Resistance
as Agency
Through my interviews, I have discovered that women are not passive agents
in their menopausal experiences. They actively challenge dominant discourses
on menopause, particularly the notion that menopause is a disease. Darke
(1996) argues that alternative discourses, such as feminist ones that have
become increasingly popular since the 1970s, are one way through which
women construct their identities. If an individual's identity is an on-going,
reflexive project, then menopause is another point at which women simultaneously
shape and are shaped by their culture. It is helpful to use Ortner's (1996)
heuristic device of "serious games" to understand the dynamic process of
the practice of self. As an agent within a larger cultural context, an
individual engages in a "game" in which he or she is inherently limited
by the rules of the game but simultaneously challenges and redefines the
very rules that are imposed. Use of the term "game" implies interaction
between participating players, on both physical and theoretical levels.
Thus the practice of self is driven by the individual agent but localized
within a specific cultural milieu. When certain elements of the larger
structure are internalized and unchallenged, the agent engages in the reproduction
of structure. However, when the agent questions, challenges, and rejects
other elements, as in the practice of resistance, the authority and naturalness
of the structure are endangered.
If we take resistance to mean the exercise of agency, then resistance can
be a conscious process or not. It can also be embodied in several forms
of action. A woman who refuses hormone replacement therapy may not conceptualize
her decision as a rejection of the medical model. In fact, she may not
even be aware of the concepts of medicalization or resistance. However,
this does not mean she is not resisting. She may be refusing medical "treatment"
of her menopause because she fundamentally disagrees with the philosophy
of replacing hormones that are being naturally adjusted for a new phase
of life. She could be challenging her physician's authority based on her
negative experiences with medical professionals in the past.
Resistance is not an all-or-nothing concept. Rather, individuals resist
certain paradigms while accepting others, act in contradictory ways, alter
their actions over time and with respect to space, and resist in different
degrees. Resistance in everyday practice is a sloppy project. This is why
a woman taking hormone replacement therapy can still be resisting the biomedical
model if she, for example, questioned the authority of her physician while
arriving at her therapeutic decision. This does not mean that resistance
is ineffective and the resistor is careless. It is simply the nature of
resistance, the fact that it is a form of agency, and agency is "the sense
that the self is an authorized social being" (Ortner 1996: 10), that makes
resistance similar to the practice of self: an inherently limited, dynamic
project in which the agent vacillates between objectivity and subjectivity.
The very complexity of resistance makes the questions of how, why, and
when individuals resist anthropologically relevant.
With regards to menopause, women are seen as resisting in several ways.
Resistance does not necessarily mean that a certain end is avoided; rather,
resistance is the practice of agency as it challenges the dominant paradigm.
A menopausal woman who ultimately decides to take hormone replacement therapy
may be resisting aspects of the medical model by challenging her physician,
educating herself, and looking for support and information among other
menopausal women. Ultimately, the rejection of the authoritative medical
profession is seen in all of the ways women resist the disease model of
menopause. It is also reflected in women's everyday actions and decisions.
Darke writes that "resistance to the 'disease' perception of the menopause
could also be seen as a 'practice of the self', whereby the women interpret
their own experiences and actively participate in the formation of the
self" (1996: 149). In relying on their personal experiences and knowledge,
women reject the medical "expert systems" (ibid 154) that tend to wrestle
control away from them by allocating menopause to the medical domain.
Saying
'No' to HRT (Hormone Replacement Therapy)
"More doctors
wanting their wives, the women in their lives, to be feminine forever.
To be plump and juicy for the rest of their lives and to calm them down."
(Pamela,
on one reason hormone replacement therapy is so widely promoted)
In the ethnographic data, resistance takes on several forms. Women exercise
agency when they make decisions regarding their bodies and what gets put
in and taken out of them. The importance of the body as a site for the
exercise of resistance can be understood with a brief analysis of power
relations within a society. With increased industrialization comes the
heightened need for individuals at the top of the social hierarchy to exert
legitimate power over others. The medical field itself becomes and espouses
a very specific form of hegemony and in order to insure obedience, the
need to survey and control bodies becomes necessary. An example of the
increasing power of the medical field is what Foucault (1979) refers to
as "bio-power." The medical profession physically and metaphorically controls
bodies by categorizing, labeling, and treating them. This process usually
occurs under the guise of beneficence and necessity. Women's bodies have
historically been not only controlled but also moralized as well as made
deviant. With the body at the center of social relations, it becomes the
site of the operation of power (Darke 1996). However, it is also the site
of resistance to that power. Individuals can resist by taking control of
decisions regarding the treatment and conceptualization of their body.
For the menopausal woman, the decision to reject or accept hormone replacement
therapy becomes the strongest way to resist the disease model of menopause
and to challenge medicalization. By refusing hormone replacement therapy,
women decide to experience menopause naturally and to remain autonomous
over their bodies. The very use of the word "replacement" in the phrase
"hormone replacement therapy" connotes disease and the need to replace
inadequate levels of hormone (Speroff 2000). Women who reject hormone replacement
therapy are rejecting the "cure" for menopause and thus challenging the
conceptualization of menopause as a disease. Decisions regarding what an
individual puts into his or her body seem to be of the most fundamental
type, and thus perhaps the most powerful statements of resistance.
There are several reasons why women reject hormone replacement therapy.
Some women have contraindications, such as a history of breast or endometrial
cancer, endometriosis, or fibrocystic breast disease (Miller 1992). Others
reject the philosophy behind hormone replacement, saying that it only delays
certain inevitable physical changes. Lindsey states:"…it isn't as though
you would give me a pill it would help me through this and I'd be done.
It's as though you're turning the clock back and you'll just have to keep
turning it back the rest of your life…I don't like the notion of taking
a drug that isn't doing anything other than delaying the process." Lindsey
is currently unemployed and cares for her disabled spouse. Another reason
she sees no reason for taking hormones is that her physical appearance
is not a priority and her daily life allows room for any physical discomforts.
Hormone replacement is indeed like delaying the inevitable. By taking hormones,
a woman usually alleviates or completely eliminates many of the symptoms
she would normally experience. Hot flashes and night sweats, believed to
be the result of low levels of estrogen, are minimized or altogether relieved
in many, though not all, women. It is claimed by some that the skin remains
suppler and more moisturized. Perhaps most significantly, a woman with
an intact uterus will continue to bleed, although not in the same way or
for the same reasons she did prior to the onset of menopause.
The continuation of menstruation deserves special attention because of
its powerful symbolic meaning. If one purpose of hormone replacement therapy
is to delay aging, then the menopausal woman on replacement therapy is
being kept young in a very literal sense: she continues to menstruate.
Theoretically, a woman that is burdened by her fecundity is more controllable.
In Western society, she is dependent on certain industries during the years
she menstruates because of the emphasis on hygiene and secrecy during her
menstrual periods. If she has a family, the burdens of child rearing and
caring for the family keep her in the domestic sphere. While she is menstruating,
she should regularly see a physician and have various medical tests performed.
The most direct way to keep a woman "womanly" and within the domestic arena
(and thus subordinate) is to keep her menstruating, and thus responsible
and dependent. It prevents her from experiencing the oftentimes liberating
feeling many women encounter when they cease menstruating. Pamela looks
forward to not having to buy feminine products once she stops menstruating
completely. On her feelings toward menopause, she says: "I'll be thrilled
when I finally stop having my periods. I'm gonna have a party or something."
Two other women I interviewed rejected hormone replacement therapy because
they disagree with premise in Western medicine that by taking a pill, an
undesired state can be eliminated. The logic follows that by taking hormones,
menopause will be "cured." Pamela states: "We live in a culture that really
wants us to take a pill and make everything go away. No matter what it
is." Lindsey concurs: "The notion of 'well, I'm in menopause and I took
a pill and now I'll be twenty-one forever' is just tremendously annoying."
Many feminists in fact see hormone replacement therapy as eliminating menopause
and thus robbing women of a potentially powerful and spiritual life process
(Greer 1991). Obviously, there must be something potentially dangerous
about menopause to those pushing the hormone treatments.
Recent estimates have ten to fifteen percent of menopausal women on hormone
replacement therapy (Kalbfleisch 1996). Only about one-third of these women
use the hormones as prescribed by their physician (Muha 2000). Another
ten percent of women have contraindications. Surprisingly little is known
about the long-term effects of hormone replacement therapy considering
that in the 1990s, the industry was worth 460 million dollars (Lock 1993).
By 2005, the industry is projected to grow even larger as more than twenty-five
million women enter the fifty to sixty-four age group (Weinstein and Tosteson
1990). The first prospective study on long-term use of hormones is expected
to yield results in 2005 (Muha 2000). Most of the studies conducted to
date are misrepresentative: they used only Caucasian, middle-class women
as subjects and lumped together several different derivatives of estrogen.
It is alarming to know that millions of women have been taking hormones
for decades with little known about the future consequences. Instead, both
pharmaceutical companies and physicians focus on the short-term effects
of hormone replacement, which include alleviation of hot flashes, night-sweats,
mood swings, and vaginal dryness.
In the past few years, a new generation of drugs containing both estrogen
and progesterone were synthesized for women with intact uteruses. The addition
of progesterone was believed to decrease the risk of endometrial cancer.
Recent studies question this effect and show that women taking both estrogen
and progesterone may be at greater risk for breast cancer (Muha 2000).
No studies exist on the long-term effects of estrogen and progesterone.
Even the cardiovascular benefit that estrogen is supposed to provide has
recently been called into question. The available information is simply
too speculative.
Not only is there paucity regarding scientific studies, but also the information
available to women is contradictory and confusing. A study by Clinkingbeard
et al (1999) polled 665 women and found that a substantial portion of them
had erroneous information. Sixty percent of the women admitted to leaving
their healthcare appointments with unanswered questions regarding menopause
and hormone replacement therapy. The absence of information on long-term
use is one reason Lindsey does not take hormone replacement:
I'm concerned about
long-term cancer risk, and I'm concerned about how long it will take for
that to show up…this is the kind of thing it might take twenty or thirty
years before you'll have the data that would really tell you. And the other
thing that concern me is that so many women in my generation have used
the birth control pill already for substantial periods. I'm concerned.
I'm not at all upset or resentful that in fact most of my friends and my
daughter-in-law and so forth are on hormone replacement.
For several of the women, the
uncertainty of the long-term effects of hormone replacement and its association
with cancer were reasons for their refusal. Rebecca, a registered nurse
who currently works part-time, states: "Breast cancer is a great fear of
mine because I have taken care of a lot of women with breast cancer in
the terminal stages…it's not something you'd ever want to happen to you."
Lindsey agrees, stating that she wants to avoid putting herself at risk
for cancer: "I guess my feeling back is if I don't have a predictor for
cancer, why would I want to introduce one. I think I'd rather take my own
chances."
The increased risk of stroke due to prolonged estrogen use is another risk
several women fear. Pamela remarks on how her anti-hormone replacement
therapy stance solidified as she read more medical information. She states:
"This is bad stuff. It's killing women. The incidence of stroke is enough
to scare the be Jesus out of me…I've become more extreme on that position
now."
If hormone replacement therapy is the "cure" for the disease of menopause,
then rejection of the disease construction informs women's opinions on
its treatment. Several women see menopause as a natural event that does
not require any medical intervention. For Rebecca, not only is menopause
a natural life event analogous to puberty, but the uncertainty of hormone
replacement therapy is even more reason for her to reject the medical model:
In general, women
are becoming much more informed and aware of all of this, aware of their
bodies and what's happening that they don't want to put anything in their
bodies to tackle this natural process that's going on. It is a normal,
physiological process that's going on. We just don't know the future ramifications
of taking hormone replacement therapy…there must be a reason why we are
undergoing this …"
Lindsey also sees menopause as a natural life process. She states that
menopause is "…nature deciding when you're too old to be a mother. I think
it's perfectly natural."
Pamela is especially aware of the economic incentives intertwined with
hormone replacement therapy. She is aware that physicians are pushed by
pharmaceutical companies to prescribe hormone replacement therapy. As Kalbfleisch,
Bonnell and Harris state: "Menstruation and menopause as 'no big deal'
is no big money" (1996: 290). The economic incentives behind hormone replacement
is one of the reasons Pamela rejects it:
Most individual
doctors that I have met are well-intentioned people that got into medicine
because they want to help folks. The reality of their practice from day-to-day
is that they're so damn busy that they don't really have or take- the rare
only - have or take the time to keep really current on what's going on
in every aspect of research. They read the journals. Doctors are not going
to be the first ones questioning something that's been established practice…
there is powerful incentive…the drug companies offer these guys huge incentives
and keep feeding us this stuff because that's their bread and butter. They
sort of condition a lot of these doctors: 'You think menopause, think Premarin'."
Later she adds: "They play to our fears of getting old and ugly. Well,
hey, I'd rather get old and ugly than die young." Margaret agrees, adding:
To be honest, I
think it is somewhat biased because, as I mentioned, he [her physician]
will not prescribe anything natural. I don't think it is sufficient. I
think they do push some HRT's [hormone replacement therapies] without asking
us what we want or at least giving us the knowledge first so that we can
choose. I think the pharmaceutical companies are the ones who benefit in
the long run and who influence what my doctor chooses to recommend. I truly
don't think I'm given enough information at all and that some of my questions
are dismissed as unimportant.
Oftentimes an economic argument is advanced to support the use of hormone
replacement. For instance, pharmaceutical companies and physicians argue
that the costs of treating elderly women for fractures, osteoporosis, heart
disease, and other problems of the elderly will far exceed the costs of
hormone replacement therapy. Hormone replacement thus becomes a form of
preventative care that is advanced under the veil of economic efficiency.
However, Weinstein and Tosteson (1990) conclude that the economic benefits
of hormone replacement therapy are questionable. Interestingly, the consumers
who are targeted at highest frequency by pharmaceutical companies and physicians
are middle to upper class women who can afford the costs of replacement
therapy. Lock (1993) raises a cogent point by arguing that while heart
disease is associated with poor nutrition, poverty, and poor access to
health care, the women most prone to these conditions are not being singled
out in advertising campaigns. The reasons for this are unknown. Poor women
are the ones who could potentially benefit the most from hormone replacement
therapy but are the least capable of affording it and thus least likely
to acquire it. Thus the economic argument crumbles.
Despite its associations with increased cancer rate, there are scientific
findings that suggest estrogen has an overall positive effect on women's
health. It helps prevent osteoporosis and protects against cardiovascular
disease. Some recent studies have shown that women who take estrogen replacement
therapy have a thirty to fifty percent lower death rate than women who
do not (Greendale et al 1999). For some women, there are obvious benefits
to taking hormone replacement therapy especially if there is a family history
of heart disease or osteoporosis. For other women the physical signs that
accompany menopause - hot flashes, night sweats, moodiness, dry skin, menstrual
irregularities - are unbearable and severely interfere with everyday functioning.
Hormone replacement therapy thus becomes one way by which to make the physiological
signs more bearable and less intrusive. For example, Lia suffered from
six months of insomnia due to her depressed levels of hormones. Her body
felt different; she didn't feel as good as usual: "And I'd just felt like
I was so low on hormone that I can remember that summer saying 'I don't
feel right. Something's wrong. I just don't feel right'. I didn't feel
right…" After being on Prempro (estrogen and progesterone treatment) for
fourteen months, she summarizes how the hormones restored her original
physical well-being and lifted "the fog:" "I can feel my body and it's
just like fine-tuned. Like a car that's been tuned up and the transmission
is running perfectly. It's such a wonderful feeling."
The rejection of hormone replacement therapy is significant on three levels;
first, it is part and parcel of a larger rejection of the disease model
of menopause; secondly, it is a rejection of the authority of medical professionals
and the medical field; and lastly, it is it the rejection of a potentially
unsafe product that is promoted to women as a population. The dominant
message in the medical literature is that all eligible women should
be taking these potentially dangerous substances. Is menopause really that
much of a serious health risk that it requires the use of dubious pharmaceuticals?
Is it even fair to exchange one group of diseases (osteoporosis and heart
disease) for another (stroke and cancers) for the purposes of preserving
youth and femininity (Voda 1992)? These are all issues that need to be
aggressively addressed in the next few years. Women of all ages should
take interest in their future health and how their bodies are imagined,
experimented on, and controlled by forces outside themselves. |