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| The neonatal nurse practitioner and Blake's nurse unhooked him from the monitors and the IVs: we left the vent in place for a few minutes. Mike held Blake first as we talked to him, telling him how much he was loved and wanted and how we would miss him. Then Mike gave him to me and I held him and rocked him. We asked for his vent to be disconnected. The NNP extubated him and we just held our son while he earned his angel wings. On July 8, 2002 at 11:04 am, Blake passed away while he was held and loved by his parents. We stayed with him, holding him and making precious memories and then we left for the long ride home-without our son. Blake's funeral service was held on July 10, 2002. Around 150 people came to pay their respects for our sweet little one. He was then laid to rest in Franklin Memory Gardens-where Mike's grandparents were laid to rest years before. Blake will always be our first child...our first born son. He is loved and missed so much every day. |
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| UPDATE~On November 29, 2004, Mike and I met with a genetic counselor at UAB. The counselor told us she felt that Blake had a genetic disorder called Velocardiofacial Syndrome (or DiGeorge Syndrome) based on the bilateral cleft lip and palate, hemivertebrae, and Tetralogy of Fallot. Of course, we can not confirm this diagnosis 100% since Blake isn't here with us and the chromosomal studies that were performed do not detect this syndrome, as a highly specialized test is needed to diagnose VCFS. We feel this is the closest we will ever get to having an answer as to why our precious baby boy was born with so many problems. To learn more about Velocardiofacial Syndrome, click here. | ||||||||||||
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