Resource Page
For anything related to endometriosis:
The Endometriosis Association
International Headquarters
8585 North 76th Place
Milwaukee, WI 53223-2600
http://www.EndometriosisAssn.org
[email protected]
1-800-992-3636 (North America)
414-355-6065 fax
Endometriosis Research Center
630 Ibis Drive
Delray Beach, FL 33444
Toll Free 800/239-7280
Phone: 561-274-7442
www.endocenter.org
The Center for Endometriosis Care
www.CenterForEndo.com
Endometriosis Association (Victoria) Inc.
37 Andrew Crescent, South Croydon, Victoria 3136, Australia
03-9870-0536
03-9870-3007 fax
Young Women's Health Center
www.youngwomenshealth.org
Preparing young girls for their first pelvic exam
www.youngwomenshealth.org/pelvicinfo.html
SUPPORT GROUPS:
For parents who have a daughter with endometriosis:
Daughters With Endo is an online support group for parents who are dealing with a young teenage daughter who has endo. This caring group offers education, support and share real life joys and sorrows while dealing with endo. You will need to join this group to participate in the discussions. Joining the group is free and you can choose to receive emails daily in your email box or read the messages on the DaughtersWithEndo website.
www.yahoogroups.com - then join DaughtersWithEndo group
For teenagers who have endometriosis:
Teens With Endo is an online support group for teenagers and young women who are coping with endo. This site is just like the one described above except it is the teens themselves who offer support and education to each other.
www.yahoogroups.com - then join TeensWithEndo group
For young women 25 and under who have endometriosis:
Girl Talk is designed to identify and address the unique needs of young women under the age of 25 who have - or think they have - endo. It offers education, advocacy and support to those with endo and their families.
www.health.groups.yahoo.com/group/ERCGirlTalk
For any woman with endometriosis:
Goddessess_Of_Endometriosis is a terrific support group started by a lovely young lady who suffers from the debilitating pain of endo. Her website and online support group is her way of channeling her anger and frustrations in a positive manner.
www,yahoogroups.com - then join Goddesses_Of_Endometriosis group
Local Support Groups:
Many cities have local support groups who meet regularly to share experiences and knowledge about endo. Please check your local telephone directory or contact the Endometriosis Association to see if there is a support group in your area. The Association can also help you to form a support group in your city.
www.ParentsUnitedTogether.com
Section 504 of the Rehabilitation Act
www.ed.gov/offices/OCT/disability.html
Individuals with Disabilities Education Act
www.Ideapractices.org/lawandregs/htm
www.invisibledisabilities.com
Overcoming Endometriosis by Mary Lou Ballweg
Coping With Endo by Robert Phillips, MD and Glenda Motta
Fibroid Tumors and Endometriosis by Susan Lark
Healing Through Nutrition by Diane Shepperson Mills
Heating pads seem to provide relief for many young girls and women who suffer from endo. For those times when a traditional heating pad cannot be used, a ThermaCare HeatWrap for Menstrual Cramps can be the answer. These very thin, very discrete pads are attached to the inside front of the panties (even bikinis) and provide heat for up to 8 hours. These may be purchased in your local pharmacy or stores such as WalMart or Target. For further information on how these work, please check out their website below.
www.thermacare.com
