Obituaries
Hydrocephalus
Hydrocephalus Association Homepage
NORD - Hydrocephalus
Listserve - To subscribe, send an e-mail message to [email protected] .
In the body of the message type: subscribe HYCEPH-L Yourfirstname Yourlastname
Holoprosencephaly
The Independent Holoprosencephaly Support
Pages
Mailling List - To join the HPE email list,simply send a message to: [email protected] with SUBSCRIBE in the
subject.
OneList Listserve
http://www.onelist.com/community/holoprosencephaly
Miscellaneous
Exceptional Parent - Parenting your child or young adult with a disability or special healthcare needs.
Welcome to the March Of Dimes Home Page
National Organization of Rare Diseases
Rare Diseases Clinical Research Database
Healthfinder - From the Department of Health and Human Services
NORD - National Organization for Rare Disorders Inc.
Administration on Developmental Disabilities (ADD)
Administration on Children and Families U.S. Department of Health and Human Services
Consortium of Developmental Disabilities Councils (CDDC)
National Association of Developmental
Disabilities Councils (NADDC)
South Carolina
South Carolina Department of Disabilities and Special Needs. Assist people with disabilities in meeting their needs, pursuing their individual possibilities and achieving their life goals; and minimize the occurrence and reduce the severity of disabilities through prevention
BabyNet (a program of DHEC) is South Carolina's
early intervention program for infants and toddlers with disabilities and delays. As the BabyNet Central Directory, SCSIS serves as the central point of
contact for families and agencies involved with these children. Information Specialists
talk with parents, families or service providers, assess the situation, and make referrals
to the appropriate BabyNet Family Service Coordinator.
Family Connection is a statewide organization of parents helping parents of children
with disabilities, developmental delays, and chronic illnesses. Some of these children
have Down syndrome, seizure disorders, cerebral palsy, and heart disease, but help is not
limited only to these groups. Family Connection establishes parent networks wherever there
is a need.
Home | Kerri's Story | Links | Pictures | Poems | Sign Guestbook | View Guestbook
Awards & Webrings