| Name: Pam |
My URL: Visit Me |
| My Email: Email Me |
Do you write poems: used to |
| Age: 26 |
Are sick with any of the Diseases on this page?: yes, cfids, tmj |
Cool site ;) Thanks for sharing. Pam
12/12/00 02:30:09
| Comments: Hello Rachel, I am really impressed with your site and the wealth of information you provide. I had CFS/FMS and Migraines but finally found a doctor who helped me overcome each one. I am 100% again. I am currently writing a book to help others learn what I have over the years. I would like to know where you found the information you have listed on EBV, Migraines, etc. Thanks, Dan |
| Comments: Thank you very much Rachel for this info. You are helping a great deal of people with just simply supplying this information. You are a very special person with a heart of gold. You are reaching out to so many people with this website. Thank you so ve y, very much. You and your Mom are obiviously two in million... |
| Comments: Thanks |
| Comments: Such wonderful information & set on a lovely page. Love the pics of your animals, I have a bratty cat myself. Wishing all the best & strength for the future. darkfae |
| Comments: i am a mess, your page is very good. hang in there. i am real impressed. with tmj tho, here are my symptoms: chewing just moderatorly gives me a major flare. breaks teeth, i have 2 completely broken and now at least 3 more teeth are cracked. they hurt, and they didn't before. ever hear of this? |
| Comments: Thanks for the info on EBV. I just got diagnosed with the rare nasal nk/t-cell lymphoma with associated EBV and am learning all about it. I got here from Yahoo. |
| Comments: Thank you for making things like this so people can read about what iam going thru every day for over 9 yrs, for many yrs friend /family have denied for the most part that i have been sick i believe things are looking up for us but still a long way to go |
| Comments: i thinkits a great thing that you did, creating this page. i always wanted to do that. i have been dx'd for about 3-4 years now. and i have been constently trying ot find ppl my own age or there about who have the same dissabibility i do. i have a ? for y u.. are you able to go to school still? i barley made it through school.. i was out alot.. my junior year i was out over half the school year tkae care Raina |
| Comments: I have a disabilities resources site and I think your site would be very useful. Please let me know if I could add it and what category. Click on my url to see what the categories are and don't forget to sign my guestbook. After all I signed your guestbook. Best wishes Lynda |
| Comments: Hi, Unfortunately, I have all the problems that you have, plus TMJ, burning mouth syndrome, irritable bowel, etc. Oh yes, big time drpression, too. I have had these problems, starting with fibromyalgia in 1975 when I was 35 years old just after a hyster ctomy. It's been downhill since then. At the onset, I lost 20 lbs. and have never been able to regain them. I have been to every type of physician that you could mention. I have been through the Mayo Clinic, and four excellent pain clinics in the Chic goland area. In addition, I have been to chiropractors, had 9 months of acupuncture, hypnotism, have seen psychiatrists and psychologists, taken probably every medication you could mention and the end result is that my pain has not gotten better over the years, to the contrary it has gotten steadily worse. I would love to be added to you newsletter list and please feel free to e-mail me at any time. I'm sure you've probably heard this before, but if they can send men to the moon, why can't they come up ith a medication that will at least give suffers like you and I some degree of relief. God bless you, [email protected] (Marilyn) |
| Comments: You are one of the most couragous people that I have ever had the pleasure to speak to. To be 16 and have so much knowledge, Nothing is going to keep you down. All my prayers are with you. Jeri And when you find the cure, Let me know. |
| Comments: I was diagnosed with fibromyalgia last fall(1999). I was a person who accomplished much in a day; living with my daytimer. This has left me with maybe 1/3 of my strength. |
| Comments: LOVELY SITE/WEBPAGE RACHAEL. CONGRADULATIONS. AND THANKS FOR ALL YOUR WORK. |
| Comments: Rachel, thanks for helping me out. In life, things can feel so miserable until you realize that you're not alone. And when you don't realize how alone other can feel, you lose touch with your humanity. You helped me get back in touch with my humanity. |
| Comments: Hi Rachel! Nice work here on these pages, and nice poems too. I'm impressed. Keep up the good work, and take care. SandieAngel :o) |
| Comments: I had no idea you wrote or even had this personal page, Rachel. Wow- it is so nice. I am very impressed. So, where are the poems? All this time, I've been on your mailing list and never knew you wrote to. Please send me some! Thanks and keep up the great work - you do a GREAT MUCH NEEDED SERVICE And I am forever in your debt for all the links and articles and valid information you pass on. You make my world better by the things you do. Peace, Leisa*) |
| Comments: I have been a farmer all of my life & a mother for over half of it. Was diagnosed 2 years ago. Have been on my own with it ever since. Our local Dr.s leave alot to be desired since I am not blindingly ill to look at, my pain is my problem. |
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| Comments: From around age 8 onward I've been in the "club". Thank you for your site; it is an inspiration. I read your book-review in the July/August 1999 FMAGW newsletter and decided to track down your page. Life's been tough for me at times, but somehow I've been lucky. I'm working full-time at the Library of Congress now, and am married (5 years) and can honestly say, I am happy. I wish happiness to you - and a life full and rich with pain-less experiences. |
| Comments: Cool site ;) Thanks for sharing. Pam |
| Comments: Thanks Rachel, Very nice web page. My mother, age 58 and suffering from depression her whole life, has just been diognosed with the Epstine-Barr Virus. Thanks for the service you are contributing to the WWW! And Thank you for the EBV info! God Bless, Tim Danielewski |
| Comments: Great page, it has helped me alot in under standing this strange Virus. You may have helped me in getting into the U.S. Air Force with this info. thanks :) |
| Comments: You have a very nice page! It must be an inspiration to those who share the illnesses discusssed here. Keep up the good work! |
| Comments: Dear rachel, i would really like to hear from you. 5485lundy lane so.vienna,ohio45369 |
| Comments: Way to go ! on the website Rachel. I have a 15 year old son who is very supportive to me. I can't imagine what it would be like for him to have cfs- Take care and keep up the good work! Sunny P.S. I am a member of CCFS, an e-mail list group from onelist.com Amy May is a member who just turned 18 and has had CFS since she was 14. let me know if you are interested in our group and I'll send you the link- |
| Comments: Great website you have done a nice job! Do stop by and visit us and sign our guestbook. Plus our site offers many Christian and Family Resources and a reciprocal links connection and more! God Bless.. 
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| Comments: Shalom from a fellow member of the Messages with a Meaning WebRing. I want to wish you a happy new year and pray that this year will be more effective and productive for you than last year was. Take care in Y'shua. |
| Comments: AMAZING...AMAZING...AMAZING! Keep it up! :o) |
| Comments: I'M DOING SO INVESTIGATING FOR MY EX GIRLFRIEND WHO IS STILL VERY CLOSE AS A FRIEND. HAVEING A CRONIC ILLNESS AND MANY LONG TERM COMPLICATIONS FROM IT I UNDERSTAND WHAT ITS LIKE TO BE SICK. SO I WANT TO FIND OUT AS MUCH INFO ABOUT EBV TO HELP HER AS SHE HAS HELPPED ME IN MY TIME OF NEED. WE FEEL THIS ILLNESS SHE HAS WAS PROBABLY THE WEDG THAT DROVE US APART. MAYBEE WE CAN FIX IT BY UNDESTANDING THE NATURE OF THE BEAST. TY CHAD |
| Comments: Hi, I saw your link on FMily Photo Album. I enjoyed your site. Come see my web pages and sign my guestbook. Thanks for sharing your great web pages. [email protected] |
| Comments: My 20 year old daughter was diagnosed with FMS at 17. I am a supportive single mom and have done a fair amount of research in order to cope and help her do the same. She is now the single parent of a one and a half year old daughter. The three of us l ve together. I have done a great deal of the care of the baby. Recently I have been feeling worse and now realize that I probably have fms also. Finding and reading at your homepage has given me HOPE. I plan to return. God bless you. |
| Comments: Thanks for putting together this great site. It is very informitive and gives people an idea of what to expect when they are diagnosed. |
| Comments: Thank you so much for all the information on the Epstien Barr Virus. Never thought such a young person could give me so much information. My 3 year old nephew is very ill, he is in Saint Judes Hospital in Memphis, Tennessee. They have ruled out cancer o a 98 %, and believe he may have the Epstien Barr Virus, so I am trying to find all the information on it that I can for my sister. We are praying that it is the Virus and not Lymphnoma. Will say a prayer for you, you are a real angel Rachel! Thank you again so much. |
| Comments: Rachel, Thanks for such a wonderfully informative page. You may not realize it but you helped me understand a lot of my illness tonight. I suffer from FMS and it is very difficult. I also have depression as well as some of the other diseases listed on your page Thanks so much Hugs Lexis |
| Comments: Hi Rachel! I really like your webpage and I think it gives a lot of people good information. I think I know some of the things that cause fibromyalgia even though no one beleives me. I just wanted to tell you that one day I hope to be able to cure you and everybody else!) R.M.M. |
| Comments: this is a great page. I found it while surfing and intend to add a link to this site on my children and Teens page. There is so little out there for the younger set and they need to connect with those who are dealing with the same life issues they are. Thanks. Turnip |
| Comments: Hi, Love your page. I don't have one yet. Trying to get my home computer up. I have Fibromylgia at least 25 years, before they had a name for it. However, I am stilll searching for help and get tired of doctors wanting to give me coretsone shots. Good luck. |
| Comments: Hi Rachel, Thanks for signing my guestbook. I just took a visit to your web page and must tell you that you've done a great job! Lots of information and laid out very nicely too! Keep up the good work! |
| Comments: Thank you for visiting my site and putting my site on your mailing lists. I'll put a link to your website on my page, I love it. I think you've done a wonderful job putting together various disorders linked to FMS. |
| Comments: cool page...it's awfully slow on my computer, though. And HOW on earth did I get here? |
| Comments: Rachel, You have done a wonderful job with your page! I am impressed and encouraged by your attitude. We cannot fix fibromyalgia but we can work to control it. Take Care & Feel Good! Elizabeth Rose Fight Fibromyalgia: Friends Help Friends! |
| Comments: Rachel, Oh my I just signed your guest book and discovered that I put my home page url in wrong. I wanted to come back and fix it. If you geta chance please stop by my home page and check it out. take care of yourself and keep up the GREAT work. Shelia |
| Comments: Rachel, You have done a wonderful job on your site. You have so much helpful information. Keep up the great work. I will keep you in my prayers. Your Fibro friend Shelia |
| Comments: Rachel...you have a beautiful web site. I feel for you being so young and having to deal with these illnesses. Please check out my web site. Our FMily Photo Album and The Survivors of Invisible Illnesses at http://www.execpc.com/~debidoo/index.html |
| Comments: Rachel, I just went through your new site. Good job, I am so proud of you. The letter in Fibromyalgia Frontiers a newsletter of FM assoc. of Greater Washington was an inspiration to many. I will keep checking on you so, better stick with the good work. Lo e 'ya Also anyone in Fl. I would like to e-mail with 'ya. |
| Comments: Great job on your site! I admire you for making something positive out of a lousy situation. Be well. |
| Comments: hi Rachel, its just me looking over your new stuff. Have been really having a hard time hear lately so not on much at all. Thanks again for all your hard work for us I know you must have many days like I have been having. Take care, we love you and appre iate you very much!!!!!!!!! |
| Comments: great page and links Rachel..Thanks for all your hard work..Mark |
| Comments: Hi, rachel, I like your udated website. You did a good job with it. Thanks for letting me know about it. I will put it in my favorite places so I can share with others. Gentle Hugs, Gramebear1 |
| Comments: Rach, I am again, continually amazed at the wisdom coming from today's youth. You are doing a remarkable service here. Feel well! |
| Comments: Dear Rachel: I read your story in the Fibromyalgia newletter. I think your great. Your my hero! Doctors told me I was crazy too, but my Mom didn't believe them. I'm back to school. In English we write about people who have changed our lives and I am writing about you. thanks! |
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| Comments: Racheal, You are so grown up for your age, you have wisdom beyond your years. I only wish that I had the strength that you have. I am sure that one day you will find the cure. Keep your head up, and keep the mail coming, It keeps alot of people informed . It sure has helped me alot. Thanks Sweet, Your friend Jeri.. |
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| Comments: was checking something out formy granddaughter who has anillness they don't know what for sure |
| Comments: was checking something out formy granddaughter who has anillness they don't know what for sure |
| Comments: I am goin to email u but I would just like to say that ur webpage is really cool. Thanks for doin it. I feel real comfort that I'm not alone. Thanks a whole lot!!!! |
| Comments: I like it when I see people who are informed about the disease Lupus, it makes others more willing to learn about the disease and not be so afraid of the people who have it. |
| Comments: As a sufferer of FMS and CFS, I thought this was a very good site filled with some links I had not seen before. I am sending this link to others who simply do not understand our struggle, including some of my family and friends. Bless you for taking the time to create such a wonderful page. |
| Comments: Hi Rachel. I just wanted to tell you that I think you are wonderful. You are a brave young lady to have so much pain and still try to help someone else. It must be even more difficult to be your age and to have these disorders. I hope you know that you he ped me. You put a smile on my face. Thank you. Take care and hang in there!! With much admiration, Ann Jackson |
| Comments: Rachel, I'm really thankful that I had the chance to read your story in the newsletter and I have access to your website. I can't say that I know what you are going through, but I do work with someone that has FMS/CFIDS and I often wish that I could take n the pain that she feels for just one day so that she could feel better. It's people like you that make it a little easier for the others you have such high hopes and are a strong girl and I hope that you have everything you ever hoped for. And with the outlook on life that you have I am sure that you will. God Bless you. |
| Comments: Hi, Rachel....I just read your e-mail and landed here. I have never "signed" a guest book on the net before. Your note was so sweet that I had to come here. Sorry, kiddo, I was not prepared. It seems that every day, since having gone on-line, I find so ething that just hits a nerve and makes me cry. You've just shown me again how important it is for us to touch eachother, as well as to allow ourselves to be touched. My daughter is 8, and is also spunky. She is always looking for ways to help...Perhaps I should hook her up with you? PLEASE let me know how I can touch you....besides reminding you not to lose sight of the fact that you need to enjoy yourself as a teenager above all else... Thank you, XOXO, Caryn |
| Comments: Hi, Rachel....I just read your e-mail and landed here. I have never "signed" a guest book on the net before. Your note was so sweet that I had to come here. Sorry, kiddo, I was not prepared. It seems that every day, since having gone on-line, I find so ething that just hits a nerve and makes me cry. You've just shown me again how important it is for us to touch eachother, as well as to allow ourselves to be touched. My daughter is 8, and is also spunky. She is always looking for ways to help...Perhaps I should hook her up with you? PLEASE let me know how I can touch you....besides reminding you not to lose sight of the fact that you need to enjoy yourself as a teenager above all else... Thank you, XOXO, Caryn |
| Comments: Hi, Rachel....I just read your e-mail and landed here. I have never "signed" a guest book on the net before. Your note was so sweet that I had to come here. Sorry, kiddo, I was not prepared. It seems that every day, since having gone on-line, I find so ething that just hits a nerve and makes me cry. You've just shown me again how important it is for us to touch eachother, as well as to allow ourselves to be touched. My daughter is 8, and is also spunky. She is always looking for ways to help...Perhaps I should hook her up with you? PLEASE let me know how I can touch you....besides reminding you not to lose sight of the fact that you need to enjoy yourself as a teenager above all else... Thank you, XOXO, Caryn |
| Comments: Rachel, I finally made it to your web page!!! It is so wonderful1 You have put so much work into it. I have really enjoyed it. I have also enjoyed being on your list and receiving email from you! I love to get online to see if I have any mail from you You have taught me so much about fms, and other diseases that I do not have. You are such a wealth of information. It is hard to believe that this is the work of one person, let alone a person with fms!! Finding you has been a blessing to me! I appr ciate all that you do! If you ever need help, please call on me! I owe you!!! =) Thank you again, and keep up the good work! |
| Comments: Hi, I'm Betsy Herman, coordinator of RSDHope Teen Corner. I'll also e-mail you...hope we can meet through on-line communication before I have to stay in the hospital (if I do). -Betsy |
| Comments: Thank you for sharing.I don't feel so alone anymore. |
| Comments: Hats off to you anytime sweetie love your page you are such a pleasure and thank you from the bottom of my heart Sharon Kay |
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| Comments: rachel, I just want you to know you have become my lifeline. It doesn't matter whether it's been one day or one month since I've been able to turn my pc on, there is always this wonderful font of information, from you, for me to look through and learn. have several friends without access to the net and I always print your articles for them to read. You mean the world to us and I have never been so grateful to run across anyone in my life as I am to you. Stay wonderful. My Heart is with you, dori |
| Comments: Thank you, thank you, thank you you helped me so so much. I was first dx'd in May 98 and you help show me the way to learning what I had and how I should deal with it. Thank you. |
| Comments: You do a great job! I for one really appreciate all your hard work.. Keep it up... |
| Comments: Rachel, I just found your web site and I think it is wonderful. I know I have told you before how much I really appreciate all you do for us. You are a very special girl. I am glad to finally have a face to your name. I love your web site it is very well one and has so much good information on it for all who are willing to read and learn. Best wishes in all you do and God Bless. My thoughts and prayers are always with you and our whole Family. Brenda |
| Comments: hi rachel, am venturing out of email to web sites. big deal for me. how are you doing? do appreciate what you do for us, and will continue to look forward to email from you. thanks a bunch. |
| Comments: Thanks for the daily e-mails, Rachel. I have used some of them for our FMS Support Group here in Lexington, KY, where I am co-founder and co-facilitor of our group. You are providing a great service to other FMS/CFS syndrome sufferers. Keep up the good work! Have a wonderful day. |
| Comments: R: you are an inspiration to me and I am grateful every day that you are a small part of my day. When I sign on and check my e-mail, it always brightens my day to see e-mail from you. You are to be commended for all that you do for our causes and for doi g it no matter how you may feel physically. You are also on my church's prayer list, especially praying that you are able to attend school this fall. I know as an adult what these diseases have done to my life and I cannot imagine what it does to your lif . Keep up the fight and the great work!!! We are all pulling for you. Thank you for all of the great info you send and for keeping up the fight!!!! |
| Comments: THANKS FOR PUTTING TOGETHER YOUR WEB SITE AND ALL THE INFORMATION YOU SEND OUT! |
| Comments: Rachel, may you succeed in all that you do. I like your Home Page very much. Thank you for sharing your life with the world :-) |
| Comments: Rachel - I've written before via e-mail (because I didn't know about this page). Now, I want eveyone to read how I feel about you and your efforts. At 14 years of age, you are an incredible person. You have so much to give and your information is non-b ased (a rarity in this day and age). Keep up the GREAT work - take care of yourself. I'm in Lexington, MO - where are you? Perhaps we could meet sometime soon? Again, congratulations for doing the work of 12 researchers - I don't know where you get yo r energy! Gentle hugs to you! |
| Comments: Rachel, I really admire you and all the work you do. I feel badly for you that you have to endure this at such a young age, but you seem to do it with much grace. Good for you!! I am on your mailing list, which is always interesting and informative. I look forw rd to your posts everyday. Keep up the good work...... |
| Comments: The information you pass along never fails to amaze me! What a valuable service! What I can't figure out is how you get the energy! I'm sure glad you're out there, and hope you'll see a complete cure during your lifetime! |
| Comments: Rachel, great page! Keep up the good work! Thanks for all the information. I know its tough to be ill when you're so young, but hopefully by the time you're an old lady like me, we'll have a cure : ) |
| Comments: I just want to say that I really appreciate you Hon..... You may only be 14, but you are much more smarter then your years... I don't think that I could have handled this disorder if I were 14... So my heart goes out to you...Hope that you know how much ou have helped me and others to learn about FMS and CFIDS... everyone loves all the information that you send out...I would be upset if my mail didn't have something from you.... and thanks for always being there for me in the past whenever I have Just ne ded someone to talk to..... I really enjoy our IM's....and you knowledge.... You have become a smile in my day...... Love ya Hon. Jeri.... |
| Comments: Hi Rachel, I think this is a wonderful website. Don't lose faith. You are not alone in your battle with this illness. If we all keep fighting I'm sure that we will meet some day and celebrate the defeat of CFS and all related Diseases. |
| Comments: What a wonderful site! I have put it in my Favorite Places. I also want you to know how greatful I am to be on your mailing list for FMS.....Take care of you! ~~Andrea (ImAndrea2) |
| Comments: Hi , I just wanted to comment on all the hard work that u did..I admire u for it..My name is Mark and i have fms too..I am now on disability..because the fms has settled in my neck and back..Keep up the good work..I`ll look forward to seeing more your friend Toolmarker |
| Comments: Dear Rachel, Keep up the good work, you are an insprition to all of us. Love ya, Barbara Springfield, Mo |
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| Comments: Just wanted to stop in and say HI,found you listed with Fibroring.. take care kimmi |
| Comments: Rachel, You are an amazing young woman. Your parents should be very proud to have raised someone who would never give up or give in. You give of yourself very unselfishly and have maturity far beyond your years. You are out there making a difference, and this is something that people 3 an 4 times your age have not done. You cannot be truly happy unless you give of yourself to others. It is a very unselfish person who can look beyond the "ME" and "I" and put other people's needs ahead of their own. But the people who have learned to give of themselves are those people that are truly happy, regardless of money, health, age, etc. I'm sure you are a blesing to many. Keep up the good work !! |
| Comments: Keep doing your good work! |
| Comments: Rachel you have done an excelent job with your page. If you don't have ICQ you might find it a fun thing as it lets you know when your friends are on line when you are, you can get it free at http://www.mirabilis.com , my # is 12689313 Keep up the good work, you have found the secret for sucess |
| Comments: Rachael thank you so much for the awards. I love your page and respect you so much for doing this. You are so young to be stuck with this dd.I hope you have a good life in spite of it. |
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| Comments: I thoroughly enjoyed your site. It was very well put together and very informative. |
| Comments: Hi Rachel, I was greatly impressed with the amount of information that you've presented on your web page. I'd love to see some of your poems posted here eventually. Peace & Serenity, Jausten |
| Comments: Rachel, amazing job on this page! I am so glad to run into another teenager with the same illnesses as me. You've done a wonderful job on this and on trying to make people aware. Thank you so much for this page, I hope it will make a world of differenc . Hang in there, Rachel, I know exactly what you're going through! |
| Comments: Very nice Rachel. I commend you for your fine efforts and invite you to visit Our FMS/CFS World site at above address. We would be proud to link to your site and after reviewing ours if you feel the same please contact [email protected] and request to be lin ed to us. Your friend, Ric Glanton Mailing editor for "OurFMS/CFS Newsletter" |
| Comments: HAVING THIS ATTACK AT A LATER AGE THAN YOU MY DEAR GIRL MAKES ME FEEL FORTUNATE. I CAN ONLY HOPE THAT WITHIN YOUR LIFETIME WE FIND A CAUSE AND A CURE FOR THIS MONSTER. MY HEART GOES OUT TO YOU. YOU ARE A BRAVE SOUL. GOD BLESS |
| Comments: Rachel, I found the link to your Web page at the alt.med.fibromyalgia BBS. What a courageous effort to put together this Web page and providing information to those in need. Please start educating people your age about FMS/CFIDS/MPS etc. They will be the ones who discover the key to correcting these ailments. Many adults who have posted to FMS newsgroups are not half as adult as you seem to be. Keep up the marvelous work and best wishes. Jackson |
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| Comments: Hi Rachel! I was releaved to find that someone my age has a web site regarding these illnesses, as I have been suffering from FMS for the past 2 years. I find my interests to be very similiar to yours--I love to write, music has played a great role in l fting my spirits, and medical research hs helped pull me through these illnesses. In fact, if it wasn't for the research, I probably would still not have a diagnosis! Thank you very much for your page! If you ever want to talk, feel free to e-mail me t the address listed above. Thanks! |
| Comments: What a wonderful job!! Keep up the good work!! Take good care of yourself.... Michelle |
| Comments: I applaud you young woman, I have been sick with this from my early teens myself only I didn't have the benefit of knowing it. My family discounted it as all in my head...God Bless You sweetie |
| Comments: Hi Rachel, I really enjoyed your page and copied some of it for my family to read. I have FMS and CFS and Myofacial Pain Syndrome and am still being tested. My doctors also suspects that I have rheumatoid arthritis, but the blood work is not consistant so we are still plugging away at a complete diagnosis. I've had FMS for a while 5-10 years, but have only be diagnosed for about 3. They say the condition is not progressive, but I've gotten a lot worse in the last year and just came off of a very seve e bout of depression (Which I have never experienced before). Thank God I have a very good medical team and they got me through and am feeling much better now. I really think awareness is the key to these conditions because people have no idea what we g through. I have a lot of support from my best friend as she has FMS, rheumatoid arthritis and sjograines (Sic) so we hold each other up emotionally. Thanks for the great homepage and take care. |
| Comments: Rachel, This site is fabulous. It makes me feel better just to look at the beauty of it. I too had FMS symptoms as a child, but was told "it was all in my head", as was almost everyone else. Maybe with your generation, and people like you, we will see change. You are our hope for the furure. The illness takes away all age barriers, doesn't it?, because I think of you as a sister, when you could be my granddaughter. This is sad for you in a way, because it thrusts you into the adult world much too soo . I remember adults telling my mother, "She's so mature for her age". I didn't know if that was good or bad, but I knew I was different. I think it is the pain that forces you to learn endurance much too early. I was an only child with a mostly unsuppor ive mother, so give your Mom a big hug for helping you. Two of my worst problems were headaches (told I was too young to have headaches, like headaches are a drivers license and you have to reach a certain age before you can have them, and menstrual cramp that were unbearable. Hope you don't have to suffer with that. I was never as sick as you were as a child, but knew I wasn't like other kids. Too much pain, too much fatigue. You are indeed an inspiration. If I could write a poem I'd write one to you. Sometimes I write "Fairy Tales" to my son who is 20 and away from home, so maybe I can do that. With love and much respect, kathy |
| Comments: I have FMS and possibly CFIDS. I have had it for 12 yrs, but was only diagnoised a year and a half ago. I have just found out that my 15 yr old daughter has FMS as well. I will get her to come her and sign in as well. I hope she will be interested in writ ng as one of your pen pals. Hope you are feeling as well as you can be. Hugs, Annette |
| Comments: you have done a great job. i will come back and tell other to have a look |
| Comments: YOU HAVE A WONDERFUL SITE THANKS |
| Comments: Thanks for all the information |
| Comments: Hi Racheal, I was sent your page by a friend on the net, I was very impressed by what I read. I live in England & I don't think we have anything like it here. Keep up the good work, mail me anytime, but give me chance to reply. Many hugs to you sweetheart. Love Peg.{{{{{{{{}}}}}}}}}} |
| Comments: You have put together a wonderful and very informative home page. I wish you the very best. Thank You Very Much For Sharing.:) |
| Comments: Very nice webb page! Such and intelligent young lady at 14. I did not know that young people could have FMS until I got online. Thougt it was something that came on in adulthood. My heart goes out to you----to be so young and to have to face daily wh t you face. My prayers are with you----gentle hugs to you. |
| Comments: Great Page I loved it. |
| Comments: Your page is wonderful. Here I am at 50 and still trying to learn how to set up a page. Great things happen if we just keep learning new ways. I know you will have great things come your way. God bless. From the Fl panhandle. Gerri |
| Comments: What a wonderful job on your web site!! Everything is so thorough. Thanks for your hard work. I hope you are able at least sometime to enjoy your teenage years. You certainly are a remarkable young lady. God Bless, Terri |
| Comments: Good work! I have cfs, fibromyalgia and bipolar disorder, but I do well as long as I always take my medicine and take care of myself. It is possible to live a good life with a chronic illness. You have to learn how to live within the limitations of the llness and go from there. |
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| Comments: Very nice page! I used to work for a Rheumatologist and he would treat people with fibromyalgia. I wish you the best. |
| Comments: Rachel Great Job!!!! YOu are remarkable and I'm so glad I've been able to "Talk" to you. I read your story. It was well written and very moving. Hope to chat with you soon. Sue |
| Comments: proud of you Rachael. Nice web page and interesting.. |
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| Comments: I sent you an e-mail with my congratulataions on how well you at your age are handeling these illnesses. You are a shining example of youth today learn, tackle and live. I am proud of you. |
| Comments: Hi Rachel, This is to commend you on taking charge of your life's situation and share your pains by helping others find their way in their darkness. You may be 14 yrs by the calendar but you are quite grown up in living w/reality and dealing w/limits by reaching ou to others. I am passing on your info to those whom I meet regarding their illnesses. If I may share w/you my proofing of your web page: excellent job, I would like to do same ~ Please accept the following as corrections to a job well done: In start of your web page (I [should also say am] from Missouri . . .) How I Cope second line: I use it[should have "to"] heal . . . You write: Try not to be scared [is it necessary to say this, please reconsider, do sound authoritative] You write: Now enough about me, [should read: let's] . . . You write list of illnesses: misspelling of [BiPolar] You write: Good Links space wonderful guy . . . site's [no comma]web page. . . You have done a wonderful job and I am most proud of your great work. You are on a terrific start. Love and hugs {gentle} Donna K (northern California) |
| Comments: Cool pic! Hope you're feeling your best right now ;) |
| Comments: Hey Rach, Hows it going? Nice page, it's pretty good. Alot better than I could ever do. {hugs} See ya on CFS-Y! |
| Comments: You have done a great job really liked and enjoyed thanks Sharon |
| Comments: Good Luck! Just remember if all you have is hope, you still have alot. |
| Comments: Very Nice page, concise information. Keep up the good work, Warm and Gentle Hugs, Kathy |
| Comments: The girl that is making this page possible, Rachel Burns is the strongest, kindess, helpful, and conciderate person I have had the pleasure to meet. She can make you smile when you are down, and just brighten your day with her words of encourgaement. She s a really nice person, always there to help other and not worry about her own feelings. I may be a little prejudice but she is truly a one of a kind. |
| Comments: A lovely page is sprouting here in your new garden. Keep up the great work! One of my poems you might like is on line at http://www.geocities.com/~jagannatha/reaching.html (scroll down a bit) God bless, |
