Jennifer Bailey
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Oct. 14th, 2005 Great news. Today Jenn had more tests. The Cancer was not found in the BONE MARROW: That means, now the doctors need to work on shrinking the tumor, And remove it. Jenn send her love. Would like to thank the, Field Hockey Team and Red Lion School. Jenn Saw the News Last Night. Mrs. Bailey said, "It brought tear to Jenn's eyes. As well as hers". Jenn is still, running a fever. The doctors think it's from the Med. Port, They put in. Mrs. Bailey Said it's because it itches, and Jenn keeps on starching at it. So All I can say is. (Jenn don't make me come up there with the boxing gloves). I'll duct tape them on you. Then you won't be able to scratch. Oct.15, 2005 Jenn is doing Good. It looks like Jenn could be home, on Monday. It will only be for a short time. But like Mrs. Bailey said."Even 3 day would be good". We started Demo; for the bath room. But we hit a snag. I need to find a new plumber. We'll get it done... Oct. 16, 2005 Jenn is in good sprits. She is looking forward in coming home for a few, days. (NOTE) on Oct. the 20th. Jenn's social worker and nurse will at the school, To have a talk about Neureoblastoma.) Mrs. Bailey invites you all to come. Oct. 20th, 2005 Sorry I haven't up-dated. Jenn is home. Today, there will be an informational gathering at the school. About Neureoblastoma. If Jenn is feeling up to it, she and her mom will attend. Jenn is in good sprits. And her first night home it was reported that she slept likes a log. Jenn has lost a lot of her hair, but is handling it like a trooper. When I visited on Wed. I couldn't help but laugh at her, when She excused her self, to step out side, to shake out her hat, and Rub her head. On Monday, Jenn will be help shave Tibiae's head at Hollywood Video. Tobie Stated, that she would shave her head in support of Jenn. If the video store raised 2500.00 for Jenn's Fund. Hopefully well will have pictures posted by Tuesday or Wednesday. Keep checking back. And check up coming events Nov, 6, 2005 Jenn is still running a fever, and has a very low blood count. The doctors started a blood transfusion in hopes this will help. Jenn's sprits are up as best as they can be. Oct.24, 2005 Monday; Jenn is ready. Tomorrow, She is leaving; it's time for the next round of Chemo: And she still fighting off an infection. And is doing as well as can be expected. As some, if not all, have noticed. Jenn has lost most of her hair. Yes she may look funny. But she is still the same old Jenn. And She thinks it looks COOL. (Her words not mine) Allot has happen in the last few days. Contractors have come to the house. They are preparing for the remodel of the back room. (Bathroom) The Field Hockey team had a bake sale. The football Boosters had a sprit bead sale. The Legion is getting ready for a Basket Bingo There is a Hat sale in the works. Y.A. Varsity is donating to Jenn's Fund. Hollywood Video still has out their collection cans. Thank You ALL. Oct. 30, 2005 Good morning to all. Jenn is feeling better. Last night she found the will to eat a baked potato. On Monday the materials will arrive for the bathroom. And sorry to say, as it stands now. Jenn won't be able to be home for the parade. But between Bev Tammy G. and myself we will be at the parade for Jenn. And the Friends of Jenn Will are selling beads. 4 for 1.00 So and one wanting to help. (Meet at the Red Lion High School. At the Dairy Queen Car. And Look For Tobie from Hollywood Video. And Well get everyone set up. Dress warm) And like always keeping Praying for Jenn and the Family. Nov.2, 2005 I spent a good part of the day with Jenn, and her mom. Jenn is still dealing with vomiting. When I asked her how she was doing. Jenn said, Not my best but at my worst either. Jenn is weak, and has to stay sitting for the most part. I got her computer up and running for her. And now has the Internet, at home. Now don't for get. Friday night. Red Lion, Dallastown Game. The Friends of Jenn, along with Mrs. Godfrey will be selling Spirit beads. Nov.1, 2005 It's late. The Parade was Great. Thanks the Friends of Jenn truck were a hit. You all did an out standing Job. Thanks to you. We sold 2880 beads. Your total was 727.00 for the night. You guy Rock. I will be listing everyone's name later in the week. Jenn is having a sick day today. Her scents are playing tricks on her. She really wanted Chinese food tonight. But one looks and sniff and she lost it. But this is all part of the Chemo. Hang in there Jenn. Oct. 31, 2005 As of 4:30 PM Jenn is on her way home. She won't be at the parade, So everyone should send E-mail and tell her about it. Nov.5, 2005 This morning Jenn is back in Hershey. Jenn is running a fever and the doctors are running test to find out Why. Jenn's mom will keep me informed. And I will up date this page. Last night at the football game. The bead sale went great. Another 4 Boxes sold. Thanks for all the helpers. And Jenn loved the notes. Nov, 6, 2005 Jenn is still running a fever, and has a very low blood count. The doctors started a blood transfusion in hopes this will help. Jenn's sprits are up as best as they can be. Nov. 10, 2005 Jenn is doing better. She did the stem cell recovery. They collected 4 Million Cells for Freezing, but today she is wiped out. Jenn's mom as of this afternoon thought they might give her a blood transfusion. And hopefully she would be home by Friday or Sat. That will be a nice break for Jenn. She goes back on the 15th for the next round of Chemo. Nov.13, 2005 Well I stop in to see The Bailey's yesterday. Either Jenn is feeling better or she just took a pain pill She was picking on her father. It was nice to see Jenn carry on. The J.R. High school had a basketball tournament this weekend. Nov. 15,2005 Hi everyone. Jenn is back at Hershey for round 3. And this time Jenn didn't want to go. She knows what she's in for. But with the help from her family and friends and your prayers Jenn will do fine. Jenn's doctors are very hopeful with Jenn's progress. In Dec. they will do another set If imaging before that round of Chemo. And With any luck Jenn Will is ready for surgery. So if you plan on visiting. If you are sick or you have someone in your family that is sick. Please! Please! You must stay away. Jenn can not afford and kind of illness. And after, each round of Chemo. It is very important to remember that Jenn's blood count drops. And infection for her could be devastating. So we can all do is part and play it safe, for Jenn. E-mail her. Call the house. Before you drop in. And if the sign is out don't be offend. It just means Jenn is having trouble, and needs a little extra rest. Well all care for Jenn. Thanks for checking in. I will also post an up date down, at Hollywood video. Thanks again..... Just another Note::: We have a plumber..... Thank You. Things are starting to take shape, and the rooms are getting done. Thanks to every one... Nov. 18th 2005 I spoke to Jenn's mom last night. She was feeling the effects of the chemo yesterday. But is doing good. And she is keeping her, spirits up. Jenn is looking forward to the Holiday, at home, with family and friends. There is one thing I'd like to bring up. I couldn't help in hear the stress in Mrs. B voice. We were talking about this bathroom. So many people have helped with donation. And the rough remodel of this room. But work has stopped. We can't find a plumber that will come in a do the work. We will be paying for all work, using the donation collated. I find it hard to believe that ALL the plumbers in York are Hunters. It just blows us away. And it's not like we just started to look. This has been going on for 2 + weeks. One day, one will take the job. Then cancels it the next. And it's mostly coming down to Hunting. And we have offered to help in the work. I have two men that can swing a hammer to bust threw a wall. And to be honest. We would be happy with just a toilet set up for now. Oh Well Mrs. B and I will wait and see what happen. Mrs. B and I have learned to "Let go and Let God" And the work will get done. Thanks for listening. FYI> Blood drive Dec.4th 2005 1-4 Red Lion High School. 32 to People need to sign up in order to confirm the van from Hershey. Call 246-8950 or 683-7242 for info. Nov. 24, 2005 Just a short note. From Jenn and Family: Thank you for all your prayers. My your Thanksgiving, be blessed with family and friends. And may your bellys be filled with Good food. Nov. 22, 2005 Hi ever one. Jenn was delayed a day in coming home. On Saturday.This rounds of Chemo, the doctor's use a different type of drugs and they made Jenn feel sick on the stomach more than the last 2 times. But when Jenn and her mom got home, on Sunday the house was in good shape. Jenn's room was put back together. And the Bathroom has a new floor in it. Up-Date on the Blood Drive we have the Red Cross van coming. But we would like to have as many people come out give. It is the Holiday, and A lot of people will benefit from your gift. Maybe even you. So come out give the gift of life. If anything it will make you feel good inside. Thanks I'll do my best to keep you up-dated. Tobie. Nov.23, 2005 Jen was re-admitted to Hershey Hosp. On Friday Night, Saturday Morning. Jenn's blood Pressure dropped. Jenn Fainted in the hallway of her home. Jenn's mom called the Red lion Ambulance that took Jenn to York Hosp. And then was transferred back to Hershey. Jenn is doing well. At this time. I have not spoken to Mr. or Mrs. Bailey: But I look at it this way. No news is good news. And Jenn is with the doctors that known her best. So keep the prayers going. Have a Good Thanksgiving. Nov.27, 2005 On Nov.24th Jenn Had received 4 units of blood, and is doing much better. After a brief scare with the anitboctis, and Redman's Syndrome. Jenn has got her appetite back. I believe A1stake sauce and Chips was her first request. And Food from the vending machines. The Doctors and Nurses said, " If you can keep it down, Go for it." On The 29th Jenn is schedule for a new set of Imaging. At that point, we will be able it see what the tumor is doing. On Dec 6th is the Next round of Chemo (4 days.) The Bailey Family is hoping to be at the Blood Replacement Drive to see everyone. So don't forget, 1-4 Sunday The 4th of Dec. Nov.29th 2005 Jenn is doing well. Her blood count is still down, but is on the rise. The Plumber, Mike Has arrived. Thank you lord. And he�s not bad looking either. I spoke Mrs. B. Today. Jenn is coming home tonight. And this is a good thing. Now I�d Like to Remind everyone if you are sick or have someone in your home sick. Please keep your distant. Also Keep the card, notes, and E-mail�s coming. Jenn Is going back on Dec. 6th For the Next round of Chemo. Happy December! Dec.1st 2005 Jenn is home and happy to be! Jenn is still weak but doing well. Today a recliner was delivered from Wolf's. Jenn couldn't wait to get her skinny butt in. (She is too funny) Mrs. B was very happy with the Plumber and his progress. Mrs. B was also happy to be home. Even though it will only be for a short time. Jenn's Grandparents Have come up from Fl. (I think they missed the weather) Jenn would like to make an appearance at the Blood Drive on Sunday. But has orders from, Higher up if she is feeling, Weak or Tired she is staying home. That's about all that I have for Now. Except it was nice to see her again. Tobie- please pass this on. Thank you--Michelle Sunday Dec.4th. 2005 The Blood drive was a success. Thank You Tracy Young. Jenn And her Parents were at the blood drive. A few people stop and took the time to share a few moments with her. Thank you. Jen is doing good, and is preparing for the next round of Chemo. Jenn is keeping her spirits up as best as she can. Jen is enjoying the recliner from Wolf's. Jen calls it the Healing Chair. Please keep jenn in your heart over Christmas. This next round of chemo is going to be a long hall. But we hope she gets home for Christmas. Dec. 5th 2005 Blood count is good. Jenn is all set for the next round of Chemo. Dec.6th Well today Jenn went to Hershey. They were unable to find the girl a bed. So the next round of Chemo was delayed. No problem. But while they were there, Jenn had the Imaging done. Michelle called me, to say the tumor is now half the size, than when she was first diagnosed. This is great news. So as of today Jenn is back home and is awaiting a call from Hershey. (Up-Date on Family) Grandparents are up from FL. And are trying to keep warm. Dad is tired. (Works to Hard) Brother is waiting to sit in new Recliner. And The Best. Mom broke her Pinkie toe. LOL LOL In a whole everyone is doing fine. Dec. 14th Sorry I haven't up dated the web page lately. On the 7th Jenn was admitted. They and did the body scan. The Tumor is half the size from when it was first found. On the 9th Jenn and her Mom were hopeful to come home. But Jenn was feeling very ill from the chemo. On the 12th Jenn was running a fever and was receiving a blood transfusion. It is the option of this webmaster that Jenn is doing well. And should not rush coming home. With all the colds and flu running around. Hershey is the best place for her for now. I do look for Jenn and the whole family to be home for Christmas. Up-Date on the Bath room: Bob is working hard on finishing up. The wall needs another coat of spacle. Then they should be ready for Paint. Mike is doing his best on the plumbing. He was back on Tuesday. No matter what, the toilet will be in place and working before Jenn gets home. I pray. Jenn's BedRoom is moving along. The bed is on its way. Dec.17th 2005 Jenn came home on Wednesday: She is feeling good. Jenn stills has to take it easy she gets tired easily and tried to do too much. But this time around Jenn won't have to worry about going up stairs if she is feeling ill. The bathroom is a functional room. The Toilet Flushes and the Water Runs. The shower is set for the Girl. There is some work to do. Like the Drop ceiling and the sanding of the walls. Then the paint and curtains can be put in place. Wednesday was a very busy day for Mike and Bob. But they got it done. Thank you guys you Rock! And thanks to all the Help from the Funds that were collected. Every one and everything is paid for. I personally feel one of my Christmas wishes have been filled. Jenn's Bed came on the same day Bev And I worked all day getting the girls room set up for her. But at Jenn and her Mom's request left a lot of the odds and end for them to do. Now Jenn can have the girls over and they will have a bed to sleep on also. So girls give her a call ask about the bed. It's is just to cool. Jenn said the mattress was to firm. I told Jenn, to have a sleep over and she and her friends need to jump from one bed to the other to soften it up. Dec. 19th 2005 hello- We had a little bit of another scare on Monday. The visiting nurse showed up at 7:30am to do blood draws for Hershey. Neither of Jenn's two lumans would give a blood return, that is not so big of a deal-just a pain in the butt because it means Jenn would have to be stuck for a blood sample. That nurse tried for almost 30 minutes but could not get a vein to pop up. Then she decided to check Jenn's vitals, just to give both her and Jenn a break. Jenn had a fever of 102. I, meanwhile, am at the doctors with my girlfriend Tobie. My foot has been hurting so badly,, I thought it might be a good idea to get it checked. Scott calls my cell to tell me Hershey wants Jenn there now. Great!!! The doc tells me, yes my toe is broke. No, there is nothing we can do. Now-Tobie takes me home, and I pack as fast as I can. I also call my dad, who is home from Mexico, and he says he can take us to the hospital. Jenn's fever rose to 104 with Tylenol. Tuesday morning it broke. The doctors at Hershey gave Jenn two units of blood, and one unit of platelets. We got home today(Wednesday) and are so happy!!! Thank you all for your continued prayers--Merry Christmas, Michelle Dec. 21st 2005 Jenn is Home today. Merry Christmas. And for today All is Good in Her world. Dec. 24th 2005 Jenn is ready for Christmas; She is feel good. And very happy to be home. Check out the Christmas card from the Baileys. Link on front page. Dec. 26th 2005 Today Jenn recieved a call from Hershey; Jenn's blood count is to low for the surgery. And this means that all procedures are pushed back by at lest a week. It's frustrating for Jenn and her mom, but they are keeping busy with house work. And Jenn is working on her home work... So They will be home for another week or so. May be we'll see Jenn on New Years Eve in Red Lion.... Dec.29th 2005 Dr. Ungar's nurse called me today: new plan visiting nurse on Monday to draw labs-pray the lumen works surgery Tues. Jan3 to replace broviac-pray counts are good chemo will start that night as long as she is doing fine-she will be getting cisplatin and she hates this drug Cat Scan , on Jan 25, surgeons will meet with us to talk about the big "coming out" party(tumor removal) REMOVAL on Feb 2 as long as all is well God is great, He is to be praised. Jan 1st 2006 Happy New Year!!!!!!!!!!!!!!!!!!!!!!!!! Jenn spent a quite night at home with her mom. While the boys went out. Jan.3rd 2006 Well we have another delay. Jenn's blood count is still to low. So Jenn will be at home for another week. So feel free drop her a line or give her a call.. Thanks Jan. 8th 2006 Sorry Guys. But the web master has been sick her self. But I'm back.. Well Jenn is doing very well. Jenn and the Family went to the Wrestling Meet. and to A Basketball Game. Sunday the Tech. will be drawing blood, and with some luck Jenn will be going back to Hershey for the next round of treatment. On Monday I will update as soon as I get word from Mrs. B... Jan 9th 2006 Jenn is back a Hershey. This Morning The Doctors Removed the Broviac. And did a bone marrow test. Jenn was a good bit of pain. But is handling it well. Later on Tuesday Hopfully they will have the bone marrow report. Jenn is going to have the next round of Chemo. And this is one of the rounds that Jenn hates. The drugs are diffrent and real make her sick and moody. Keep praying for the family and Jenn. She has a strong spirt and will. But even the strong can always use a pray now and then... Jan.15th 2006 Sorry we haven't up dated lately. On Saturday the doctors received the results on the bone marrow test. And everything looks good. The Surgery will be set for February. This round of went well. Jenn is feeling the nausea of the chemo. And until she can keep some food down she will, has to stay. Her blood counts are good, But it take a few days after the Chemo for them to drop out on her. Now it's going to be a wait and see game until the next round. Keep praying and hoping. Jenn and her family thank you all for your hopes and wish. Jan19th 2006 I would give you the official report from the doc's at Hershey!! During Jenn's stay, she developed lightheartedness when she stood or during prolonged activity. An EKG showed a long QT and she will be evaluated in the Cardiac clinic. Follow-up: blood counts at home 1/19 CT scan on 2/1 followed immediately by a pediatric surgery clinic appointment. Surgery date for tumor resection set for 2/9, dependent on blood count recovery. Jan. 25th 2006 Jenns schedule as of now: Jan. 26--labs by the visiting nurse Feb. 1---CT scan at 8:40am then EKG. When those tests are done we meet with the cardiac team and also the pediatric surgery team. Feb. 9---surgery for tumor resection[dependent on counts] Chemo will resume when the surgeons say it is okay. It is very difficult to make a calendar at this point in therapy because there are so many unknowns. When radiation is able to be completed we will be in the hospital a minimum of five weeks. Jan. 26th 2006 Well, the nurse came out today and drew labs. At about 12 noon Hershey called and told me they wanted Jenn, her numbers are bad. White blood-fight infection-should be 4.8-12, Jenn's-0. 1 hgb-red blood-should be12-16, Jenn's-6.4 Hct-also red blood-should be 37-47, Jenn's-17 Platelets-clotting-should be140, 000-340,000 Jenn's-2, 000 We got to the hospital at 2pm, and they informed us there were no platelets or blood for Jenn's. Type (a-) So they gave her pos. platelets and had to medicate her so her body would accept them. What a long day, plus -I drove myself to the hospital!!!!! We have to back in the morning for blood and possibly more platelets. If anyone is looking for some way to help out Jenn, give platelets and/or blood. Make sure you tell them it is to go to Jennifer Bailey at Hershey Medical Center, stage IV Neureoblastoma. Thanks for your prayers, Michelle So Jenn. Hang in there. You'll be out an about running the street of Red Lion again, with all your friends. Great things are coming your way��. If any one has seen Mrs. Bailey in Fl. Give her a hung from Tob. Can't wait to see you. Feb.1st 2006 2nd up-date We left our house this morning at 6:30am-you all know how much I love that! Jenn had her blood work done first, and then the CT scan followed by the EKG, and finally the consult. Labs show her platelets and white blood counts to low to do surgery. We agreed with the doc's to postpone surgery until 2/16. The CT scan did not show much of a change since Dec.Surgery will be long and tedious. It looks as if she might loose one kidney. The EKG looked very good. So, next step-visiting nurses will monitor Jenn's blood work, we might have to go back for platelets on Friday. February 1st 2006 Good Morning.( Sorry Fl. for the late entry). Today Jenn and the family are at Hershey for test. Blood work: EKG Cat Scan. During this appointment they will also meet with the Doctors. If all the test come out good the surgery will be on the 9th. It will be along day for Jenn and the Family. But they have hearts of Lions. And a will that is never ending. Jenn shouldn't be staying at the Hospital tonight. And as Jenn is hoping to go out to Dinner. She had started eating more and more. And as long as she goes slow Jenn does well. As always keep this family in your prays and thoughts. I will up date tonight after I speak to Michelle. For everyone in Pa. I am working on another blood replacement drive for Jenn. I will post when I have the details worked out. Feb.7th 2006 As you know there is a Replacement Blood drive going on for Jenn. And Tracy and I have had a good turn out so far. We still need 15 people to sign up. We need to stop the rumors that we hear. If it is on the web site then it has been approved or written by the Family. If you hear gossip out and about, then treat it as gossip.And it should not be repeated. I have worked very hard to keep this web site up to date. And to keep everyone informed with what the Bailey family is willing to share. But let�s be realistic. If it was your family, There are some things you are just not ready to talk about. I give Mr. and Mrs. Bailey all the space they need, and there is a lot they share with me, but I never post any thing with out clearing with them first. So if the web page is not up dated every day, Then take that as a good sign. As of Feb.7th 2006 Jenn blood work is still low. And she is being check again on Thursday. The doctor�s really wants Jenn�s body to rebuild on it own. Surgery is still set for the 16th. (Surgery) The doctors are looking at the surgery as exploratory. There not sure how much will be involved in the removing of the tumor. Or how much they can or can not remove. At this point it�s going to be a wait and see situation. Tomorrow Jenn and some of her friends are getting together, at the house to make Valentines. Feb.12, 2006 SNOWED like the dickens!!!!!!!!!! But that didn�t stop over 40 people from showing up at the Blood Drive. Thank You All���.. 38 pints were collected. Thank you to, Everyone that help put the Drive together. And the Central Penn. Blood Bank. Jenn and Aunt Amber. (the good sister) Stop in, to thank everyone. Then they were off for parts unknown.. Thanks once again to everyone. Feb. 9th 2006 Hershey called with Jenn's lab results, she is stabilized. WBC is 1.4-should be at least 4 HGB is 7.7-12 would be nice HCT is 22.4-that is close to the 30 we would like to see PLATELETS are 69-closer to the 100 but not yet. We are still waiting for the results of her test yesterday, but all looks fine. Jenn is so tired after her big day yesterday. York Daily Record has her and her friend Jess on the front page!!! Fox 43 is sending me a copy of the broadcast from last night. As much as we would like to see snow, pray that it comes after the blood drive. Thanks to all that you are doing the "hearts for Jenn"; we are so surprised by the response! Scott and I are going to a married couple�s retreat this weekend. My dad is giving me and two of my sisters an early gift. Amber-my other sister, the best one (she makes me say these things) is keeping Jenn for us. I would love your prayers for a restful and enlightening weekend. Thanks again---Michelle February 14, 2006 Results of Jenns latest blood work: Platelets 95 thousand (Good) White counts still Low Jenn is still Schedule for Surgery on the 16th Starting time is 8:00 am The surgery could take 2 or more hours. I will up date the web site as information comes in. After Surgery Jenn is expected to stay in Hershey for 7 to 10 days for recovery. Then after the surgeons clear her. Jenn will start a new Round of Chemo.
February 15, 2006 I�m passing this email. Jenn Aunt (the Good Aunt) has many supporters in Maryland for Jenn. We are all invited to join them. On Wednesday and Thursday. Jenn�s mom will keep me informed and I will keep the website up dated. Thank you all for your prayers, love and support. Webmaster Tobie. Happy Valentines Day! A quick update for now�and more later, after my child goes to bed (and I can think properly). Jennifer�s blood counts are OK, and surgery is scheduled for Thursday morning. I do not know the exact time yet. Some of her family and friends will be doing a day of fasting & praying, starting at 6pm on Wednesday (tomorrow) and lasting until Thursday at 6pm. If you would like to join us, that would be wonderful. If you can not do the fasting, please do pray that the surgeon has the best day of his career, and that God will work a miracle and allow the Doctor�s to remove far more of this tumor than they think is possible. Also, please pray that those of us that are able to fast will be focused, and allow God to work thru us. Thank you for the continued prayers, support, and encouragement. Our family is so grateful & appreciative of everything you are doing. And yes, I took GREAT care of Jennifer while Scott & Michelle were away. One little mess up with a missed pill that caused a very quick round of vomiting, but after that, all was fine. I have pictures to prove it. J Sincerely, Amber Lombardi February 16th 8:30 am: Jenn went into surgery on time. 11:44 Am I just got off the phone with Aunt Amber; they don�t believe they will have any information until the surgery is over. But this could change. Thank you for checking the web site. I will keep it up dated. 1:48 PM Jennifer is still in surgery (5hr10min). Because she is tolerating the whole thing so well.They will keep her under for another hour, and continue to dissect (remove) bits & pieces of the tumor. They will be done in an hour, and then we should get more detailed information. Hopefully they are getting more than they thought they could! Amber 5:26 PM I know we all are waiting for some kind of up date. I know I�ve been waiting too. Aunt Amber and I are keeping the phone lines clear and the Email on. All we can do is wait. Just keep on praying and Hoping for the best. There isn�t much we can do for now. Hang in there. Sparkie 6:15 PM Jennifer is still in surgery. 9.5 hours so far! The nurse said she is doing great, and her vital signs are very strong. Since she is doing so well, they are going to keep going until her vitals start to go down. She did need a transfusion, and platelets, but other than that everything is OK. There are 4 surgeons working on her, and they did find a lot more of the tumor wrapped around her intestines than they thought there would be. Because of that, the cutting & snipping is long & time consuming. But they are making progress. Big exhale. Thank you all for sticking by us today, and praying. Just a little bit longer�please! Amber Subject: 2/16/06 9pm 12.5 hours, and Jennifer is still in surgery. YIKES! At 8:15pm est they told Michelle that they were removing Jenn�s gall bladder, and then that would be it. It should not be much longer. They said she was doing great. Since Jenn will be in the pediatric ICU tonight, they are sending Michelle home. She is not happy about this! But they told her Jennifer would not be waking up at all tonight, and maybe not even tomorrow. So Michelle should go home, rest tonight, and come back in the morning. Please say an extra prayer that Michelle would get a good nights sleep. I know it is going to be difficult, but she really needs it. I will update again in the morning, on the specifics. Thank you for your prayers today. I can barely hold back tears as I think of all of you, from all over, who have prayed for a little girl, you probably don�t even know. I am grateful for each one of you. And I don�t know how else to say it. God is so good. Amber. (I think you said it all.) Thank you Amber, for keeping me up to date on Jenn. Now every one Say your prayers and get some sleep. t.d.s. Webmaster: Feb. 16th 10:11pm Jenn is out of surgery; 9:30 p.m. The Doctors found more then they expected. Jenn did lose her Gallbladder. The Kidney was saved. Jenn is going to I.C.U. And there they are going to keep her asleep for tonight and most of tomorrow. Michelle is coming home tonight, but will be returning first thing in the morning. There will be more information later on. Thanks for your prayers. Tobie Feb.17th 7:56 AM Surgery did last 12.5 hours. Michelle spoke with one of the surgeons afterwards, and got more details. She did get to see Jennifer briefly before heading home for the night. She said that is the time when she cried the most. Jennifer still had the tube down her throat, and was hooked up to all the machines, and I can imagine that would be very hard to see. I am sure some of you already know that feeling, and my heart goes out to you as well. They will keep Jenn in a drug induced sleep today, using a high dose of pain medicine. Michelle has been warned that Jenn is going to feel VERY bad for a couple days, and the surgeon did tell her the recovery is going to be tough. They might try to wake her up this evening, or wait until Saturday before they really let her come to. I am pretty sure she will stay in PICU again tonight, so please say another prayer for Michelle to get a good nights sleep at her house. They were all extremely impressed with how strong Jenn was, and that is why they would not stop. They told Michelle that the neuroblastoma was hiding everywhere in her belly. As soon as the cleaned something off, they looked and there was more. It was worse around her intestines than they anticipated. They did NOT have to take her kidney (Praise the Lord!), when they removed that part of the tumor it actually just separated from her kidney, leaving her kidney looking perfect. They were able to get a lot of the tumor, but there is still some left behind. The good news is, because they got so much, they probably won�t have to do another surgery. It looks like another round of chemo & the radiation might just be enough. Jenn will need to have fluid drained from her abdomen (needle aspirations) in the next few days, and will require some blood transfusions. Besides that she just needs to recover. We are praying her incision (which ended up much bigger than they planned � it is like an upside down T on her abdomen) will heal. We do NOT want any infection right now! Please pray specifically for that! Her insides have been manipulated so much that it will probably take weeks for things to start feeling normal. They did get some of the tumor off of her artery (the one that runs from your heart to your leg), but they were not able to get all of it. Some of the tumor was stuck on the nodules of the vein, and that was very difficult, as they did not want to nick it and cause more problems (bleeding, mainly). So, your prayers have been heard & answered. God is good. And my family is so thankful to Him. We know the next few weeks will be very rough, but Jennifer is a brave, strong little girl, and we know she can do it. I will make her! J I will have the address & room number later today, and maybe we can start sending cards, or small things just to keep her spirits up. I can�t imagine what she will be feeling when she wakes up. But I will be sure to tell her many, many people are praying for her, praying her recovery will be phenomenal. I know I will be. thank you. Amber Feb. 17th 1:50 pm As of 1:50 PM I just got off the Phone with Michelle. And an Email with Amber. Jenn is stabilized. Jenn is still running a fever, and her white blood count is very low. The Doctors are going to be giving Jenn medication to help raise her Blood pressure, and this will help her body to produce better urine out put. The doctors are hooking Jenn up to a special Heart monitor. Jenn is still pretty out of it. And still thinks she is in surgery. Jenn�s Mom and Dad are there to a sure, Jenn every thing is OK and she is out of surgery. Every one Must Remember that Jenn was under for 12 + hours of surgery. And any surgery can take a toll on the body. But Did we forget. What Jenn is made of. If any one can so this she can.. So, I say we keep praying, and get ready for her to come home 11:35 PM Sorry it took so long to post this e-mail. My computer pucked This is from Jenn's MOM. It is 8pm Friday, we came to visit Jenn a little. I left Scott in the room so I could come out in the teen lounge and type. (yes, I am pretending to be a teen) Jenn's kidneys don't want to work, they are stressed. Her breathing tube got pulled, so they had to reposition it while we were in her room. (Bet you can guess how that tube got pulled.) She is still receiving blood products. So thank you to all that were able to donate blood. Scott and I are staying in Hershey tonight so that we are close. Jared is going to Dakoda's for a birthday party. I will e-mail as soon as I can, love to all Michelle February 18th 2006 Please everyone take a deep breath. I know this has been a long and stressful time for all of us. I haven�t received and up dates from the family. But Michelle and Scott have made a deal with me. No News is good News. So for now let�s assume that everything is the same. Hang in there. God is with Jenn and the family. Keep on praying. Sparkie aka tobie February 19, 2006 7:13 am Good Morning. I do have an up Date for you. Facts: Jenn is still running a fever. She is responding to voice commands. Jenn is still in a lot of pain. Jenn is putting out more urine, and her Kidneys are calming down. Last night the staff packed Jenn in Ice to help bring down her fever. They believe once the fever comes down it will be Jenn�s turning point. Keep praying. Keep on leaving message on the guest book. They are being read to Jenn. Today is a new day. 3:01pm Hello every one. I still don't have any news from the Bailey's But I didn't want any one to think I was blowing them off. Hang in there. Keep on Praying for her. Jenn is so worth our time. I won't rest until I know Jenn is out of the woods. Feb.19th 9:00pm Michelle Called: Jenn is doing better. They Turned off the vent. for 2 hours today. and Jenn did good. The Family will be staying in Hershey again to be close. They had to Isolate Jenn from the rest of the I.C.U. children. Jenn White blood count is still to low. The Ammonia levels are still dropping this is good. E_Mail From Michelle 11:03 Pm Today Jenn is not quit as swollen-and we were told that they might be able to remove the ventilator tomorrow as long as she can breathe on her own. We are still waiting for labs to come back. I want to know what her ammonia level is. Scott and Jared and myself are going to stay overnight again tonight. Scott is taking off work tonight because, I am having difficulty handling this part of Jenn's recovery. I do the vomit clean up and Scott helps with the turning of Jenn. Up Date 11:03 am I just got off the phone with Michelle. Jenn's fever Broke. And there going to start trial runs, on the ventilator. If she does well then they will take her off, Monday. And the Staff gave Jenn some paper and a pen. She is trying to talk.Things are looking better. Michelle sends her thanks and love. Feb. 20th 2006 I have no New information for you at this time. I did hear from Amber. Around 1 pm She also had no new information. My email and phone are on and waiting. Keep the faith. Jenn is doing good. Feb.19th 9:00pm Michelle Called: Jenn is doing better. They Turned off the vent. for 2 hours today. and Jenn did good. The Family will be staying in Hershey again to be close. They had to Isolate Jenn from the rest of the I.C.U. children. Jenn White blood count is still to low. The Ammonia levels are still dropping this is good. Feb.20th 2006 We got home at about 10pm. Jenn had another trial time of breathing on her own, but she is too "tacky". Fluid on her lungs, so she will stay on the ventilator. Jenn recognized, Jared's voice right away-she probably thought he had something of hers. Hopefully they can pull her tube tomorrow, once that is out of her throat, I think she will be a little bit more comfortable.Scott and I will head back to Hershey in the morning. Thank you for your continued prayers-- Michelle Feb. 21st 2006 I have a email from Aunt Amber:(good sister) They will try to take Jennifer completely off the ventilator today. She has done much better breathing on her own since they took her off of the Versed & lowered her pain meds considerably. They had to put a feeding tube thru her nose as she was not getting enough nutrients. She is much more alert, and trying very hard to communicate. She is in pain, and they are trying to get that under control. Her swelling has continued to go down, and she is looking much better. They are still concerned about her liver, but her blood work shows it is not getting worse so for now they will continue with the medicine and wait to see what happens. Thank you for the prayers, it is so comforting to know so many of you are praying right along with us! I will be sure to let her know there are so many people thinking about her, just as soon as I can get up there. Thanks again�for everything. Amber 4:19 PM We have her Back:!!!!!!!!!!!!!!!!!!!!!!!!! Jennifer is off the ventilator!!!! Michelle just called and the first thing she said was . "I have my Jennifer back!" Praise the Lord! She is no longer sedated, just a little loopy from the morphine. She has complained about the position her legs are in, her glasses, the TV channel, her arms being tied down, the monitors on her chest, she swears she has to pee (she has a catheter), she wants to sit up, �and Michelle said "It is wonderful!". She is not taking very deep breaths right now, so she has to wear an oxygen mask. CO2 level is not great. They removed the NG tube, and put in the NJ tube to feed her. She knows she still has both kidneys, and is pleased about that! Her throat is very sore, and it is difficult to understand everything she says. But she is getting better! Thank you Lord, for today. With everything I have, I thank You. Amber Feb.22nd Jennifer is doing great! I was able to visit with her today, and even have some pictures I will try to send later tonight. She is a little confused about what is going on, and kind of out of it, but her vitals are good, and she is making progress. She is quite a handful though! She asked me why she was there. And tried to get me to untie her hand. She also asked me to get her some juice, even when I told her she was not allowed, and then said to me, "they don�t need to know". I didn�t know whether to laugh or cry. She was very agitated and panicky�and does not seem to trust that she is OK. I am sure it is just a side effect from all of the meds, but it is difficult to watch her be so upset. She asks over & over about all of the catheters and tubes. She tries to pull them out, and you really have to keep an eye on her. Hopefully soon she will be out of this medicine fog, and be able to understand what is going on. At one point, Michelle & I were trying to move her up on the bed, and Jennifer said to Michelle. "you don�t even know what me & Amber are thinking". I just went along with it, and said "yeah, Michelle." But I have no idea what she was talking about! But she gave me that look, like it was something secret between us. So funny! She is still in a lot of pain, and they were upping her morphine dose when I left. Michelle did say she was finally resting comfortably when she called me on my way home. I think once she is moved back to her normal room, she will feel much safer. That should happen tomorrow. Thank you so much for the prayers. I told her today that so many people are praying, and she smiled. She is such a good kid. Even when she is being really high maintenance! Amber Feb.23,2006 Michelle just called with Jenn�s update. They did get her to stand up & sit in a chair for 30 minutes. She has fluid on the lower � of both lungs. So please pray that goes away! She is having a hard time coughing, so hopefully sitting her up will help. She was not happy about any of it. Her platelets are at 9,000. Because they are low, each time they pull one of the IV�s out it is squirting a lot of blood. Until they can get the platelets up, they will hold off removing anymore. She wants them out, so hopefully this will happen soon. Michelle is barely getting any sleep, as Jennifer requires constant supervision. Please pray for extra strength! Scott is sick so he can not be at the hospital, so right now Michelle isn�t even getting a break. We will figure something out quickly. In the meantime, please pray for Michelle! She actually is doing great, and sounds good, but I know she can�t go on like this. She needs some sleep. As always, thank you�for everything. Amber. Feb 24th 2006 Last night at 12:55 am I received a text message from. Jenn is not doing well. She is heading back to the operating room. Scott is with Michelle. Needless to say my heart skipped a beat. I did manage to get my phone to work and Amber Called. At that point, The doctors new it was bad, but they had to try. At 4:45 am Amber called back. Jenn was out of surgery. And Scott was with her and Michelle�s Dad was taking her home. Then at 4:49 am Michelle called me. And reassured me Jenn was stable but not out of the woods. (Jenn had internal Bleeding from around the Gallbladder site.) Jenn is and will stay in the Pic-U. Now I know everyone wants more details. I will give them to you as I receive them. PLEASE: DON�T CALL MICHELLE. She needs to get some rest. She hasn�t slept in about 4 days. And Like I told her." Who will take care of Jenn if your sick" Trust Amber and I to Keep you up to date. February 25th 2006 Jenn is hanging in there, x-rays are looking good. Will leave the breathing tube in though. They are measuring her belly to make sure it is not growing again. Thank you all Michelle ____________________________________________________ Up date 4:05 PM I just got off the phone with Michelle. Jenn is holding her own. Scott said her vitals are good and there watching them closely. Jenn is not out of the woods, the Doctors Staying close by. With Jenn's Platelets beings so low she could start bleeding again. Jenn's body is starting to reject some of the blood products. The blood bank is going to screen the blood for a closer match to Jenn's type. The family will be close to Jenn this weekend. Everyone hang in there. Jenn is strong. So we need to be strong for her and her family. Tobie February 26th2006 This morning Michelle Called. It has been quite a few days cents, I�ve heard convidence in her voice. She feels very good about Jenn. And the second surgery. She does believe Jenn. Remembers any of it. Which is good for Jenn, but will forever be a memory for Michelle. Scott and Jared are with Jenn at this Time. But today Michelle is going to celebrate the dedication of her sister Amy�s children. Michelle will be returning to Hershey later today (as if we could keep her away) To everyone else. Thank you. Keep on Praying it�s working. Tobie 10:43pm Just Read this. You almost feel like your standing there. After another transfusion her platelets went back up to 96,000. We will see if they stay there. If they do, that would be GREAT. They will do the trial removal of the ventilator tomorrow morning. Until then, they are keeping her sedated most of the day. She was so cute today. During the time that she was awake, she asked my sister to lay in bed with her. (yes, my feelings were hurt, but I assume because she was medicated maybe she thought it was me.) She also asked my Dad (her Pap) to rub her head, which he gladly did for quite some time. She had my other sister rubbing lotion on her feet. She won't ask me to do that, because as much as I love her...I don't touch feet. Jenn's 10 year old cousin came to see her today. Jennifer motioned for Peyton to come closer & she held her hand. She was so affectionate, and wanted everyone that came in to stand close to her, and touch her, or see her incision. When my Dad prayed with her, and those of us that were in the room, Jenn started nodding her head. It was so cute, almost like she was saying "Yes, please pray...keep praying!!" She rolled her eyes when we didn't know what she wanted, and sighed, heavily, when we would not help her pull cords out. She complained about her hands being tied down, as usual. (that is one of the toughest things for me. I hate her hands being tied down.) It was a really nice visit. I had to drag myself away to come back home. Once I got here, I grabbed AJ out of his crib, and rocked him. I just listened to him breathe, and felt his heartbeat, and I just prayed. Of course, we don't know what God's plan is for our Jennifer, but our family is praying, praying that no matter what, we trust Him and know that He will take care of her. Always. Amber February 27th 2006 Spoke to Michelle today. Jenn is doing great!!!!!!!!!!!!!!!! I also Have Aunt Amber's EmaI: Jenn's platelets are staying right around 60,000 +/-, and that is without a transfusion yesterday afternoon or evening,so the Dr's are pleased. They removed all of the tubes, except a central line in her groin, and of course the broviac in her chest. Her hands are untied! And she is finally able to sleep in her normal fetal position! They will have her stand up & sit in a chair today.. .if all goes well, she will be moved out of PICU, and back to where she normally is tomorrow evening. THANK YOU everyone, for the continued prayers. We will update as soon as I hear something from Michelle. Amber February 28th 2006 Jenn is out of I.C.U. Today she was moved to immediate care. She is tired, and is happy about losing the (Golden Pocket Book) Her Blood pressure is low. And did receive platelets. Jenn also enjoyed an Orange today. Things are look good for Jenn. More as it comes in Tobie March 2nd 2006 Sorry about yesterday. For no up date. Jenn or as her Mom calls her (Buggy) Is doing Great. The Blood pressure was still low. And Jenn had another blood transfusion. (Amber�s E-mail) The resident that came in to speak with Michelle about the plan told us that Jenn is "leaps ahead in her recovery". Praise the Lord! She said that Jenn�s liver is functioning, and listed a bunch of other stuff�but the gist of it all was that Jenn is doing better than they even expected her to, and they are very pleased with her progress! She is still running a fever (102.2 last night) but again, nothing shows up in her blood, so it does not appear to be any type of infection. She ate an apple, and has been drinking plenty of fluids. She just now understands that she had to have a 2nd surgery, but I don�t think she grasps how serious it was. As of Last night. I spoke to Scott: There was a problem With the Nursing Staff. It�s my understanding they got a tongue lashing, from the doctors. Someone left, one of the bed rails down and some one snuck out of bed to go to the bathroom. I guess they didn�t want to wake mom. (Bad Idea) Scott and I had an Idea. Two words. DUCT TAPE that should do the trick. If sneaking out of bed wasn�t bad enough, she tripped and banged her knee. On the way to the bathroom, OK well if that wasn�t bad enough, she fell trying to get into bed, and bang her head. Now they have to watch her for a concussion. Hang in there Michelle. We can cover up the gray hair, she is giving you. That�s all I have for now. As soon as Monkey Women, Buggy, JENN. Is moved back to 7 west this pager will be moved to the prayer link, and saved. Then I will be using the reg. update page as normal. March 2nd 2006 Back on her cancer wing, so she is VERY happy). She had a difficult day yesterday, but today is doing much better. They moved her late last night. Fever is still between 102 & 103. not sure why. Concerned with function of kidney, keeping an eye on it. She did eat some grapes this morning, and is able to get out of bed to sit or stand. Blood pressure is still being monitored, and remains a little high. She is on meds to bring it down. She will be in the hospital at least another week. I will give a more detailed update as soon as I can. Continue to pray, please! Love, Amber Now This Section will move to the Pray for Jenn Link. Thanks for prayers and Love for Jenn. March 3rd 2006 Well, I went to see Jenn and Michelle. Jenn looks good considering, what she has gone through. She looks a little Puffy in the face. And is black and blue, and very sore. The Doctors are watching Jenn�s stomach, for swelling. And they were going to do an ultra sound on her right leg. She might have a blood clot. (That is where she had a central line put in. and some times that happens) Last night, she didn�t sleep to well, so she was a little, No a lot, out of sorts. Every time she went to closes her eyes or just relax some one would come in. At one point, I thought for sure she was going take off some ones head. And we all know that�s not Jenn. I think if Jenn could she would have locked the door, and pulled the shades. But Jenn also knows she needs to get up and move around and get her strength back. And it�s hard on her. And Michelle. What a Rock that lady has been. Now I�ve had many people ask about visiting Jenn. And I spoke with Michelle. And Michelle feels that Jenn needs more time to heel, she is being watched very close. Jenn is still not out of the woods, even though she is doing better. Now Michelle does encourage any one that would like to send cards or notes. But for now She just needs to rest. Thank you all for understanding. Michelle and Jenn, will make it up, once they get home.
March 3rd late: Good evening all-I have once again slipped to the teen lounge, it is becoming one of my favorite spots! Jenn is doing alright, she is tired and done with everyone poking at her belly. She is swollen tonight, we have been measuring her to make sure her belly does not grow to big. Amazingly she has not lost too much weight-and neither have I! Thank you all for your continued support and prayers. Sunday I went to church with my family and during the morning worship songs I could barley sing the chorus to How Great Thou Art--It is hard to sing that song, after watching your daughter almost die in front of you, and turn to God and say-you will not mine.But I truly believe He is great. Love to all, night Michelle March 5, 2006 Well I�ve heard From Jenn�s, Mom and Dad today. This morning, the Doctors did more tests and a type of X-ray on Jenn�s belly. Jenn has fluid in her belly so they are watching that closely. They also discovered why Jenn is running a fever. Part of Jenn�s liver has died. They consider it a 4th degree laceration of the liver. And the body will absorb the dead tissue and the liver will regenerate it self. But on a good note Jenn is making progress. I think at this time Jenn is having more trouble with being told she can�t do this or she can�t so that. We all know what kind of person Jenn is. Out going. Full of spit and spice. Well not right now. I heart goes out to Jenn. Her spirts are down, and she is very frustrated. It�s like a bird with a broken wing. That wants to fly, and tries with all its might. And when you try to help it, bites and hisses and flaps it wings wildly, Until they wear it�s self out. And only time and perseverance will heal that broken wing. So me have to be patient and understanding. And understand this is not the Girl we know and love. It�s the results of the treatment of this Enemy she is fighting. The enemy we all are trying to help her fight. So hang in there Jenn. You�ll fly once again. March 6th 2006 Today Jenn is doing better. Michelle said she is still running a fever, and is hanging in there. Jenn�s body is starting to make it�s own plattlets. She is no up to 72,000, from 52,000. This is a good improvement. All we can Do is Pray and Send her some card or letters. Thanks Tobie. March9th 2006 This is a E-mail from yesterday. Jenn is working with the physical therapist so I left. Yes, I can print out email from the teen lounge. There is not much news right now, she is a very sick girl slowly making a recovery. Her liver enzymes are to high, her kidney has good days and bad, but she has had NO fever for 24 hours. Surgery should be in today to remove the staples, in fact I just saw two of the surgeons walk by. Tell everyone I said hi, Michelle March 9th 2006 Once again, it has been a few days of ups & downs and waiting regarding Jenn�s liver. But as of this evening, the liver specialist is not overly concerned. They did have her come back & do a doppler ultrasound to double check it, but it appears that is regenerating itself, and is headed in the right direction. The same goes for her kidney. The fluid in her abdomen is slowly disappearing, and Jenn�s blood pressure is getting back to normal. All of her blood counts are acceptable right now, and the fever is gone. The only thing keeping her in the hospital right now is the morphine. They have to wean her off of it, and hope to have that done early next week. If all goes well, she will be home, in her own house, next week! We are praying that being at home will cheer her up, as she is still struggling with her attitude, and staying motivated and positive. She is doing physical therapy every morning, and it has been very difficult for her to learn just how weak she is, and how much work it is going to take to get back her strength. Please pray for this specifically. I think once she sees some improvement, the rest will fall in place. Your prayers are always appreciated. Always. Amber MARCH 10 2006 Day 23 Jenn is doing well. As of today Jenn�s Blood counts and Fever are in check. Jenn was able to take a shower. And is moving more and more each day. Michelle is dragging , but hangs on to the day she, Brings home her daughter. Now Jenn won�t be able to handle the stairs. But Jeen is going to be more comfortable, down stairs in her HEALING Chair. Bev is finishing up the Jenn�s bedroom. And Jenn�s New shower chair are in place. Now all we are waiting for is Jenn. Oh Did I mention. JENN IS SCHEDULE TO COME HOME SUNDAY. Keep your fingers crossed. March 12th 2006 Day 24: For the last 23 days. We have prayed, And we cried. And we prayed, again. We�ve read about the good days and we read about the bad. But as for today, we are thankful. And we can sigh in relieve. For today Jenn is coming Home. And even though we know she will only be home for a short time. We live for today We remember, yesterday. And let God take care of tomorrow. Welcome home Jenn. March 14, 2006 Michelle sent this email out on the 13th, sorry I am late posting it. We got home yesterday around 4pm. We had to drop off some prescriptions at our favorite spot and check on one of our two favorite pharmacists! This morning I had a dentist appointment-yeah-and Jenn was still sleeping when I got back. Scott did get her to take some of her meds. Tomorrow we go back to Hershey for a check up, if all is well we can come home. Dr. Ungar said he would wait at least until the end of the month for Jenn's next round of chemo. I kinda hope she won't be ready until April. Thank you for your prayers and who ever made that awesome chili--Michelle. March 16th 2006 Forgot to tell you-Hershey called with lab results: white blood count-4.1~normal count is 4.8 to12. hgb(red blood)-12.7~normal count is 12 to 16. hct(also a red blood)-38~normal count is 37 to 47. platelets-97~normal count is 140 to 340. Of course, having counts counts this good means they want her back sooner. Jenn was added to the softball roster for school, we would really like to get her to some of the games. She would really like to watch the girls play since she won't be able to play. I have asked Dr. Ungar's nurse to please let us stay home at least until April. Jenn did loose about 10 lbs. so my new job is to fatten her up, and since I have done such a good job of that for myself, I should have no trouble! Our big plans are to get fat, clean the house and watch movies. Thanks to all--Michelle Jenn is scheduled for her next round of chemo on March 28th. If she is doing really well, her Dr. said they would give her the option to push that date back.. Until then, they will keep checking her counts, try to fatten her up, allow her incision to heal, build some strength, and most importantly (to me, anyway) try to find that positive outlook she had. I see signs of it, so I know it is returning. Being around her friends seems to bring it out much quicker. Amazing how important good relationships are, and how they provide �medicine� that no pill could ever match. She went to the high schools "meet & greet" for the softball team. They made her an honorary member, and I think it meant more to her than she would ever show.. . March 18th 2006 Michelle sent this email yesterday; Sorry I didn't post it sooner. Happy St. Patty's day- I just want everyone to know how happy I am to have things back to normal! Jenn and Jared have been picking at each other all day, Jared is sick and makes everything such a personal attack. Jenn can't seem to get enough food. She worked on her homework and is just a little worried that she won't get all the work done. To top it all, Scott did a home project that required only two trips, to Home Depot (of course, not the local hardware store). We only had our water off for about three hours, not to bad for an old house. Especially not to bad because nothing got broke and we didn't learn any new words! I am very pleased to say the all is well and right in the Bailey household! Michelle My Question is??? What is Normal The House sound great. March 21, 2006 Tonight Jenn will be on Channel 27 news. The Employees at the South York Diner 2149 S Queen St. York,PA Phone: (717) 843-9329 are Donating their tips for Jenn. Red lion Talent show are also donating some of their proceeds to Jenn also. Time and Date will be listed later. Thank you all for helping Jenn. March 21st 2006 Good Day every one. I had spoke to Michelle yesterday. Jenn is doing much well. Jenn is eating like there�s no tomorrow. And when she doesn�t eat she feels sick. So keep eating Jenn. March22,2006 Hershey just called, we have a new plan: Apria will come and do blood work on the 29th assuming all is well with the counts Jenn has to be back for chemo on the 31st. Dr. Ungar is just a little concerned because she is behind schedule for her chemo, since we had two surgeries instead of one. So, March 31 is still better than the 28th-plus my baby sister's birthday is on the 28th and we can think of her instead of chemo!!! We will be in Maryland on Sunday, spending time with my spoiled sister. Love to all, Michelle ( New pictures of Jenn And Michelle)(bottom of the page. Pictures. Or on the web group Photo's March 25th 2006 Sorry Fl. I've been sick, and haven't been over to see the family... But I do have an E-Mail from Michelle for you all. We had a good time at the talent show tonight. During intermission an announcement was made, telling everyone where the money that was raised was going. Some of it is going to hurricane victims, and some of it to Jenn, and she stood up and waved. We are off to Maryland Saturday and will be back home Sunday night, see ya at the Dover, Red Lion game ttfn-Michelle March 27th 2006 Well the family is home from Maryland. Everyone is worn out, but had a good time. The Blood drive was a Big Hit. I was told people were stopping and had to be turned away. The red cross ran out of time. I have an E-mail from The Good sister, that I will post on the yahoo group. Also when I receive them, I will, post the new pictures. On March 28th, they are schedule to go back to Hershey for another round of Chemo. (But Jenn and the family have the choice to push that back. So Jenn could have more time to get back to her old self.) Then Jenn will come home to recovery for a while. Then the doctors will decide when Radiation treatments start. The Radiation treatment. I�ll post the treatment Plan for this later on. When the details are worked out. Jenn was posted on the Jr. Varsity Softball Team at the High School. Jenn would really like to go to the opening game. Jenn�s brother is sick. Jared has a virus. But is getting better. Michelle sounds really good. You might say she is, Happier than a Pig in @#$%^., just to be home. And Mr. Scott. Well He is just getting him self in trouble like always. LOL LOL luv u Scott. Keep the E-mails coming. Keep posting on the Yahoo Group. They all love to hear from you ALL. March 28th 2006 Hi everybody! We had a great time in Maryland, but I believe we wore Jenn out! Amber and Ray's church really out did themselves-they gave us a beautiful slide show of Jenn and a copy of Rascal Flat's song "skin". We all cried like babies as we watched. Hershey called today, they want Jenn up on Wednesday for blood work, an EKG, and a physical, If all goes well she can come home. Chemo is scheduled for Friday as long as the counts look good. We will be at Red Lion's first softball game. Tuesday at Dover. TTFN--Michelle March 29th 2006 We had a great visit at Hershey today!! My dad picked us up at 8AM, and we got to the hospital right on time. Jenn had her echo cardiogram and then we headed to the clinic. The images of her heart were very interesting to watch! A nurse drew Jenn's blood for labs and then the waiting game started. At 12 noon we finally got back to an exam room, our appointment was for 11am. Jenn is doing well and is in good health to start her next round of chemo on Friday. Here are her lab results: what counts should be what Jenn's are wbc--4.8 to 12 4.6 hgb--12 to 16 13.5 hct--37 to 47 39.2 platelets-140 to 340 117 Can you believe those numbers!!!!!!!! Hopefully I will be able to let everyone know what is going on during chemo, it all depends on how Jenn does. When I get the chance to call Amber or Tobie, I will. Thank you all for your prayers!! Love ya all--Michelle March 31, 2006 Well there has been a delay for the, Chemo. One of Jenn's Doctors, has been taken ill. The Poor Guy has Kidney stones. So Jenn Has 3 more days of being home. Tonight Jenn and her family went to another softball game, And then the boys were of to the dirt track with Grandpa. And Jenn and her Mom went off for dinner, then home . It was nice to see them together. April 4th,2006 Good Morning. Once again I have slacked in updating the site. Well Jenn hasn't started the next step yet. Dr. Unger wants to see Jenn in the clinic before they start. There are some changes in Jenn's heart, but at this time Michelle isn't sure what they are. We'll know more later today. Michelle will call with an update and I'll post it As soon as I know. Jenn's sprits are in good not great shape. I get the impression she is just tired of this whole mess. But if we help her keep focused on the light at the end of the tunnel, this will help her. April 4th 2006 Well it's 9:32 PM and I have the Skinny in Jenn. Michelle called me at 7:32 PM Jenn's day started out with going to the Clinic at Hershey. They met with the Doctor. (Heart) Jenn's Heart is still stressed, but has improved since Surgery. Jenn is under weight. 102 lb. Jenn will be staying at Hershey and will be starting the Next round of CHEMO. And this round will only have two chemo drugs. Michelle is hoping to be home by Thursday. Then For the next 6 to 8 weeks Jenn will go to the Clinic for test and check ups. During this time, The Doctors will have a plan on when, how much, and how long Radiation therapy will last. This will also Give Jenn and the Family time to Recover. And Put some weight on Jenn. I think they just need some real down time where they can just, hang out, and be a family. Also Jenn will have the opportunity to go to more Softball Games, and work on her homework. And Jared can be the younger brother and do the things younger brother's do to there sister's. That's all for now. Tobie. April 7th 2006 Well this is the quickest turn around yet. Jenn completed, this round of Chemo. Jenn is home. Next week the goes in for blood work and a check up. Jenn will have about 4 to 6 weeks of being home and hanging out. So far, SO good. I would like to thank everyone that reads about Jenn and the family. Thank you all for your prays and good wishies. I truly believe that knowing there are people out there, supportting the family, is a great comfort to the Bailey's and Jenn. Tob. April 11th 2006 We are doing record times at Hershey! Dad got us to the hospital at about 8:30am. Jenn had her labs drawn, and saw Dr. Ungar. We were home at 11am! Jenn is down to 98 pounds, and her counts have dropped-not low enough for transfusions. Apria(the visiting nurse co.) will be to the house on Thursday to re-draw blood. Jenn will most likely need red cells and platelets, but I am hoping we can get them on Friday morning and do it as an outpatient, instead of being admitted overnight. I will let all know the results of Thursday labs as soon as I can. Thanks again for everything--Michelle April 12th 2006 I stopped by Michelle's and Jenn Yesterday. Just to get a bird eye view of the girls. Jenn looks thin she down to 98 pounds. So being the friend that I am. I told her to eat or I was going to kick her butt. Then I thought about it. I wait until she gets some more meat on it. It's to bony rite now; I might hurt my foot. Jenn is still working on her home work and keeping up with her, Court TV Michelle is looking a bit worn. Like any Mom. You don't sleep if your child is a wake. And Jenn has been getting up in the middle of the night and is unable to go back to sleep, for about 3 hours. Michelle has trouble with split sleep. But like any other Mom she is doing what needs to be done for her child. The Family is looking forward to Scott's Mom and Dad, home for a, hopefully a good long visit. Jenn had a long, difficult day. The softball team wanted her to come to the field for team picture, but she is too weak. She passed out on Michelle twice. Michelle and Jenn figured out to place chairs around the house, so when she walked to the bathroom and got dizzy, she would just sit for a while. They are going to Hershey again tomorrow; most likely she will get blood. Jenn's blood count has dropped, pretty low. But, this is telling them that the Chemo is working. So this is good. April 21 2006 There is a NEW page to the web site. Called Birthday Bash: Check it out. Hope to see everyone there. April 13th 2006 Dad was able to drive me and Jenn up to Hershey again today. Jenn did need a blood transfusion and one unit of platelets. She has no white blood cells, so she cannot be around people that are sick. Platelets are down to 9 when they should be around 140-340. The other piece of news that had us a little upset was that Jenn lost another pound, she is now only 97lbs. Keep praying, I know she will bounce back. thanks, Michelle I have a very moving email from Aunt Amber. Michelle want it shared April 16th 2006 Happy Easter. I had the Pleasure of talking with Jenn Yesterday. Jenn was a little down, because she was stuck in the house. Due to the low blood count. And was a wonderful day out too. It really sucks. So I promised her that when this was all done with. We were going to have the party of the Year. Michelle Email me today. Every one is doing OK. And Scott and Michelle almost have their last coat of paint on the bedroom. I knew this would happen, if Michelle was home long enough, she would find something to remodel. Poor Scott. LOL! In a nutshell. Everything is going good. April 17, 2006 Easter was quite enjoyable. I went to my mom's, and was able to visit with my sisters and their families. I also was able to look at a car for Jenn-she will be 16 in May! Sunday Jenn went to the park near our home and took a small walk, the first one in a long time. Today the visiting nurse came at 7am to draw blood, and Hershey called before 9am with results. Things are going as well as expected; platelets are up from 9,000 to 21,000. They are still low, but at least they are climbing, 100,000 would be wonderful. Red blood is now 10.8; this is very close to the 12 we like to see. White is still low, but they were able to count them this time-0.2. Normal count is 4.8 to 12; she's getting there. Jennifer really wants to go to her Aunt's house, so I asked Dr. Ungar's nurse if it was okay---and she said YES!!!!! My dad will be taking Jenn to Aunt Amber's today! She is so happy. After missing the get together on Saturday and church on Sunday, finally she can do something beside sit at home!! We go back to Hershey on Thursday to talk about stem cell transplant and radiation. I will e-mail when we get home. Thanks for your prayers--Michelle Also Some New pictures have been added, Jared had a school project. Check it out. Mexican Dinner. April20th 2006 Update from Michelle. Jenn will be admitted for stem cell transplant sometime during the week of May 15. We received so much information today, I will just skim over it. Since Jenn gave her own stem cells she will have an autologous transplant. High dose chemotherapy is given causing the bone marrow to be destroyed. Jenn will be getting two new chemo drugs along with one she has had before. Etoposide she has had, melphalan and carboplatin are new to her. The stem cells are given back. Then we wait for the stem cells to grow. This will be an anxious time, Jenn will have no immune system. Complications could include: VOD-veno-occlusive disease. In VOD some of the small veins in the liver get blocked so blood can't get through. We will also have to watch her kidneys. Many off the meds used will cause extra work for the kidneys. Without this major treatment Jenn only has a 20% chance of being cured. Since she had complications during her surgeries though, her risk of kidney and liver complications is magnified. This is going to be a long process, she will need all her baby shots again, she will have to wear a med. alert bracelet, and she CANNOT be around anyone sick. NOT EVEN A SNIFFLE!!! She cannot even be around any of her cousins after they get baby shots! I was given a book of do's and don'ts, so I have many hours of reading to do! I will try to keep everyone posted as Jenn goes to have many tests done before admission. thanks-- Subject: 4/21/06 MichelleEmail from Michelle: My time with Jennifer was wonderful. We especially enjoyed our evenings, after AJ was in bed, when we could talk & hang out. We watched American Idol. She cheered for the bald guy Chris, and I yelled for my man, Taylor. She made fun of his grey hair, and I made fun of both her & Chris's bald heads. We laid in bed watching some TV, and I tried to get her to exercise by throwing her arms back & forth. We sat outside, and dangled our legs and feet in the hot tub. We walked around, sat on swings. She ate. And ate. And ate some more. (did I mention she is now 103.8 lbs???) But on Wednesday morning, when she came down stairs after waking up, I knew something wasn't right. She asked me immediately what time she was going home, and my a little bit of my heart broke. You know that feeling you get when you feel like you have failed, even though you gave it all you had...well that is how I felt. It is much different than failing when you have not tried. She called her Mom. I talked to Michelle. We had a temporary plan in place to get her back home in a few hours. 30 minutes later, she was sitting on a stool at the island. She looked up at me, and I already saw the little tears forming, and she said "I think I know what's wrong." I stopped cleaning the kitchen, put my arm around her & waited. Then her frail shoulders started to shake, and she tucked her chin into her chest and covered her face with her hands. The tears fell from my eyes, and I could not stop them. She said she was upset because she can't do so many things. She could not chase Austin around, or play hide-n-seek. She couldn't get the whole way into the hot tub or pool. She can't play softball. By then the her words were not coherent. I hugged her very tightly, and told her that it makes me mad too. That all I want is for God to heal her little body so she can get her life back. I told her I have no idea why this has happened, but that I pray every day for a miracle. A miracle for her. We cried and talked...and I won't go into detail here, as I would never betray her confidence, but please pray for her. After that, she was fine. She ended up staying with me until early evening, and that little crack in my heart was healed right back up! I know I can't fix her. Physically, emotionally...spiritually. But I know Who can. And I am begging Him to fix her. Completely. The next 4-6 months are going to be hard. Harder than we thought, and I just pray she keeps the strength, and when she doesn't have any more strength in her, I pray that God gives her more than she will ever need. She just has to fight...with everything she has. We will have having a Beach Bash Birthday / Send off party on May 14th. (Mother's Day) It will be an open house, come for an hour or more. It will be in Red Lion (Ambulance Assoc). If you are reading this email, and would like to attend, send a card, or help out, please email me. amberbaby@comcast.net More details will follow! Thank you. Amber April 22,2006 hi everyone! I had a couple of phone calls and some e-mails about Jenn's next step. They were all good questions, so I thought I would try to explain it a little better. I am still learning also, so we will do this together. When Jenn is admitted, she will be properly hydrated via i.v. Once she is at the proper hydration level the chemo will begin. It will be 96 continuous hours. I believe she will get two at a time and then the last one will be given when those two are done-I think I understood it that way. Once the chemo is done we wait for her bone marrow to die. We all know these steps: nausea, vomiting, diarrhea, hair loss, mucositis so severe causing inability to eat and intubation(breathing tube), and watching and waiting for her to become neutropenic. Once this happens, then her stem cells are given back. Since she gave her own, her transplant is called autologous. Then we wait again. Those who know me well will not believe this, but I have gotten pretty good and waiting. During the several weeks after transplant we wait for the cells to grow. This is when she will have to be isolated. Once her counts are on the rise we can breathe a sigh of relief! Okay- Hopefully that will help a little. We will all learn this as we go! Oh, I almost forgot-since they were able to remove so much of the cancer at surgery, she will only need localized radiation!! This can now be done as outpatient! TTFN Michelle April 25, 2006 Today Jenn and Michelle went clothing shopping. Hopefully Jenn will sleep though the night. On The Stem Cell Page You will Find A Update, on Jenn's treatment Plan. And this next stage of treatment, is a tough and scarry time, not only for Jenn, but her entire family. Now I have seen what the Power of prayer and staying strong for this family has done. Now we all must put forth our best prayers and best thoughts for this family. Just letting Jenn and her family know that we are out there for them, will keep them strong. Emails or Sign the guest book. Let them know you are out there. Also a new link . Thank you all for your support and prayers for Jenn and her Family. April 27,2006 The is a Up date On Stem Cell Page. All is Well at home, Michelle is get the house ready for next month. And the party Planners are working Hard. Please check the Party Bash Page. If you would like to get Jenn a birthday present. We have been telling people that Gift cards would be great. After Jenn is back to her old self. And starts gaining weight she is going to need a shopping spree. Monday May 15, 2006 Good Morning and Happy, Post Birthday Party. Thank you to everyone that came early to help decorate, and those who stayed to clean up. Thank you to all that attended. Friends and Family�s. I know that it turn out to be an emotional day for everyone. In addition, to the announcement was a shock for many. However, I needed to respect the wishes of Jenn and her Family. Not to post the news on the website until after the party. It was and is important for Jenn to Have some control over the Cancer, and the announcement was one way. (Just to recap. On Thursday, Jenn was told that the cancer is back and is growing at a fast rate. In addition, Hershey Medical would no longer be taking care of Jenn.) Now with that said. Again. Jenn is not giving up. This morning Michelle called. While on the way home from Hershey. The doctors are calling, N.Y. at Slone Kittering.. There are at least four Clinical trials going on there. First Jenn needs Appointment. Second, she has to qualify for treatment. This is encouraging news. In addition, I took noticed yesterday as some of Jenn�s guest left the party. Some were clearly up set. Some were even angry. And that is ok. But we all need to turn those emotions around. Jenn and her family need positive energy. They need to draw from the strength of there friends and love one�s. We all need to pray for the best. No matter what happens. We also need to stop and smell the rose�s, and give thanks. Jenn and her family have changed many of us. Some in a big way, others, in a small way. So if you wanted to a fund raising project, do it. If you wanted to do something for Jenn, do it. Jenn is not giving up and neither should we. I for one will not stop working or fighting. Thank you all. Keep Praying and Fighting. Tobie. I hope to post some of the Party picture's soon. watch for them on Jenn's party page. May 17th 2006 HI TO EVERYONE, Michelle called. Jenn has an appointment Monday at 12 noon, in New York. As for today, Jenn has a fever, Michelle is taking her to hershey for blood work and a check up in the clinic. As soon as I hear what's going on, I'll up-date this page. (Note) Fl. Mrs.and Mr. Bailey are doing fine, It's a little cool for them,But we'll give them extra blankets.LOL!! May 18th 2006 Morning to every one. Every thing is Ok. Jenn has a cold, and was dehydrated and was given fluids. Jenn is home and was told to get some rest. The family sprits are good and are looking forward to going to New York on Monday. Thank you all for everything. Keep your spirts up. More later this week. Tobie. May 22nd 2006 Happy Birthday Jenn. Those words have a new meaning to me. Today Jenn and her family meet with Dr. Cushener. At Slone Kittering. The Doctors are not ready to put Jenn on any Clinical trials. Instead with the help of Hershey Hosp. A new plan of attach is being made. After the Plans have been worked out, The Bailey�s will in lighten all of us. However, for Today, It is a Happy Birthday. Jenn and the family should be home soon. Pray for safe travel. In addition, take the time to say a prayer of thanksgiving. In addition, stop and smell the roses. And Hug your children.. May 24th 2006 Morning: I have not heard from Michelle yet. I am guessing that they are recovering from there trip. However, I do have some news about some of the fund razing in Red Lion. Today at Noon, some of the teachers are shaving the head for Jenn. The contest was. The kids went and collected money. And they way they determent which teacher would shave there head is by the amount of money collected and placed in that teachers box. It should be lots of fun. The news media will be there. The Kids are Great. And they all have gone threw so much in the past few years. They All have hearts of Lions, and there Parents and community should be very proud of them all. Grandma Bailey is going to take pictures and hopefully we will have pictures. Have a Great Day. May 24th 2006 PM: Jenn will be going to Hershey on Thursday, May25 for more aggressive chemo. She will get cytoxan and topotecan in a four day push. Once she recovers from this round Dr. Kushner would like to see her in New York. Jenn is such a fighter, so she has decided to go ahead with this plan. So-day: one and two she gets 6 hours of cytoxan plus half an hour of topotecan, then on days three and four she gets half an hour of just topotecan. Keep her in your prayers! Red Lion school has been wonderful-they raised so much money, and the teachers actually shaved their heads!!!! My sister, Amber wrote a thank you that expresses our feelings perfectly: We are so thankful that God has moved the hearts of this community. The support has been phenomenal, and we appreciate each and every one of you. We are extremely grateful that God has given us new hope, and that we just might be able to beat this. Please continue to keep Jennifer in your prayers, as we are still asking God for the miracle...to be cancer free. Thank you all: May 29th 2006 Good morning. Jenn is finishing the her 4 days of chemo. These drugs are probably the worst so far. But with the WILL and determined Jenn is carrying on. Jenn is sick and she is in a lot of pain. The cancer is growing above the liver and is pressing on her lung. Hopefully this chemo will shrink the cancer. So we need to Keep Jenn in our hearts. Pray for strength and determination to her to the next step. Whatever that step maybe. On Saturday after noon, Block Buster sponsored a Cook out for Jenn. Thank you at helped out: Bev Price Scott Staff at Block Buster Crica Anderson Jerrid Hartman Randy Bailey Paul Jamison Chris Kindle Zach Stahle Tim Stahle Tobie StahleMay 25th 2006 Check News paper clip: May 31st 2006 Jenn is home. The Chemo made her sick as a dog. Nevertheless, it�s just amazing. On Thursday, the home nurse will come and check her blood work. Then Jenn Goes back to the clinic for planning the next step. However, for now, Jenn is studying to get her learners permit.
Aug 11th 2006 Well it's Friday...... Happy Weekend!!! Don't for get the softball Game on Sunday. 6:30 PM At Moore Field At The Red Lion Jr. High. Come on out and Enjoy the game... Aug 10th 2006 Just a short note. On the 13th the News paper will be closing the guest Book. I will down load it and post it on Jenn's web site. So Please Feel free to Post another Note. Thank you all. Tobie Aug.9th 2006 I know you all are wondering how the family is doing. Well out of respect for them, I can only tell you so much, so please understand. Jenn�s grave marker is being made, with special emblems on it to represent her sports and school. Therefore, this will take some time. The Family plans to attend the Jerry�s Softball Game for Make a Wish. In addition, they plan to walk in the Dr. Segro Event this year. Jared is keeping busy with his friends and just being a kid. (With long Hair) LOL As for Scott, well I do not get to talk with Scott to often. However, he is working hard and is keeping busy like always. Michelle, what can I say? If I could take away her pain, I would. And in many ways, we share a common bond when it comes to losing our daughters. And it�s much more than losing her girl. She has lost. The chance of watching her oldest Graduate from school or College. Teaching her to drive a car. Crying over losing her first love. These are only a few things a mother plans for in her own life. The time that she would share with her daughter, and telling secrets to each other and on one else. And with that said. Michelle is taking one Day at a Time. Michelle is trying to keep busy, but there isn�t a day she doesn�t look for Jenn. And there isn�t a day where she sits and cries. And crying helps relieve the stress. Michelle�s Family is taking good care of her. They are trying to keep her out of the house as much as they can. In addition, Retail therapy helps too. I some time does the heart good to get out and shop, even if you do not buy anything. Yesterday I spent a good part of the day with Michelle. I was teaching her how to make copies of pictures and Doc. And putting them on a disk. She was funny. Michelle sat next to me and was taking notes, then I turned to her and told her, �OK, your turn� The look on her face was terror. However, I explained if I did it all, then she would never do it her self.. Michelle did great. And I told her. � Ha! You�re not as dingy as you thought.� And Michelle is a brave Soul. She took 3, count them 3 young boys out to lunch yesterday. And one of them was my son. And he�s a handful by his self. Michelle you should get a metal. You�ll see more of Michelle as time goes on. However, for now, if you see her. Smile talk about the weather, or events in town. We all know that she and the family are taking there loss hard. And deal with it one day at a time. (I as the Web master And Friend. Have written this entry and have expressed how I see the family. ) Aug.2nd, 2006 Happy Heat wave every one. Stay Cool. As you can see, I have been moving things around on the web site. Jenn is still inspiring people. Jerry�s Food�s in Red Lion are going to have there annual softball game. This year all monies collected, are going to the Make a Wish Foundation, in Jenn name. So we hope to see as many of you out there. Jared will be taking Jenn�s place in the Dr. Segro Run walk this year. I am trying to get more Details. The Family is doing well. Jared has a Job. Taking care of Dogs for a few weeks. In addition, Michelle and Scott are working hard and tying up some loses ends. Writing thank you cards. Now ever, most of all they are enjoying there family and friends. In addition, taking time for them self�s. Michelle would like you take a moment to drop her a note in the web site guest book. July 31st,2006 Today is the Last Day of the month. The Family is doing very good. The Family had a great time in Tenn. Michelle�s Best Friend did not want her to leave. Which I totally understand. I didn�t want her to go to Tenn. However, I�m Glad she and the Family got away. Hailey was so happy to see the Family, and as Michelle would say.� She a little stinker, in to everything, and fearing nothing. Sounds like our own children. I have added a new page. Link on Home or Main Page. I have been asked to do some web site. For other families and Children. But I would like to get some feed back from you, Friends Family and Friends of Friends of Jenn. There are only two questions and a comment box. The information is not open to the public. And the url is your e-mail address. So please help me out. Let me know how I did, and was there any thing I should add, or subtract from the site. Thank you all. Welcome home Scott, Michelle and Jared. Later Tob. July 26,2006 Well I see by the amount of hits on the web site, people are still viewing it�Thank you. So I write a short note. Saturday night was the dinner and dance. What a great time. Jen would have had a blast. The food was great, The Band was Loud, and the Conversation was out standing� The Legion was selling Punch cards, and the winners were donating half if not all there winnings. People were handing over money left and right for Jenn. Scott and Michelle did attend. It was nice just to sit next to my buddy and just shoot the wind. There were many familiar faces and many new ones too. Jeff did a great Job. He truly put his heart into his work. Jeff Rosh. Thank you. In addition, thank you all that attended. On Sunday Scott, Michelle and Jared , have taken so private time. Haley is in Good hands. And miss Michelle very much. Thanks again For checking the site. Tobie Oh� Sarah P. That was nice. July 22th 2006 Tonight We all have the chance to CELEBRATE JENN'S LIFE. And Jenn would want us all to have a good time. This is the time to smile and laugh and sing and dance for Jenn. I hope to see as many of you there. If you don't have tickets. Go to the web page and call Jeff for tickets... July 19th 2006 Jenn's Kitten Arrived yesterday. Haley is getting used to her new home. I hope to get a picture of her this week. Michelle and Scott will be at the Dinner on the Saturday the 22nd. They hope to spend more time with everyone and Celebrate Jenn's Life. So If you don't have a ticket, Go to the link and call Jeff Rosh.... It's going to be a lot of fun.. Thanks Tob. P.S. I will down load the guest from the News paper later on. So everyone has a chance to sign it. Or re- sign it.... July 15th 2006 Today we all paid our respects to the Bailey Family. Jennifer, Looked Better than ever, and so peaceful. The Service was out standing. I have been to many Funerals. In addition, this one I will never forget. It was not stuffy and stiff. The Family walked around and talked to everyone. We walked past the Line of Pictures and displays. And many people spoke.� I remember that day.� And just enjoying the pictures, Flowers and Cards. And before you new it, you were standing by Jenn. And like always, Jenn wanted to be in control. She was wearing here Softball uniform. And the charm bracelet she got on her birthday. And that is the way Jenn wanted. Jenn�s life was short here on earth for a reason. And it is not for us to ask why? But to be thankful for the time we had with her. And the lesson and experiences we shared with Jenn. So today day I thank The Bailey Family for letting me in the life�s, and the time my family and I shared with Jenn. And we look forward to many more years of friendship with the Bailey�s. The Web site will stay open. The Day to Day Archive link is on the Main or Opening Page. The Dinner will still be held. And I will have more information later. Thank you all. Tobie Stahle Aka Web-master Friend of Jenn. July 14th 2006 Today, enjoy the day. The Arrangements have been made. The family is trying to catch up and staying busy. We understand the need to try to help in any way we can, believe me when I say; if it is need, they will ask. However, for now just know that our support for the family is out there is a great comfort to the Bailey family. They thankful for the email and people that signed the Guest book. In addition, look forward in visiting with everyone on Saturday Morning. I would like to thank you for checking the website. All I could do was try. I will keep the website open for as long as the Bailey want it open. Thank you all. TDS Also the News paper Clippings have been updated. Thank you Jeff Frantz A Funeral Service Has been Posted on the Freedom Day Page. 2:45 PM 7/13/2006 The Bailey are home. In addition, are working on the final arrangement . I understand many want to help in any way possible, but at this time, there really is not anything for us to do. I know we all have done a lot of praying in the last few months for Jenn, now we need to pray for her family. We need to keep them strong and health. The family is in acceptance that Jenn is now a whole being. She no long hurts. Last Night Michelle was with Jenn. In addition, Jenn Pass Quietly. Take comfort in knowing that.God Bless. Tobie July 13th 2006 (2:32 AM) This Morning While on the way home from, NC. Jenn Passed Away. In the early morning. I spoke with Aunt Amber and Michelle. Please be Patient. I will post the later today. Feel Free to Sign the Guest Book. Thank you all. God Bless. Tobie July 10th 2006 As you have noticed, there has been no up date. Every thing is going as well as expected. Jenn�s Morphine has been increased again. At this, Time Jenn and The Family are at the Grand banks of NC. I see Jenn catching some rays, sitting in the sand and enjoying the sea breeze. The entire Family needs this time to be together and enjoy each other�s company, without the phone rings every two min�s. I have not heard from them and will not call. Michelle said she would call if there were any problems or by midweek. So for now, relax enjoy the day, as Jenn is doing. I would like to thank every one for posting a message on the guestbook. I will leave the log up. In addition, will post all new messages to Jenn and to the family in a new window. Take Care God Bless. W-Master July 6th 2006 Well, we are home and settled in-finally. Jenn is in bed sleeping. They upped her morphine from three to 6 mg per hour, with additional 3mg every 6 minutes per trigger. She is quite comfortable. The walls of the intestines have air bubbles in them, this is called pneumotosis. Usually it is treated by not eating, resting the bowel and getting TPN(food through IV) However, given Jenn's poor liver and damaged kidneys we will not put her on that. We are going to try to take our trip. One of Scott's friends has a RV and he is letting us use that. It is 40 feet long, and sleeps 5!! Jenn can lay in bed in the back! Pray that these pockets of air behave themselves so Jenn can enjoy herself this coming week. Thanks-I love you- P.S.-I found the perfect verse to use for Jenn's service; But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk ant not be faint. Isa. 40:31 Michelle July 5th, 2006 Last night Jenn was admitted to Hershey Hosp. At the time, Jenn was in a lot of pain. At this time, Jenn�s pain is under control, and is receiving plantlets. The doctors took and x-ray which showed Air in the Bowls, and that is what was causing the pain. Therefore, as soon as Jenn, poops, she can come home and get ready for her trip, of SUN, SURF AND SAND. (Mom and Dad are hanging in there.) Thank you all for sending prayers and wishes to Jenn and the family. July 2,2006 Good afternoon. I just got off the phone with Michelle. Jenn had a good day yesterday; they went to a birthday party for a cousin. We do have some shot out today. ***Baltimore Ravens******* Ray Lewis ********* Jenn is over whelmed with the Mini Football helmet. Thank you� Jenn is a big fan of the team and wishes you and the team good luck in the up coming season. ********* Glen Rock PA. ******** Jenn Would like to thank the person that sent the Book and Video; about Pearl Harbor. This was the next best thing than being there in person. Thank you again. ******* We would like to thank you directly but there was no return address, expect Glenn Rock Pa. Thank you very much� The Arrangements for the kitten have been made. The kitten will arrive after Jenn gets home from NC. Thanks to everyone that signed the guest book. Keep sending you thoughts and prayers. Jenn and the family love reading them. Keep up the good work. And all your prayers. Tobie Web-master. June 29, 2006 Make-A-Wish has been able to secure a beach house for us in North Carolina!!! Please pray that Jenn will be well enough to go. The tumor continues to grow at an alarming rate. We believe it is trying to reach her brain, the left side of her face is "drooping" and she is having difficulty swallowing. Dr. Ungar has put her on decadron to help with the swelling, and also cipro-for a blood infection. We have decided to adopt one of Joe Young's kittens. Scott and Jared and myself will keep the kitten and care for her as well as we can. She will not become a "family member" until we come home from the beach. Joe has also said that if she is too much to care for we can let him know, and he will take her back. A nurse has told me that concern for Jenn's allergies should not stop us from letting her have this kitten, there are plenty of meds to help with that. Our only concern would be a scratch or baby kitty bite. Well, I need to get busy with making a list of the things we will need to take with us. Thanks for everything-Michelle June 28, 2006 Hello to everyone and thank you for hitting the Web-site. 456 in on Monday. That is the most hits on this site on any day. Today Michelle had a doctor�s appointment for her self. And we all can imagine the stress is getting the best of the family and Michelle. In the last few days, Michelle has experienced chest pain and fatigue. However, after some test the doctor believes it to be stress related. Michelle has promised to take better care. Jenn is hanging in there. Even after the two Units of Blood Jenn is still very tired. Jenn and Michelle love the comments on the Guest book. And Mr. Scott is starting to fell a twinge. Keep up the good work. News paper clippings added June 27,2006 Well, this web-site has gotten over 456 hits in one day. Thank you all for checking in. Jenn and Michelle are checking the site., So keep your messages coming. If you have a long message send it to webmaster and I would be glad to post it on the kitten log. I spoke to Mr.Scott yesterday. HE's holding strong Keep the pressure up.... Michelle email me last night so, I'm passing it along... We went to Hershey today, we left at 9am. Dr.Ungar was not seeing patients today but he stuck around after a meeting just to see Jenn-what a great guy! One bag of fluid, and two units of blood later we have a somewhat perkier Jenn. The web site is great! How do I get to see the full message though? Thanks--Michelle June 22 2006 Yesterday Michelle while Jenn was resting, Michelle finally had a chance to sit down and read Jenn�s Discharge papers. And the CT scan report. Michelle wanted this posted so everyone will understand where and how the cancer has grown. (I suggest you copy or print this out and then Google it. Michelle said it would explain it clearly.) Ct scans-overall significant increase in tumor recurrence and metastatic disease in the chest involving the pleura, mediastinum and hilar regions, as well as the abdomen. Pleura-membranes covering the lungs and lining Mediastinum-space in the thoracic cavity behind the sternum and between the lungs, Hilar-chest lymph nodes In addition, Dr. Ungar dose not believe end is immediate, more like a couple of months. He also feels if Jenn wants to go to Hawaii then he will support that, but he wants Jenn to go for her self and not for any one else. Tuesday Jenn went out with Paul and Chris, Scott let the kids take the Jeep and they went to see Scary move 4. Weds. The Mr. Young One of the Pitching coaches stops to see Jenn Yesterday. And He had some pictures of kittens. Well Jenn now wants a Kitten. And God love this girl. She is trying to convince her Dad into a Kitten. And Dad, Well he cannot even make Eye contact. So now, we need to put the pressure on Scott. Sign the Guess book. Send E-mails to Jenn. Send them to the Web master. LET JENN HAVE A KITTEN!! Jenn has even tried using the, C card ( Cancer Card) On Dad. It is funny. Only Jenn ! Would want a kitten even thought she allergic to them. I say let her have it. Well that is all I have for to day. I do have one request. Please send a message by way of the Guest book. I will empty it today. And reformat. Jenn reads it often. And if you leave your email, she will or her mom will reply. Thanks have a great Day. Tobie June 20th 2006 As I see, many have gotten the news about Jennifer. For now, we need to take some time to get used to the news. Also, take some time and be thankful, for everything, take nothing for granted. Jenn is waiting for blood plattels and she has already met with the Hospice people. (They will be hooking up the pain medication for her at home). Jenn will be coming home today. Jenn is very eager to get home and hang out with her friends. Jared will be staying in Florida for a while. Jenn is Hell bent on going to Hawaii, even though the doctor thinks the air travel would be too much for her. Jenn said, �I prove him wrong before and I�ll do it again.� And if I know Jenn she will. So everyone Hang in there. And enjoy the Day, and be THANKFUL. Later Tobie (web master) P.S. If anyone lives near Mrs. Bailey in Florida have her give me a call. June 19th 2006 I received this Email this after noon. There isn't any thing I could add, or take away. So I'm going to post it as is. Thank you Amber. The picture was taken yesterday. From left to right...Michelle, AJ, Peyton, Pap & Jennifer. As you can see your prayers worked, and Jennifer was able to get a day pass out of the hospital so she could spend it with family on Father's Day! We had a great day, and Jennifer was so much fun to be around. Some days she is very quiet and sleepy, but she seemed to have some extra energy yesterday, and we are so thankful for that! We started to get the beginning of the bad news last week. I think I shared with you that the cancer actually grew in spite of the chemo. That was confirmed again Saturday evening. Today we were officially told that it is not looking good for our Jennifer. While we were expecting to hear this, it sure did not make it any easier. When I called my sister Amy to let her know, her tears were obvious...and that is pretty much how our family is feeling. We are deeply saddened and heartbroken. The Dr's are not certain Jennifer will be able to go to Hawaii with her Make-A-Wish trip. Please pray that she will get just strong enough, or her counts will come up, the pain will lessen...whatever it takes so she can go. She really wants to be able to do this with her family. After the heard this, Jenn said "I proved him (Dr Unger) wrong once, guess I will do it again." She remains a fighter. Even with all of the blood transfusions, and there have been a lot, her counts are not where they need to be. We were told this is because her bone marrow is so full of the cancer it is attacking the good blood as soon as it gets in her body. She now has spots of cancer on her lymph nodes, near her heart, and around her diaphragm. These areas were previously clear. The cancer around her intestines, stomach, liver and where her gall bladder used to be continues to grow and spread. She is in a fair amount of pain, and will be leaving the hospital tomorrow with her morphine pain pump to help lessen the discomfort. When I talked with her yesterday, I found myself concentrating so hard on the sound of her voice. I never want to forget that. I just love that child, and I want to remember everything...that should keep me sane until I meet up with her again, should the Lord choose to heal her in heaven. She was sharing with us that she remembers being sent to her room as a punishment, and how she would scream & cry for whichever parent was the one that did NOT send her. It was so cute! I assured her had she been my child I would have rescued her! She also told me I need to keep my son away from her mom, because "Aunt Shelle" is spoiling him and that will make AJ more difficult for me to handle. See...that's the kind of kid she is, always trying to help me out! Evidently she does not recall how horribly I spoiled her as a toddler...I think Michelle is paying me back. While I would never have "wished" this to happen, I can honestly tell you that because of it, there are many family members that have a renewed, stronger, more sincere Faith in our loving God. I can only speak for me when I tell you, I now realize that God needs to be 100% involved in my life. Not just times when I cry out because I want something, or when tragedy strikes, or I need a "pick-me-up", or on Sundays when it is convenient because I am sitting in church. He needs to be there every day, all day...and especially when I don't think I need Him. When things are going great, I need Him. When everything seems to be falling into place, I need Him. When relationships are happy, jobs are successful, and my kid is acting right, I need Him. I know for sure I will need Him to stay strong thru this. If her time on earth is really coming to an end, I will need Him. I am fortunate that I know & believe that this will only be a temporary separation. We have not been given any time frame. If/when her counts come up there are some things they can try. And of course, God is the final authority and who knows what He may have planned! He has surprised us many, many times. (I apologize if this update is not extremely coherent. I have had to stop & start again no less than 11 times. Thank you Dad for calling. Amy, thank you for calling. Thank you AJ for deciding to pee 27 times in the last 40 minutes. Thank you Ray for calling twice. Thank you mail lady for delivering that package.) Please pray. However you see fit, please pray. Amber June 17th 2006 As of the 15th Jenn was still in Hershey. Michelle said that Jenn has been receiving blood products, to help bring up her counts and pressure. Jenn is very tired and is sleeping a lot. The esophagus is infected now. Michelle is hoping to be able to take Jenn out on a day pass, to spend time with her father, and Jenn with her Dad. Next week Jenn and the doctors will sit down, and decide the next step in Jenn�s treatment. So every one have a good Fathers Day. And Keep on praying for the Bailey�s, and the doctors. Take time to embrace the day and be thankful. Later Tobie. P.S. Don�t forget to check out the Dinner Fundraiser link. June 14ht 2006 Well Jenn is still at Hershey. Jenn's blood pressure is still giving every one trouble. Jenn's Grandparents Bailey have to head home. Back to Florida, and Jared will be go along. I haven't heard any other news on Jenn. All I can say is keep praying for the best and Keep the faith. Later Tobie. June 11th I recieved an Email From Jenn's mom. hello from Hershey-Jenn is still trying to recover from the last round of chemo. Her blood pressure is still playing games, and her mouth and throat are not healed yet. Her pain seems to be worse, so she is still attached to a morphin drip. I am hoping to be home for my birthday-but if not, that's okay. Talk to you soon-Michelle Thanks Michelle. I'm not sure what happen to the last update June 9th's. Sorry. June 6th 2006 Good Morning! Yesterday Jenn was admitted to Hershey Medical for I.V. Fluids and Medication. For the last few days Jenn as been struggling with pain and vomiting. The lining of her throat has detached by the chemo drugs. ( This is one of the side effects of the Chemo) And of course goes into the stomach, which in turns causes the vomiting. This in turn causes the pain. And Jenn was unable to keep any of her medication down. But as of last night, Jenn is resting well. They are giving her I.V. fluid, and Pain Medication. Jenn has lost 10 pounds. And it is becuese of the vomiting and the pain. Hopefully now that the lining in the throat has been (removed), now Jenn�s body will start to heal and grow new lining. Michelle will update me when she can. Jenn is really leaning on her Mom, as would any other child. And Michelle does not like to leave her side. Keep on Praying. And don�t for get to thank the good Lord for this day. And Have Fun Today, to the Kids at Red Lion Middle School. To day is Fun Day. So have Fun. Thanks again. Tobie June 3rd, 2006 Sorry I haven't up dated lately, My sevice was down. On Thursday. Jenn had to go back to Hershey for a blood transfusion. (Two bloods and one bag of Platelets) This last round of Chemo is starting show its ugly face. Jenn is in a good amount of pain. In addition, the lining of the throat is starting to burn away. Which we new was going to happen. In addition, when Jenn coughs this causes a lot of pain. And if this wakes her at night, I take a good while before the pain medicine starts to work, and then more time to get back to sleep. Therefore, Jenn and Michelle are needless to are tired. That�s all for now. More Later Tobie I just got some Pictures From the Favorite Aunt. These Pictures are from the, Just for Jenn Day. Thanks Amber. You did a good job.
