Guestbook Archive May 31 2007

Name :   Becky Your email address :   [email protected] Comments :   Very good site. Name :   Kathy Ciociola Your email address :   [email protected] Comments :   Well done, Rebecca! Name :   Mary-Ann Baron Your email address :   [email protected] Comments :   I was glad to see this site as my duaghter has just been diagonised with En,it will help us understand the condition and hopefully there will be a cure for it, thanks so much Name :   Carrie B Your email address :   [email protected] Comments :   Hi Rebecca!!! WOW ...awesome site!!! :-) Keep smiling! Carrie Name :   Nadine Your email address :   [email protected] Comments :   I was recently diagnosed with EN. I woke up one morning with painful shins like someone kicked me. It progressed rapidly over the next few days into my elbow and top of right foot. My doctor doesnt have much info for me. In fact he had to check his books Name :   R.Bauer Your email address :   [email protected] Comments :   Just trying to get information about Sarcoids. Dr. seems to think that I have it. I am doing research on the internet. Any info you can send my way would be great. Thank you and God Bless. Renee Name :    Your email address :   [email protected] Comments :   Hi Rebecca, just stopping by to see how you are all doing. Im still in remission and seem to have developed a technique to stay that way. Regards, John from Canberra and Sarcoidbuddies Name :   Heather Your email address :   [email protected] Comments :   Rebecca, i want to thank-you for taking the time to start this group and help others like me who know so little..as i tell my children its not what happens that matters its how we respond to it that makes all the difference! Name :   Rebecca Your email address :   [email protected] Comments :   Hi Everyone, Please help raise money for the Erythema Nodosum Research Fund by searching the Internet with GoodSearch: http://www.goodsearch.com/ Thank you! First Name :   heather lee URL :    Comments :   I discovered EN in 1999 had it in 2003 and started now again and would like find out more First Name :   Sarah URL :   [email protected] Comments :   Im glad to find this site. It is kind of hard to navigate. I must say when I read some of the others say they have had this for years I wanted to cry. You see I am a welder and I have to stand for 8 to 10 hours for 5 or 6 days a week. The swelling of my f First Name :   Rebecca URL :   http://health.groups.yahoo.com/group/erythema_nodosum_Group/ Comments :   Hi Everyone! For daily updates, join our EN group. Need help signing up? email me and Ill add you to our 1100+ members. Love, Rebecca [email protected] First Name :   jaime URL :   [email protected] Comments :   i just wanted to say to anyone that has EN if you are not a part of the group then you should join. i have had EN for almost two months and have not been a part of this group for long. But you should join because joining this group has made me feel alot b First Name :   Angelica URL :   http://www.dirsys.info/tinkerbell-tattoos/ Comments :   very nice site and guestbooks but please give more regular updating First Name :   Kolette URL :   [email protected] Comments :   sorry, didnt leave my address last time First Name :   Kolette URL :    Comments :   I was dianosed with EN 4 weeks ago, caused from strep throat and was told that the EN would last from 2- 6 weeks. Thank you for this wonderful website. What I am learning from reading others comments though, is that this disease does not go away. Am I cor First Name :   Dot URL :   [email protected] Comments :   I just read your story Rebbeca,i am also a member of your club,and i have the same thing you have,thank you for starting this for all of us that have this, First Name :   Pamela URL :   [email protected] Comments :    First Name :   Betty URL :   [email protected] Comments :   I am so happy so find a website that hopefully can help my daughter find the right treatment for her erythema nodosum. First Name :   Sabrina URL :    Comments :   hi there I was looking around and it is great that there are other people like me. I noticed EN back in Sept 2000 and I have been getting them since. Once in the winter and once is the summer. I sucks so much. Mine are getting worse though now they are c First Name :   Ann URL :   [email protected] Comments :   Thanks, I really enjoyed reading your web page. Like yourself I havent met anyone who has this condition or even knows how to treat it. I was brushed aside by my G.P. (in all fairness they didnt know what to do with me)and no one believes how bad it gets. First Name :   Genny URL :   [email protected] Comments :   wow!EN is allien to me. Butvasculitis an PG (pyodermal gangrenosum) hhave presently ecome far too Familiar. This is my first attempt to start some research. hopeto be back , in tghe mentime my thoughts and prayerswill be with all of you........gen... First Name :   susan URL :   [email protected] Comments :   \am asufferrer of en and sarcodosis and would love to talk with some other people with the same please email me First Name :   susan URL :   [email protected] Comments :   \am asufferrer of en and sarcodosis and would love to talk with some other people with the same please email me First Name :   Amber URL :   [email protected] Comments :   Hi my name is Amber I am 24 years old and was just diagnosed with erythema nodosum, systimatic with what we found out was a even bigger nightmare I also have sarcoidosis and IBS. I would love to talk to someone. I have done research about all three and wo First Name :   lisa URL :   snuggiesnuggie@yahoo co.uk Comments :   Thank goodness to be able to understand what my friend is going through. Hes a male in his very early 40s. First Name :   laurie URL :   [email protected] Comments :   I am having trouble signong up with a pass work thru Yahoo..I have EN and I want some info please Thank you Lala First Name :   Bee URL :   [email protected] Comments :   Your site and the en group brought a tear to my eye as i have suffered with en for 14 years with no one understanding and no cure, as its not a common disease, nice to know there is support out there, feel free to email me to talk, First Name :   sonja URL :   [email protected] Comments :    First Name :   sonja URL :   [email protected] Comments :    First Name :   sonja URL :    Comments :   I have EN for 2years. But are there other problems could be involved. Like chest pain, charlie horses in heels, pimples in hairline, upper resp distress, and double vision, and dirrahea I am at my witts end. would appreaciate any information. Im starting First Name :   ann rickard URL :    Comments :   could you please write to me at my e mail address [email protected] would be great to talk to someone who knows what im going through ann First Name :   annie Rickard URL :   [email protected] Comments :   I get the bruises on my arms legs(upper and lower) and ocasionally on my stomach and butt. nice to know im not the only one First Name :   diane URL :   [email protected] Comments :   Your site is not ready? First Name :   Diane URL :   [email protected] Comments :   I want to join the group, but my old alternative email has been closed. Would someone contact me at [email protected]? First Name :   Anmarie URL :   [email protected] Comments :   I am SO glad that I found your web page. I hope to communicate with you & other members ref: EN and PG. PG is the nasty beast that I battle. God Bless & Good health! First Name :   Miss Tsang URL :    Comments :   I have lots of very small what looks like bruises all over my legs, theyre not lumpy or sore but my doctor is certain that it is EN. My legs used to swell up really badly too, has anyone else experienced this? Im really scared theyll never fade, has anyon First Name :   Julie URL :   [email protected] Comments :   After 3+ years of doctors telling me they did notknow what was wrong with my legs I stopped going to them. I did a lot od research on the net and found out this is what has been my problem! Thanks for the info! First Name :   Kathy URL :   [email protected] Comments :   7 weeks ago diagnosed with EN and we believe the trigger was celebrex after process of elimination-am healing well and was not aware it was such a serious and possibly life-long condition. After prednisone which made me ill my MD put me on steroid cream-- First Name :   Janice URL :   [email protected] Comments :   Hello Rebecca, Thank you so much for starting this site. I have been suffering for 2 yrs with EN. Its hard to explain to others. I knew of no one else with EN until now. I signed up to join your group. Looking forward to future chats. First Name :   benjamin URL :    Comments :   This site is very helpful. First Name :   Jim URL :   http://[email protected] Comments :   Very, very good and informative. Excellent Job!!! First Name :   Gail URL :   [email protected] Comments :   I am a member of the Polyarteritis Nodosa group. Ed Becker is the owner and moderator. There are over 300 of us from all over the world. This is a fantastic group and how wonderful to be able to converse with others who have PAN. Your moderator has become First Name :   Barb URL :    Comments :   Thank you. For the first time, I know of someone else with EN. First Name :   Cobalt URL :    Comments :   {This might have to suffice for a profile, as getting/having a Yahoo accuont doesnt mix well with my webtv. It bogs down all over it and downright refuses other parts, so Im currently the Owner of a Chat Messageboard site at Talkcity.com called The MetaPh First Name :   em URL :   [email protected] Comments :   Hi rebecca good luck with your site and polls First Name :   Heather Collins URL :   [email protected] Comments :   Good Job! I really hope this helps a lot of people. EN is not a pleasant disease to deal with. Just knowing there are people out there that we can talk to and lean on for support when needed is a great feeling. First Name :   Frances URL :   [email protected] Comments :   You did a great job in creating this website and I am proud that you are my cousin. Some family! EH! and I mean that in the nicest way! First Name :   Claude Seligman URL :   [email protected] Comments :   A very friendly and helpful site! I hope you can reach more people with this...and maybe get better medical research done as a result. First Name :   Jeffrey S URL :    Comments :   Nice job