The thing of it is, SuperParent only exists in comic books. (And if he/she doesn't yet, someone ought to take the idea and do something with it.) You are the only one available to do the job. And tv role models notwithstanding, what it takes to get your job done is not bright-eyed bravery, but common sense and adapting your lifestyle.
One trick to make the hurt wear off is to use the words you dread a couple of hundred times. Just tell yourself: "My child has Duchenne Muscular Dystrophy. My child has Duchenne Muscular Dystrophy. Duchenne Muscular Dystrophy ..." After a while, the same thing happens as with swear words: you can use them without any of the initial feeling. It worked for me. I now can talk about what my son has, and I swear like a sailor.
