entry5

Sunday, May 27, 2001

I arrived home Wed. night. There was enough time on Wed to head back and not wait until Thurs, so that�s what we did. My grandparents and cousin came and picked me up. I have been really tired since getting home. My arm has been swollen and aching from the removal of the picc line, so it has been uncomfortable to sleep with. I saw friends yesterday. We went and saw Pearl Harbor, it is a very good movie. Then we went out to eat and to an open house for a friend from hs band. It was a very long day, and I felt pretty terrible. What else? I managed to get myself to church today. There were so many people that came up to me asking how I was and everything. I�m still not very good at answering the �how are you� question. That�s about it. I don�t have any plans for this week except for my grandparents visiting tomorrow, so hopefully I will be able to rest and feel better. Ok that�s it.

July 13, 2001

Wow. It has been a long time since I updated this page. There hasn't really been anything to update you on. I did start a new medication which has replaced the ganciclovir. It was just approved by the FDA in April and has just become available in pharmacies. It is called Valcyte. I take 900 mg once a day. It is supposed to be just as potent as the IVs were. I haven't started feeling any better, yet. Dr. Lerner isn't surprised by that though. As far as that's concerned, everything is looking good, and I'm looking forward to feeling better here in the next few months. My right arm has actually continued to be swollen since the PICC line was removed, so the dr wants me to get an ultrasound of it just to make sure there isn't anything wrong. I am going to see NSYNC in concert on Aug. 16th. I am really looking forward to it. I got handicapped seating so I don't have to stand the entire time-because, let's face it, how many people are actually going to be sitting during that concert. I am glad I'm going, it gives me something fun to look forward to. It is hard to want to keep going on like this without something to look forward to. Well, that's about it.