On May 26, 1999 a beautiful, baby boy was brought into this world. Like most HLHS babies, Josh looked completely normal weighing 6 pounds and 7 ounces. Josh was diagnosed with HLHS two months before birth. I had never heard of this serious heart condition ever before. However, after Josh was diagnosed with HLHS, my knowledge of it grew rapidly thanks to the World Wide Web, mostly information sites like the Children's Hospital Boston website.

Upon delivery, Josh was flown to Kosair Children's Hospital in Louisville, KY. Dr. Austin was his cardiovascular surgeon. Two days after birth, Josh underwent a very long 22-hour Norwood procedure. The procedure was so long because too small of a shunt was put in the first time, and the surgery was pretty much performed twice. The second time a larger shunt was put in. Dr. Austin informed us that Josh's Norwood was the longest one he ever performed. He told us that he just couldn't quit because his little heart was so strong. Thank God he didn't because his little heart is still going strong at 10 years old!!!

            

Josh was finally released from the hospital at 2 months and 2 days old. The only problem that he had was being diagnosed with Wolfe-Parkinson-White Syndrome. We made 3 trips to the emergency room because Josh's heart rate approached dangerous levels. However, Josh has underwent the surgery, radio frequency catheter ablation, to destroy the abnormal pathway caused by WPW Syndrome. The surgery went very well.

Edit video online at onetruemedia.com

To request a song for your seriously ill child like the one featured in Josh's video please visit Songs of Love.

UPDATES ON JOSH!!!

More Pictures!!!

Mommy, Josh, and Kayla!!!

One Year Old!!!

I'M MAD!!!

Celebrating July 4!!!

Say Cheese!!!

Happy Easter!!!

SHHHHHHH!!!

Sitting Still!!!


I love my Daddy!!!

I LOVE CAREBEARS!!!

Florida!!!

Cowboy Up!!!

Kindergarden 2004!!!



Christmas 2004!!!

St. Louis Zoo!!!

The Spencer Family!!!

Josh on Easter 2006!!!

Josh showing of his SpongeBob boxers!!!

Josh and Kobe, 7 months, HLHS!!!

Josh and Ben, 5, TOF!!!

My 3 "babies"!!!

JOSH'S 9TH BIRTHDAY!!!

JOSH'S 10TH BIRTHDAY!!!

WITH JESUS THERE IS ALWAYS HOPE!!!

Quick Links

Heart	Related Websites	Designer Information
Left Heart Matters	Amy	Education
WPW Syndrome	David	E-mail
Kosair Children's Hospital	Ryan	Employed By

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