Well, hadn't heard anything from anyone for such a long time so I called Rebecca again today. She had a nice trip to Russia. Said Dr. Cooper was in surgery but she would talk to him when he got out...if not today, then Thursday or early next week. What I really don't understand is how Colleen got her stuff back so fast and it's been so long for me. I guess part of the holdup was the films they wanted. She did say they have them now.
Wes has posted about the stent requirements. Heck, I'm no where's near in those numbers!! It sounds like you have to be almost dead for the stent. Whew. RV and TLC (I think those are the numbers) must be double what mine are...or at least what mine were at the last pft. Come to think of it, I probably SHOULD get another pft since I haven't had one since the bout with pneumonia last year. Of course, I haven't been moving around much (exercising) so.................I just hope working and taking care of animals counts!
8/31/06
Rebecca from Dr. Cooper's office called this afternoon. Dr. Cooper wants to get some testing done (PFT, CTScan, VQ test, ABG and 6-min. walk) down there. She also asked if I'd like to be considered for a TX and I said, "No, thank you; not at this point in the game." Plus, TX cutoff is 65 and I'm only 1 1/2 months from there so it may be a moot point whether or not I want it. So anyway, tentatively scheduled for Day 1 of testing for LVRS on Friday, 9/8 and then more testing and interview on 9/13 at 11:00 a.m.
They also want to do a 6-minute walk test but I know I'm going to die during that so they might as well schedule that first then we won't have to worry about the rest of the testing! I'm not afraid of the testing but right now I AM afraid of the LVRS 'cause my sob has been so horrible lately (even though the sats stay pretty good)...and I don't know what I'll do if they say 'Okay, let's go for it' 'cause I have to think of what I'm going to do for "after-care". Chris (COPD Support) told me she didn't have anyone for "after-care" either but she got a visiting nurse in to help. Hmmm, wonder if such is available up here? Gotta' check into that.
Step 5 completed - SETUP FOR TESTING, FINALLY!.
