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Resources & Links

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Web Sites by E-mail.


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Visit the Acronyms Page


OnLine Resources

TRANSPLANT & FUND RAISING / FINANCIAL AID INFORMATION & SUPPORT
National Marrow Donor Program:
3001 Broadway Street NE, Suite 500
Minneapolis, MN 55413
Phone: 800-627-7692 general; 800-548-1375 donor search info
WebSite: http://www.marrow.org.
Transplant center directory, patient advocate, information on recruiting and becoming a donor.
Children's Organ Transplant Association (COTA)
2501 Cota Dr.
Bloomington, IN 47403
Phone: 800-366-2682
E-Mail: [email protected]
WebSite: http://www.cota.org
Fundraising assistance�
International Bone Marrow Transplant Registry
Medical College of Wisconsin
8701 Watertown Plank Rd
Milwaukee WI 53226
Phone: 414-456-8325
E-Mail: [email protected]
WebSite: http://www.biostat.mcw.edu/IBMTR
Collects & analyzes data on bone marrow and stem cell transplants performed at 300 facilities worldwide. Publications available for patients.�
National Children's Cancer Society
1015 Locust, Suite 1040
St Louis, MO 63101
Phone: 800-5-FAMILY (800-532-6459)
E-Mail: [email protected]
WebSite: http://www.children-cancer.com
Financial aid, fundraising help
National Bone Marrow Transplant Link
29209 Northwestern Hwy., #624
Southfield, MI 48034
Phone: 800-LINK-BMT 800-546-5268
WebSite: http://comnet.org/nbmtlink
Publications, links patients with survivors.�
The Bone Marrow Foundation
981 First Ave., Suite 129
New York, NY 10022
Phone: 212-838-3029
E-Mail:[email protected]
WebSite: http://www.bonemarrow.org
Financial aid for certain transplant-related expenses.
Blood & Marrow Transplant Newsletter:
1985 Spruce Ave.
Highland Park, IL 60035
Phone: 847-831-1913
E-Mail: [email protected]
WebSite: http://www.BMTNews.org.
Publications, attorney referrals for patients with insurance problems, links patients with survivors.
National Transplant Assistance Fund (NTAF)
6 Bryn Mawr Ave.
Bryn Mawr, PA 19010
Phone: 800.642.8399 or 610.527.5056
Fax: 610.527.5210
E-Mail: [email protected]
WebSite: http://www.transplantfund.org
Fundraising assistance and donor awareness material
Organ Transplant Fund
1102 Brookfield, Suite 202
Memphis, TN 38119
Phone: 800-489-3863 or 901-684-1697
E-Mail: [email protected]
WebSite: http://www.otf.org
Fundraising assistance�
My Friends Care Bone Marrow Transplant Fund
148 S. Main St., Suite 101
Mt. Clemens, MI 48043
Phone: 810-783-7390
E-Mail: [email protected]
Fundraising help for Michigan residents
The Jeffery Katz Bone Marrow Transplant
Fund For Children

4560 Fountain Ave.
Los Angeles, CA 90029
Phone: 213-666-6400
E-Mail: [email protected]
WebSite: http://www.katzfund.org
Financial aid for children transplanted at southern California transplant centers
Caitlin Raymond Int'l Registry
University of Massachusetts Medical Center
55 Lake Ave. N.
Worcester, MA 01655
Phone: 800-726-2824 or 508-756-6444
Fax: 508-752-1496
E-Mail: [email protected]
WebSite: http://www.tiac.net/users/crir
Assists with bone marrow and cord blood donor searches.
Nielsen Organ Transplant Foundation
580 W. 8th St.
Jacksonville, FL 32209
Phone: 904-798-8999
E-Mail: [email protected]
Financial aid for some FL residents.
GIFT OF LIFE FOUNDATION
Please visit www.giftoflife.com to read about GOL, est. 1991. The events page publicized 2 of Travis' drives as well. Transplant center search coordinators issue search requests online on our secure server using a user ID and password assigned to seach center.
E-mail: [email protected]
Tel: (800) 9-MARROW
Fax: (800) 707-5343
BMT-TALK (Internet Mailing List)
To subscribe, send an E-Mail message to: [email protected]. Enter the message: Subscribe bmt-talk {first-name} {last-name} (If your name is John Smith, you would enter: Subscribe bmt-talk John Smith) The new list address is: [email protected]. This is where you send all your messages that you want other subscribers to read. If you are having trouble, E-Mail
BMT Support Online
E-Mail: [email protected]
WebSite: http://users.aol.com/kendrabmt/bmtonli.htm
Interactive support CHAT on America Online.

The Brian Zikmund-Fisher Fund for DR Typing @ The HLA Registry Foundation�
This fund, named after Bone Marrow Transplant survivor Brian Zikmund-Fisher, will be used to pay for DR typing on new and existing bone marrow donors. This will help to make the search for a bone marrow donor faster, more effective, and cheaper for patients, who are often quite short on time and, unfortunately, insurance for their search.

Donations may be sent to:
HLA Registry Foundation
70 Grand Avenue
River Edge, NJ 07661
Attn: Brian Zikmund-Fisher Fund

Make checks payable to HLA Registry Foundation and indicate "Brian Zikmund-Fisher Fund" on the memo line. Donations to HLA Registry are tax deductible.

National Childhood Cancer Foundation

440 E. Huntington Drive Suite 300
P.O. Box 60012 Arcadia
CA 91066-6012, U.S.A.
(800) 458-6223
(626) 447-1674 (NCCF)
(626) 447-0064 (CCG)
Fax (626) 447-6359 (NCCF)
(626)445-4334 (CCG)
Offering funding of research into eradicating cancer in children. Check out their site for holiday cards which benefit their efforts.

Click Here to find out about DR Typing and Why It's Important.

CANCER - INFORMATION & SUPPORT

Cancer Information Service
National Cancer Institute (NCI)
Bldg 31, Rm. 10A07
9000 Rockville Pike
Bethesda, MD 20892-2580
Phone: 800-422-6237
E-Mail: [email protected]
Website: http://cancernet.nci.nih.gov
Information on current cancer treatments & clinical trials.
SuperSibs!
1566 W Algonquin Road #224
Hoffman Estates IL 60195
Toll Free: 866-444-SIBS (7427)
Illinois: 847-705-SIBS (7427)
Website: http://supersibs.org
SuperSibs! to honor, support and recognize
brothers and sisters of children with cancer.
American Cancer Society
1599 Clifton Road NE
Atlanta, GA 30329
Phone: 800-227-2345
WebSite: http://www.cancer.org
Publications on treatment and patient care, support groups.
Candlelighters Childhood Cancer Fdn
7910 Woodmont Ave., # 460
Bethesda, MD 20814
Phone: 800-366-2223
E-Mail: [email protected]
WebSite: http://www.Candlelighters.org
Publications, support groups, penpal program.
National Cancer Hot Line
R. A. Bloch Cancer Foundation
4410 Main Street
Kansas City, MO 64111
Phone: 816-932-8453
E-Mail: [email protected]
WebSite: http://www.blochcancer.org
Links patients with survivors for emotional support.
National Cancer Survivors Day Foundation
P.O. Box 682285
Franklin, TN 37068-2285
Phone: 615-794-3006
E-Mail: [email protected]
Coordinates annual celebration of life for cancer survivors, families, friends, and oncology teams.
National Coalition for Cancer Survivorship (NCCS)
1010 Wayne Ave., Suite 505
Silver Spring, MD 20910
Phone: 888-650-9127 or 301-650-8868
Fax: 301-565-9670
WebSite: www.cansearch.org
Publications, referrals, national advocate for rights of cancer patients and survivors
Cancer Care Inc
1180 Ave of the Americas, 2nd Flr
New York, NY 10036-0263
Phone: 800-813-HOPE
E-Mail: [email protected]
WebSite: http://cancercareinc.org
Publications, phone counseling.
Coping, living with Cancer magazine
P.O. Box 682268
Franklin, TN 37068-2268
Phone: 615-790-2400
E-Mail: [email protected]
Magazine for anyone touched by cancer.
Friends Network
PO Box 4545
Santa Barbara, CA 93140
Phone: 805-693-1017
WebSite: http://www.friendsnetwork.org
Activities letter for children living with cancer.�
Children's Hopes & Dreams Foundation
280 Rt. 46
Dover, NJ 07801
Phone: 973-361-7366
E-Mail: [email protected]
Penpal program for children ages 5-17.�

LEUKEMIA, LYMPHOMA, MULTIPLE MYELOMA, MYELODYSPLASIA

INFORMATION & SUPPORT

Leukemia Research Foundation
(For persons within a 100-mile radius of Chicago)
820 Davis St. - Suite 420
Evanston, IL 60201
Phone: 847-424-0600
E-Mail: [email protected]
WebSite: http://leukemia-research.org
Publications, support groups, financial aid.
Children's Leukemia Foundation
29777 Telegraph Road, #1651
Southfield, MI 48034
Phone: 800-825-2536
E-Mail: [email protected]
WebSite: http://www.leukemiamichigan.org/
Publications, referrals to support groups, financial aid (Michigan residents only).
The Leukemia & Lymphoma Society
600 3rd Ave.
New York, NY 10016
Phone: 800-955-4572 or 212-573-8484
WebSite: http://www.leukemia.org
Publications, support groups, financial aid.�
NEW Now offering free to the public
(by calling 1-800-955-4LSA) an updated
version of the publication
"Emotional Aspects of Childhood Leukemia."
Click Here for the Press Release on this publication.
Team In Training
The Leukemia & Lymphoma Society Inc.
1311 Mamaroneck Ave.
White Plains, NY 10605
Phone: (914) 949-5213
Fax: (914) 949-6691
Website: http://www.teamintraining.org
Team In Training� is the largest endurance training program in the United States. We provide you with the coaching, training and even the travel opportunities to make your athletic goals a reality. It's an unbeatable offer with great personal rewards.
What's the deal? In exchange for the training and support, you raise money towards a cure for leukemia - the number one disease-killer of children under 15, and lymphoma, the leading killer of men and women under 35. Join the more than 30,000 runners, walkers and cyclists who will participate in the world's major marathons and centuries this year on behalf of The Leukemia & Lymphoma Society. Team In Training has raised millions of dollars toward finding cures for leukemia, lymphoma, Hodgkin's disease and myeloma.
International Myeloma Foundation
2129 Stanley Hills Dr.
Los Angeles, CA 90046
Phone: 800-452-2873 or 213-654-3023
E-Mail: [email protected]
WebSite: http://www.myeloma.org
Publications, hotline, patient support network.

Please Submit Any Other Sites to us. E-mail webmaster




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