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The following are some excerpts made by teenagers and young women who have Endometriosis. These comments were taken from the TeensWithEndo message boards. They reflect the physical and emotional pain that is associated with this dreaded disease.
I am soooooooooo fed up with this!! I just can't take the pain no more!!
Well I am on Spring Break right now and doing all my make up work from the most recent time I was out of school. One month!, (Out of school this year a total of about 85 days though).
What can I do?? Pain meds don't work. Everything hurts. I have no words to say all I'd like to.
I just want to cry and sleep for the next 10 years....maybe there could be some new treatments that would help in 10 years time.
I am 19 years old and have only had one lap done to confirm my endo. None has been removed. I dropped out of high school because I was constantly sick. I could never catch up and was always failing.
My lower back hurts 3 out of 4 weeks each month.
Does anybody wish they could trade their bodies in for a new one? I actually asked my gynecologist one if they did uterus transplants. He said no such luck. Oh well, it was worth a try.
I'm 18 years old. I was diagnosed at 15, so I had my first lap in May of 96. The pain came back worse than ever within 4 months. He was going to do another lap on me but when he went in he found that it was much worse than he first expected and he had to do micro surgery. The endo was so bad when he went in that it had grown on my bladder and colon and also caused my ovaries to fall. But I've gotten used to everyday pain.
Everything you gals have written about how hard it is to wake up in the morning, I have been through big time. It isn't easy to explain to my professors why I miss class so much. I think most of them think I am making up excuses. Of course, all my professors this semester are men and I have been having a particularly hard semester as far as my periods go. So the dull numb pain and gas is sitting in my stomach making it uncomfortable to sit in my chair here at the desk. At least the lower back pain isn't as bad this week as it was last week.
I am graduating in May from college after six years and two schools. I can't wait to get a little bit of a break. I was diagnosed at 14 (I'm now 23). So I deal with the pain, tiredness, and migraines (less than others) on an almost everyday basis. And I am not supposed to complain to my doctors or professors. In high school, everyone thought I was a mental case, being sick all the time or just generally not feeling much like a normal teenager.
I don't think my gyn was prepared to find what he found. I had endo everywhere. My ovaries had adhered to my pelvic wall. Endo was all over my bowel area, especially the cul-de-sac. He removed some of it, but not enough. He didn't promise that he could cure me either. He said I would always have to manage this disease, but he could help me feel better.
I'm only 22 and I don't want to live the rest of my life in pain. I feel better knowing I am not the only one who has problems going to school. Usually my professors are understanding, but some are not. It is always difficult to have to tell them, especially the male ones. I am in my fifth year of college and am 4 credits shy of being a senior. I am also majoring in psychology. It seems like I will never finish. I will start a semester and then not be able to finish it. I am trying to get better this summer and start over in the fall. That is always my plan. Maybe it will work this time.
I have had endometriosis pain since I was twelve...I am now 26 and I have come a long way since then, but my self esteem was hindered as a teen because my doctor told my Mom that I was faking pain for attention. I know what it felt like to go from the honor roll to actually failing a class in less than four months.
I am so severely depressed because I have such high pain for so very long that I just don't want to live anymore. I am not going to hurt myself, I just don't want to live that's all.
My parents had to come to my college and bring me home from school for good because my pain was absolutely unbearable. I had worked so hard to earn the grades I had so far and I was utterly disapointed when I had to give it all up. Since then I have been having pain between 9 and 10 on a scale of ten. I can't move or get off the couch which is a horribly depressing thing for me.
I am at work and I am feeling so terrible! This may sound gross but...my bladder and kidneys feel like they are on fire. I took ibuprofin and prescription pain medication but nothing is working. I have zero energy and life just sucks! I am trying so hard not to cry. I don't want to even try to go home because I miss so much work as it is..I feel like this huge burden to everyone. I don't mean to complain but sometimes it just really gets to me.
I am 19 years old and I had to drop out of school because my endo was so bad I just couldn't keep up with day to day life. I kept failing everything over and over.
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