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| My daughter, Veera was born on the 5th of August 1993 with an unknown brain-injury. She has severe epilepsy that doesn't respond to medication. She has microcephaly. It means that she has a small head. She is fed by a "gastro-stomach"-a tube that is in her belly, because she can't eat with her mouth. She doesn't know how to move her limbs and she is very spastic(stiff). Veera is deaf and blind and she doesn't seem to recognize anyone. |
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| When our son Vertti died in May 1995, I was so shocked that I was unable to take care of Veera, that needed continuous attention (actually I couldn't even take care of myself), so she was placed temporarily to an institute. She is still there and is taken very good care of. Nowadays Veera is even more difficult to nurse, so it wouldn't even be possible to take her home anymore. Veera is the only one of our 6 children that has natural auburn, curly hair inherited from my mother. Veera also has beautiful, long eyelashes that would make any woman jealous! |
| After several months of examinating, the doctors came to the conclusion, that a virus called cytomegalo had managed to go through placenta during the pregnancy and damaged Veera's brain. No-one could tell how she would come out, and not even if she would survive. We were told that we would be free to have more babies if we wanted to. So, Vertti was born when Veera was only 15 months. Read about Vertti's story from the page of his own. At this point I want to add that in July, 1999 we had a baby boy, Vinski, that was similarily brain-injured as Veera...and the doctors still don't know why... |
| When Veera was 6 weeks she began to have epileptic seizures that lasted for hours, and she was finally taken to examination at the children's hospital. After 7 years of experimenting different combinations of medicines she still has dozens of seizures a day! Veera was 12 days when she opened her eyes the first time and you could tell right away, that she didn't focus her eyes anywhere. Later we were told that the nerves in the bottom of her eye had become stunted. Veera was blind. Veera didn't have the suckling reflex. I used to lay her down on her back and I milked my breast straight to her mouth, hoping she would start sucking one day. I continued that for 6 weeks! (Can you imagine!) |
| VEERA LIINA ILONA When Veera was born I couldn't help thinking that there was something wrong with her. She was "nodding" while after while. I asked the nurses at the maternity hospital what it might be, but they just saw nothing wrong with her. The nods were infantile spasms-early infantile epilepsy (that's what I found out several months later) Veera also didn't open her eyes at all. So the newborn sleep a lot, I was told (well, when she was awake she still didn't open her eyes!) So later that year they admitted that she was blind. She also didn't know how to suckle. They told me that I didn't know how to breast-feed her, that I just had to practise harder (- and I had just 7 months earlier stopped breast-feeding my firstborn!) Veera was sent home from the maternity hospital as a normal, healthy baby and I was very confused... |
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