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Testemonials from people living with |
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I created this site because I live with FMF and after 22 years of seeing every doctor in the city one doctor was able to diagnose me. He took his time and ran every test to make sure that it was not anything else, after one year of not finding anything he deduced by elimination I have FMF. I started on colchicine and it seemed that I was getting better, unfortunately it didn�t last. Now I am 28 years old and am suffering a lot. I have a different attack almost every few days. I live on all kinds of medication and have been in and out of the hospital about 22 times in the last two years. I had doctors ask me if I have any psychological problem because they did not believe I was in pain. Now I am the only person with FMF on an island south of Montreal, Canada and my disease has become chronic and I have no one that can help me. My doctor has been great but now he even knows that I need a miracle to help get out of this. I have been all over the Internet and found a drug called EMBREL and that might be the next step I take to experiment for a kind of cure. This medication is very expensive and unfortunately I am not made of money so the medication might have to wait a while. I also discovered a DR. Daniel Kastner, who was the first genetic researcher to clone the gene that causes the disease. If you would like to also contact him, you can e-mail his assistant Jane Dean |
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[email protected] Webmaster: Life with F.M.F. |
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