Lil Miracle Heart
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We would like to invite you to Lilly's Yahoo Group.
This group was created for children with a Congential Heart disease.
Lilly was born with Hypo Plastic Left Heart Syndrome, which basically means the left side of her heart did not grow in utero.
There are many un-informed people about this heart defect and hopefully we can help change that. We hope to educate and give hope to those who are pregnant and have no where to turn for the valuable information that can save their child's life.
We know that there is more available than compassionate care and hope to give you the knowledge you need to be active in the search for a better future for your child. With a course of surgeries, these children can and do live long and healthy lives. The Fontan is just one of these three and sometimes more surgeries.
Please join us in the Lil Miracle Heart Group to learn all we can from each other in ways to fight HLHS.
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