Learn More about Cystic
Fibrosis:
ORGAN DONATION AND TRANSPLANTATION ORGANIZATIONS
PULMONARY AND GENERAL MEDICINE RESOURCES
VESTIBULAR DISORDERS SOURCES (INNER EAR AND BALANCE)
The Cystic Fibrosis Pumonary Treatment and Research website provides information on cystic fibrosis treatment and clinical research at UNC. Find out about many promising treatments that are being developed right now in Chapel Hill, as well as information concerning members of UNC's pediatric pulmonary team.
http://www.med.unc.edu/wrkunits/3ctrpgm/cystfib/CFcent.htm
The UNC Pediatric Pulmonary Clinic website provides information about personnel and services of the UNC Cystic Fibrosis Center: http://pediatrics.med.unc.edu/div_pulm
Everything you need to know about CF: This website was created by a woman with cystic fibrosis to educate people about the disease. There are over 650 links concerning specific CF-related issues like common problems, new treatments, and other very helpful advice. This is definitely worth looking over if you want more practical information about cystic fibrosis. http://www3.nb.sympatico.ca/normap/CF.htm
Cystic Fibrosis Online: http://www.cysticfibrosis.com
CF Care: http://www.cfcare.com
Cystic Fibrosis Foundation: http://www.cff.org
National Cystic Fibrosis Awareness: http://www.ncfac.org
Pharmacy for all CF medication needs, CF Services: http://www.cfservicespharmacy.com
Cystic Fibrosis Research, Inc.: http://www.cfri.org
Boomer Esiason Foundation, seeks to raise money for research and promote public awareness of cystic fibrosis: http://www.esiason.org
HHCS Health Group, Florida CF Pharmacy for all CF meds: http://www.hhcs.com
Action without Borders: http://www.idealist.org/cysticfibrosis
International Assoc. of Cystic Fibrosis Adults: http://www.ourworld.compuserve.com/homepages/fantogini/iacfa.htm
Reaching out Foundation, enhancing life for families affected by CF: http://www.angelfire.com/ga/reachingout/index.html
American Diabetes Association (ADA): http://www.diabetes.org/default.html
Joslin Diabetes Center: http://joslin.harvard.edu
Juvenile Diabetes (International) Foundation: http://www.jdfcure.org
American Dietetic Association (ADA): http://www.dce.org http://www.eatright.org
Barbara Anne DeBoer Foundation, helps people obtain the resources necessary for procedures and transplants: http://www.deboerfoundation.org
Genentech, Inc., manufacturers of Pulmozyme, has an Endowment Program for CF: http://gene.com
Organ Transplant Fund, Inc. Provides health care services, financial assistance, and advocacy programs to transplant candidates, recipients, and their families nationwide: http://www.otf.org
Pharmaceutical Research and Manufacturers of America, publishes "The 1998 Directory of Prescription Drug Patient Assistant Programs." http://www.phrma.org/patients
Scandipharm "Comprehensive Care Program for CF": http://www.scandipharm.com
National Transplant Assistance Fund (NTAF) provides vital transplant and organ donor information, financial assistance, fundraising advice and trusteeship: http://www.transplantfund.org
Disabilities Rights Education and Defense Fund (DREDF): http://www.dredf.org
U.S. Equal Employment Opportunity Commission (EEOC): http://www.eeoc.gov
ORGAN DONATION AND TRANSPLANTATION ORGANIZATIONS
New England Organ Bank: http://www.ultranet.com/~neob
Second Wind Lung Transplant Association, Inc. Dedicated to support and education of lung transplant candidates, recipients, friends, family, and public regarding the need for donation and the benefits of transplantation. http://www.2ndwind.org
TransWeb, all about transplantation and donation: http://www.transweb.org
United Network for Organ Sharing, to improve the effectiveness of organ donation, procurement, distribution and transplantation. http://www.unos.org
PULMONARY AND GENERAL MEDICINE RESOURCES
American Association for Respiratory Care: http://www.aarc.org
American Lung Association National Office: http://lungusa.org
Beginner's Guide to Pulmonary Function Tests: http://www.meddean.luc.edu/develop/pulmfunc/images/main.htm
National Jewish Center for Immunology & Respiratory Medicine: http://www.njc.org
MEDLINE via Pubmed and the National Library of Medicine (Search MEDLINE free under "HOT TOPICS.") http://www.nlm.nih.gov
Conncoll Support List, a website and bulletin board: http://cf.conncoll.edu
PathoGenesis Corp. Information on TOBI. http://www.pathogenesis.com
The Well Spouse Foundation provides support and information to the well spouses of the chronically ill, and educates human services professionals and the public about the needs of spousal caregivers and families. http://www.wellspouse.org
The National Association of Hospital Hospitality Houses, Inc.: http://www.visit-usa.com/hhh/index.htm
Access-Able Travel Source provides free information to travelers with disabilities - accommodations, transportation, public and private, and travel resources (tours and access guides) for many locations worldwide: http://www.access-able.com
Oxygen for Travel - Breathin' Easy, offers "A Guide for Travelers with Pulmonary Disabilities," includes 3,000 listings for oxygen refill sites in over 1,700 cities in all 50 states: http://www.oxygen4travel.com
Doctor Directory, database of approximately 500,000 doctors in the U.S., can be searched by name: http://www.doctordirectory.com
Hospital Directory, database of over 10,000 hospitals can be searched by state, city, or zip code: http://www.hospitaldirectory.com
VESTIBULAR DISORDERS SOURCES (INNER EAR AND BALANCE)
Vestibular Disorders Association (VEDA): http://www.vestibular.org
Wobblers Anonymous, an international support network of people who have lost vestibular function: http://www.wobblers.com