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| The LPHS Foundation was founded
late 1999. A small group of LPHS sufferers got together through LPHS
forums and e-mail. They started a club to hold regular meetings and
called it the LPHS International Foundation. It developed into a
support group for others who suffered from LPHS because there was little
other places to turn.
The founders researched and developed information to help patients and medical professionals understand and come to terms with the condition. Information was passed between the founding members, they collaberated and still do to educate the medical profession further. There is no current significant medical research being conducted. One of the main purposes of the LPHS Foundation, apart from the support and comfort we offer to other sufferers of the condition, is to promote further research of the condition to help diagnose and treat LPHS.
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