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Thank you All for your |
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Updates about Jared and his family
Last updated
June 15, 2003 |
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Prayers for Jared |
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Juliana's Page |
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Thank You for your prayers and/or donations |
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Jared in June |
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Read a Spokesman-Review article about Jared printed on December 5, 2000 |
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Jared Alexander is a cheerful and active 22-month-old boy. Unfortunately, he cannot go anywhere in public. We have to be very careful about who comes to our house. He cannot be around large groups of people including family gatherings, because he is so vulnerable to getting sick. Jared has an unknown form of an immune deficiency in the category of SCIDS (severe combined immune deficiency syndrone.) |
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Read a Spokesman- Review article about Jared printed on April 22, 2001 |
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Jared in October |
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At the end of September 2000, Jared went into the hospital. He was there for a month and spent some of that time on life support. He had pneumocystis carinii, among other infections, and could not breathe on his own so he ended up on a ventilator. Fortunately, he lived through this infection. However, he is at great risk of getting them again. Next time the infection could be fatal. |
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Juliana in June |
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The only thing that has a chance of helping Jared avoid further infections is a bone marrow transplant. Although every patient is different, the cost of that alone, not including living expenses, is $200,000 to $250,000. Jared is very lucky, his 5 year old sister is a perfect bone marrow match. She can be the donor. We have come to the determination that a bone marrow transplant, although risky, is the best chance of survival. It has the possibility of giving him an immune system. It is also very important for Jared to do this as soon as possible due to the severity of his condition and the time of year that is upon us.
A bone marrow transplant involves temporarily relocating to Seattle. Someone will need to be with Jared. We have Juliana to care for. We will have added espenses of relocating to a city with higher living expenses. And we hope to keep our house in Spokane so we will have somewhere to come home. This paired with the added stress of the procedure and needing to be in multiple places at once leaves us in need of financial assistance. There has been a fund set up for Jared at Sterling Savings Bank. Any contribution would be greatly appreciated. Just go to any branch and tell them you would like to contribute to the Jared Alexander Fund or you can mail a contribution to: The Jared Alexander Fund
c/o Sterling Savings Bank
111 North Wall Street
Spokane, WA 99201.
[email protected] |
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Here are some links to find out more about Jared's condition and where he will be going.
The "Hutch" - The SCID Homepage
Immune Dificiency Foundation - National Organization of Rare Disorders
The Bone Marrow Foundation - The Bone Marrow Transplant Support Group |
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