CF Family
Page
Also visit: CF FRIENDS KIDS' PAGE CF RESOURCES
Are you or is someone you know a CF patient of UNC Hospitals? We would love to help you in any way we can. Please consider filling out a buddy application so we can get to know you and your situation better.
Each fall the CF Friends sponsor Cystic
Fibrosis Family Day, a meaningful conference for patients of cystic fibrosis,
their friends and families. The one-day event, held at Camp New Hope
outside of Chapel Hill, provides an annual forum for discussion among
knowledgeable medical experts and families that have been affected by the
disease. While parents learn about the latest CF research and share
their concerns, the children enjoy spending time with each other, playing
games, and participating in several outdoor recreational activities.
The Starbright
Foundation is dedicated to the development of projects that
empower seriously ill children to combat the medical and emotional challenges
they face on a daily basis. STARBRIGHT projects do more than educate or
entertain: they address the core issues that accompany illness – the
pain, fear, loneliness, and depression that can be as damaging as the sickness
itself.
http://www.starbright.org
Join the Dreamsurfer
Network!
Participants must be 12-18 years of age with a life-threatening
illness. The Dreamsurfer Network is a secure, counselor supervised
internet support program for teenage patients. Meet new people without
leaving the house, talk with others facing the same issues, and have fun
learning to master multi-player games.
http://www.dreamsurfer.org
Cystic-L is the leading cystic fibrosis email / discussion group on the web: http://www.cystic-L.org