| try visiting our support message board and share your experiences and support with others Patient Support and Networks Support from other sufferers who have the same disease and/or condtion that you do is essential; that I found it helpful is an understatement. When I was 1st hit with having 'heart problems' at the age of 19 I felt very alone. I didn't think people my age got 'heart disease'. When I contacted local Heart Support Groups attached to my local hospital they replied by saying "we organise cardiac rehab programmes for those who have had heart attacks - we don't think its quite your thing". I still think that if you are able to find people locally to meet up with that is a wonderful resource to have. There is nothing quite like being able to ring someone for a chat when things are getting you down or you have a procedure coming up and you are looking for someone who has 'been there and done that'. I think not 'fitting' anywhere with local groups and needing to understand what had just happened to me during my 1st Cardiac EP (electrophysiology) Study 8 years ago made me reach out on the net. I have never looked back. Heart Support Group and Message Boards Sites (for patients) Our message board community - click the banner to go there WebMD Member Communities This site has an info search facility as well as a Heart Disease and Heart Devices Support Group Communities. These boards are led by a Cardiac Nurse Specialist. Heart Disease Message Board with Dr Rich Fogoros at About.Com At this site you can ask questions directly to a Cardiologist / Electrophysiologist as well as share experiences with other heart patients. Heart Forum - Cleveland Clinic Heart Centre At this site you can ask questions directly to Cardiologists and talk to other heart patients. - although the number of new questions they accept on the board is very limited. |
| If you have any links you would like to see here on IST or related conditions; then please send them to me via email. I cannot guarantee all submissions will be posted, some may be editied if necessary. |
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| The content of this page was last modified at 12:56 GMT+1 Thursday 22nd November 2007 |
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