What is Next ?

According to preliminary discussions with Dr. Hedden fine tuning of her hip is the next step in resolving her seating problem. We won’t get into that discussion just yet except that we have previously tried a Botox injection in the left abductor muscle. That had a short term wonderful affect allowing much greater range of motion but at a cost of $700.00 This worked for about 10 weeks before it quickly wore off due in part to the size of Katie and the size of the muscle injected. This apparently is a very safe procedure as botox is injected into an isolated muscle with no affect on any other parts of the body.

Looking Back after 8 months:

When you see Katie sitting upright whether in her wheel chair, on the edge of her bed, you see a noticeable difference. That alone makes the operation worth it.   The most overwhelming reason we consider the operation to have benefited Katie's quality of life is the comfort that it has brought.  Katie can now sit for extended periods (all day at school), or lay in her bed without requiring numerous position changes.  This has made taking care of Katie a little easier and certainly more rewarding.