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DONNA's life cont. |
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| Once the next surgry was set, my parents was up in the waiting room again passing and waiting. This time no doctor came in to talk to them. My Mommy went to the P.I.C.U. floor to ask them if they have hear if my surgery was finished and was I ok.. The lady she talked to said I was fine and have been in my room for about five minutes now. So my mommy went out to get my daddy and sister. They came in my room to sit with me for a while. Finally, the surgen came in to talk to them and said they was very pleased how this surgery went. they was able to fix my intestines and put in the g-button. I was on the breathing machine once again but for about 12 hours or so and I was weened off again and then put back on TCU's floor. I was doing well. Once my medications stopped going up and down, the hospital wanted to send me to a rehab center for awhile untill my next heart surgery.The rehab center is Called Rankin Jordan. My first night there, they wanted to send me back because I had a high fever.They called my doctors at Cardinal Glennon and then decided to give me some anti-biotics and my fever was gone. The next couple of weeks I was doing fine. On December 3rd Rankin told my mom that I had a cold but I was fine.On December 5th Rankin called my mommy and told her she had to go to the emergency room at Cardinal Glennon because they was sending me there. My cold got worst. I was fighting to breath, sneezing, and alot of coughing.My oxygen level was dropping also so they put me on oxygen and I was on my way to the hospital. My mommy and daddy got there right after I did.A lot of tests was being done on me to figure out why I was was having troubles. My tests results came back and I was RSV possitive which means my cold has turned into a virus and I need alot of breathing suport and supervision. I was then admitted back into Cardinal Glennon.I was put back on the TCU floor and Ihave a c_pap in my nose and if I can't keep my oxygen level up and fevers down, my virus may turn into namonia and I will have to be put back on the breathing machine or oxygen tent. Please pray for me to beable to go home with my mommy and family. I still need another heart surgery but we don't know yet when that will be. They can't do any heart tests or surgeries untill this virus goes away and hope that this doesn't cause anything else to go bad for me. On December 7th I'll be 6 months old and don't know what my own bed or room looks like.  I just know my mommy mainley and a few family members. Please visit this web page again for any updates we may have on me.; Feel free to email me at [email protected] and pray for my family as this has been hard on everyone that knows me and loves me. |
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Today is December 11th, 2003. My mommy and Daddy came to visit me but I couldn't see them since the doctors are making me stay asleep with medication.The doctors told my mommy I am chemically parallized and will be untill this virus I got from a common cold in the rehab center I was in for a few weeks.On the 9th right before my parents came to visit me, one of my lungs calasped. There is too much mucus buliding up and made my lung close and stick together. While my parents where up here, the had to take me off of the breathing machine I was on and put me on another kind that keeps my lungs full of oxygen.It is a noisy machine but it seems to be helping me. The doctors told my mommy on the 11th that I am doing better than they thought so far. They said for them to keep praying and be paitent. They haven't lost a child to RSV and they don't plan on it now. On December 24th,my mommy called to see how i was doing and the nurse told her that they did a test and i was now rsv negative. She was so happy. I was on the road to getting better.
Around the middle of January my mommy was told i had to have surgery on my stomach because it was swullen bad and hot. So they did surgery on me and found out i had a hole in my intestine due to the feeding tub rubbing through it. No one knew it untill it got infected. They was able to sew the hole up and save my intestine. The next day they had to open me up again to clean the area they did surgery one so it wouldn't get reinfected. So in two days i had two intestinal surgeries but i did well through them. Then the last friday of Jaunary they tried to take the breathing tube out of my mouth and couldn't. |
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On February 6th I had a cardio-cath done on me to see why I couldn't get the breathing machine out of my mouth. The test showed that the band that was put in my heart to close a big hole was too tight now. Since the band got too tight my puliminary arteries got swallen. The doctors think this was why i couldn't be taken off the ventalator two weeks ago. On that following monday they put a microscopic camera down my throat through the vent tube and saw that the test on friday was right. the puliminary arteies was pushing up against my left airway tube which was causeing my left lung to calaspe while i was very sick with the rsv. On the 11 i was supose to go in to have the openheart surgery but it was postboned untill the next day due to a little boy having a heart transplant. So finally on thursday at 7:30 in the morning I was taken down to surgery to have the band cut out and my heart repaired. I got out of heart surgery about 2:30 in the afternoon. The doctor was happy with the results with the surgery and thinks this may be the last one i need. but we won't know for sure untill i am older. I am back in picu recovering now. once my heart's swelling goes down they are going to try to take the vent out of my mouth so i can make noise again. Hopefully I will beable to come home with my mommy and sleep in my own room and my own bed and use my own things. I hope to get to finally meet some of my family that couldn't come up the the hospital to see me. Please pray for me that i can go home. Being in the hospital for over 8 months is 8 months too long my mommy says. |
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Donna page 3 |
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Donna's prayers |
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Pictures |
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