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Hi, my name is Stacy Spence. I am 27years old, from Wanganui, New Zealand.

I have Duchenne Muscular Dystrophy and have been trached and on a ventilator since March, 1999.
I live at home with my Mum, Dad, two cats and two dogs.

During March, 1999, I began having trouble breathing so my parents took me to Wanganui hospital, where I spent the next ten weeks in ICU. A tracheostomy was performed so I could be put on a ventilator to help with my breathing. I am now on a PLV100 ventilatorabout 20 hours a day, and for the rest of the time I breathe on my own.

The main reason I spent ten weeks there was because I had to have an operation so that I can be fed through a feeding tube with a special formula called Jevity.
It is administered during the night while I sleep.

I can still eat a little of what ever I like. It has helped me put weight back on, as I was having eating and bowel problems before going into hospital.

As my bowels were causing me a lot of problems, an ileostomy was also performed while I was in hospital.

These operations have improved my life immensely.

My life has never been better.

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