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Multiple Sclerosis (MS) is a disease of unknown cause that
affects the central nervous system. The disease is characterized by recurrent
attacks of neurological dysfunction due to lesions in the white matter of
the central nervous system. It may cause problems with vision, strength,
coordination, speech, bladder control, sensation, or other faculties governed
by the eyes, brain, or spinal cord.
Most people with MS are diagnosed between the ages of 20 and 40. The types of problems caused by this disease and the severity of those problems vary greatly from person to person. Precisely how many people are affected by the disease is unknown, but more than 1 in 1000 people in the United States carries the diagnosis.
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Women Living with Multiple Sclerosis... A neat explanation...read this!
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Schwann Cell (SC) Transplantation Trial in MS
Medical history was made by researchers at Yale University School of Medicine when they transplanted myelin-forming cells into the human central nervous system (CNS) on July 17-18, 2001.
Check back at the Myelin Project page for test results, etc.
Send me an email and tell me what you think...
The two-part procedure involved obtaining Schwann (SC) cells from the patient's sural nerve and then transplanting them stereotaxically into a demyelinated plaque.
The sural nerve (short saphenous nerve) lies with the small saphenous vein. It supplies the branches to the skin on the back of the leg and then continues as the "lateral dorsal cutaneous nerve" along the outside of the foot and little toe. |
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Similar article by the NMSS. 'Replacing cells lost in MS'. Also talks about olfactory ensheathing cells (OECs) taken from
the snouts of pigs that are genetically programmed to inhibit immune-system
rejection. They may prove to be a rich source for cell therapies.” |
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Is the Food and Drug Administration approving new drugs too slow? Records show no slowdown in FDA approvals |
Chris Cole...coworker has fundraiser
Mary Marshall from Daytona Beach
A letter to Jon, about his brother, who has MS
I met Kelly Sutton at Daytona, when she was running the Goody's Dash. She's still doing well.
Disabled as entrepreneurs Pilot program in Michigan links social service, business-training programs
Stress and MS... by the Cleveland
Clinic
Multiple sclerosis is an unpredictable, frustrating disease. As such, its
emotional impact can be as great as its physical impact.
The 'ABC' drugs...the links below are direct links to the companies that market these drugs.
Antibiotic May Ease Multiple Sclerosis By Calming Inflammation, Drug May Prevent Progression
..............Saved again, in case the link disappears..........
Vitamin D Seems To Have Positive Effect On MS Patients
Aquatic Therapy for People With Disabilities
Multiple sclerosis patients may be winter athletes
Click here to go to Plasmapherisis page.
Zocor... high cholesterol medicine works on MS?
Click here to go to NOVANTRONE page.
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John Mythen (the creator of Claude, who himself is a MSer) uses a touch of humour, brought about through his cartoon "Claude", to brighten up the topic of Multiple Sclerosis. His book titled "MSing around" compiles his experiences, as well as others', to help people meet the challenge of Multiple Sclerosis. Click here to visit his site. |
Can Bone Marrow Transplantation Help Patients With Multiple Sclerosis?
Current and Investigational Therapies Used to Alter the Course of Disease in Multiple Sclerosis
AARON MILLER, MD, Brooklyn, NY
MS News...International MS Support Foundation
NEW DRUGS:
NEW MEDICINES IN DEVELOPMENT FOR MULTIPLE SCLEROSIS Dr. Herman Weinreb
Brain Cell Transplants Potential Treatment For Multiple Sclerosis
'Oral therapy' holds promise for M.S., arthritis patients
MULTIPLE SCLEROSIS RESEARCH THEORIES AND CLINICAL TRIALS
the drug Eliprodil appears to help repair the Nerve Demyelination associated with Multiple Sclerosis
| More Links: | Do you get the feeling that this page could be organized a little bit better? This page is constantly under construction, and changes as often as I do. It may never be organized correctly until there's a cure for MS. |
| Acorda Therapeutics | ||
| REMYELINATION IN MICE WITH MS-LIKE DISEASE | ||
| Immune system repairs damaged nerves in experiment |
Bone marrow transplants and plasma exchange may hold promise for patients
with severe MS. Combination drug therapies are also being tested. Researchers
are also seeking strategies to boost remyelination and axon (nerve fiber)
regeneration.
Antiviral and anti-bacterial medications and T-cell vaccines are also under consideration. One study involves transplanting myelin-making cells into laboratory animals; another involves injecting antibodies from healthy people into people with MS in hopes of growing myelin-producing cells.
At Johns Hopkins, researchers have learned how to stimulate nerve growth in lab animals without suppressing their immune systems. This is regarded as a critical step toward new treatments for MS. Numerous other studies and clinical trials are underway in hopes that a cure for MS will soon be found.
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Good luck with staying so active and mobile. You are very lucky to have the skills and ingenuity to make the world accessible to you!! Just don't forget about those of us that have to rely on other's brains to get us there!! (Note from a new friend) |
Hi Bruce, You, sir, are an angel in disguise! I also have MS and am mobile, but my scooter is becoming more necessary as time goes by. I love my scooter, but it is too heavy for me to load into my vehicle alone, which definitely makes independence difficult. With the batteries, motor, seat, etc. it takes up a great deal of space and is generally a hassle to transport. Thanks to you, we are not encumbered by the added expense of a conversion van, ramp, or lift -- bless you! The ironic thing is that friends of ours had told us just last weekend about the great scooter transport they had seen when they were visiting in Virginia. They were very impressed with the whole idea and could not wait to tell me about what they had seen. You have made my search complete! I also wanted you to know that your website Take care |
I was diagnosed with MS, an incurable, serious disease, on Friday April 2, 1993. After discussing a lot of options with my neurologist, I asked him what he would do. After all, he was more closely associated with the mechanics of the disease, he had seen what worked and what didn't. I wanted to know what course of action he would take if he were me. I guess I thought that he was going to reveal some secret course of action, that was known only to doctors who were closely related to the disease. He replied that he had no idea what he would do, because he didn't have MS, I had it.
In a later conversation with Uncle Pete, I told him what the neurologist had said. Pete's answer was the nearly the same, flavored with some realities that had more to do with my heritage. He said that having an incurable disease like MS changes the way that you look at life. You don't know what you'll do, until you actually have to make a decision. On top of this, you're Serbian, which means that you can be very unpredictable, and strong willed, even stubborn.
Surgeon General lays out suicide prevention plan
Date: April 21, 2001
The Martinsville Speedway Multiple Sclerosis 250 is scheduled for April 21 at Martinsville Speedway. Registration is set for 9:00pm/et with the walk beginning at 10:00am/et. Organizers are hoping to get at least 250 walkers involved to fulfill the title of the event: the Martinsville Speedway Multiple Sclerosis 250. "The walk is very important to our organization,” said Kim Elliott, Special Events Manager for the National Multiple Sclerosis Society’s Blue Ridge Chapter in Roanoke. “Every year it helps raise the money we need to fund break-through research as well as programs for people with MS.” The National Multiple Sclerosis Society is dedicated to advancing the cure, prevention and treatment of MS and to improving the lives of those affected by the disease. Sixty percent of the money raised in the Martinsville Speedway Multiple Sclerosis 250 will stay within the area covered by the Blue Ridge Chapter. The remaining 40 percent will go to toward national research. "In addition to raising funds for research and client programs, the purpose of the MS Walk is to educate people about MS,” said Nancy Simmons, development coordinator for the Blue Ridge Chapter. “Not a lot of people know what multiple sclerosis is. The MS Walk is a fun way to create awareness for such an important cause.” All walkers who contribute to the Martinsville Speedway Multiple Sclerosis 250 will receive a t-shirt commemorating the event. Anyone raising $75 or more will receive a national MS Walk t-shirt and anyone topping $150 will be awarded a national MS Walk sweatshirt. For more information, or to register for the event, call Mindy Harris at (540) 956-1236 or Lou Anne Black at (540) 956-1148. Walkers can also register by filling out a registration form, which can be found at many area businesses. |