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I was diagnosed with having LPHS when I was only 15.  My mother, Margaret Harris - who is also a founder of the LPHS Foundation - was diagnosed a few months before I was.  I had to take a lot of time off school due to the pain and stress it was causing me and I was on strong drugs.  I spent a lot of time in the hospital  and a lot of doctors were sceptical about whether or not the illness existed and if my pain was actually real.  

I stopped getting pain last summer and I thought maybe I didn't have LPHS anymore - but I have been told that the pain will come back, maybe in my early twenties.  

I am the youngest founder, and I doubt there will ever be one younger than myself.  But don't let that give you a bad impression of me.  I am very capable of helping to run this organisation and I know what I'm doing.  

I set up this web site to help people with LPHS find out more about the illness and to have a place to go to find support and comfort when they have no where else to turn.  My aim is also to have LPHS recognised better by the medical profession and hopefully have it researched better.