Links

Dunamis,Inc - Where Robbie goes to work with an Assistive Technology specialist, they have an online catalog and are a good resource of Assistive Technology devices and software.

HDIS - Where we get our incontinence supplies from for Robbie.

Deming Designs, Inc. - Where we got Robbie's Beach Wheelchair for trips to the beach.

Special Child- for parent matching and a host of information regarding all types of disabilities.

Adaptive Mall-For Tumble Forms Wedge and other adaptive devices.

Elaine Timbers - Lesch-Nyhan Syndrome Foundation - 847-234-3134

Medco medical Services - for Splints 866-352-7754

Dr. Hyder A. Jinnah at Johns Hopkins [email protected] 410-614-6551

Matheny Bulletin - Matheny School and Hospital, Peapack, NJ 908-234-0011

Geneclinics.org - article written by Dr. Nicklas, Dr. Jinnah and Dr. Nyhan in Sept 2000

Douglas Medical Equipment - [email protected] 770-368-1856

Medtronic - Where we got the Baclofen Pump - 800-328-0810