the pain to recieve strong drugs - which is not the case.

So far, only around 500 people have been diagnosed with LPHS but we believe that there are more due to the difficulty of diagnosis.

Thankfully, LPHS is getting more and more recognition and with the effort of the LPHS Foundation will one day be properly accepted by the medical profession and more research will be put into the illness.