Patricia - 11/08/00 11:08:32
My Email:[email protected]
Comments:
Well having read how many selfless people there are out there you must consider how busy heaven is going to be. Putting bravado side and also raising a special needs child I would like to send a BIG Aussie "GOOD ON YA MATES" to all out there in pc land+++++++++++++
Tiffany Martin - 10/09/00 20:27:08
My Email:[email protected]
Comments:
I have truly enjoyed your website. I am moved by your love for your kids and feel that's how it should be. They look for us to be positive and loving though others (ie.,public/society) tells us to move forward thinking its a hopeless cause. I am a wife a
d mother of two precious darlings- a healthy 6 year old girl and a terminally ill but determined to live 3 year old son. Thank You, Tiffany Martin
Hunter & GypsyWolf - 09/11/00 14:18:38
My Email:[email protected]
Comments:
Brightest Blessings to u,
the whole site is wonderful...zoe & tim are beautiful children. i cant say that we know what its like to have a special needs child but i think you are doing a wonderful thing for BOTH children. email me or i.m. ANYTIME. im here! im very happy we met
hrough bellaonline. we can offer friendship to each other! :) :)
In Love & Light,
GypsyWolf~*~
diane mckerchie - 09/01/00 19:03:16
My Email:[email protected]
Comments:
- 07/29/00 20:26:41
Comments:
Bec Stahl - 05/09/00 23:43:43
My Email:[email protected]
Comments:
My daughter was born with spina bifida almost 8 years ago. I recently had to take her to Riley Children's Hospital due to urinary and bowel incontinence problems... I never knew about latex allergy or several other items that we need to be aware are rela
ed to her SB. A dear friend found this site and sent me here... she was right, this is the BEST site that I have found! Thanks so much for caring so much about all these wonderful children!
Jenny Mills - 04/04/00 06:42:16
My URL:http://members.aol.com/ljmills5/index.htm
My Email:[email protected]
Comments:
Your tube feeding tips page is circulating through our feeding support group. Thanks for the great suggestions. My daughter Catherine was born with an omphalocele (organs are contained in a membrane sac outside the body) and we have an online support grou
of MOOs (Mothers of Omphaloceles) who appreciate it as well. Please visit my site to read more about our precious Catherine!
Michele Smith - 03/29/00 05:43:41
My URL:http://www.ecis.com/~smith
My Email:[email protected]
Comments:
What a beautiful daughter. What a nice site you have! I am glad that I got to visit through Our-Kids. Our special kids are angels!!! Thanks for sharing. Love, Michele from CA
Carmen - 03/25/00 21:57:52
My URL:httpnone yet
My Email:[email protected]
Comments:
Great site, please write if you get a chance. Love C xxx ooo
- 03/18/00 22:09:54
My Email:lachoy009
Comments:
- 03/18/00 03:19:36
Comments:
Colleen Susans - 03/17/00 07:02:20
My Email:[email protected]
Comments:
What a great site!
We live in Auckland, New Zealand,I have a seven year old son with multiple disabilities and it's got to hear cost effective advice from other parents. I am going to give your site address to some friends with special needs children.
Does anybody know the E mail address for Mothers from Hell, have tried there Home Page but can never get connected?
Carmen - 02/26/00 21:48:49
My Email:[email protected]
Comments:
Naz, Just checking in here, I love the photos of both Tim and Zoe! So Cute! Please drop a line if you get a minute. Love Carmen xxx ooo
[email protected]
mardi - 02/16/00 06:48:28
My Email:[email protected]
Comments:
Thank you for all of the great ideas: ) I work with special needs pre-schoolers,and kindergarteners. What a great job! What beautiful kids.
Thanks Mardi
- 02/16/00 06:44:15
Comments:
Thank you for all of the great ideas: ) I work with special needs pre-schoolers,and kindergarteners. What a great job! What beautiful kids.
Thanks Mardi
Diane King - 02/11/00 13:29:25
My Email:[email protected]
Comments:
It's great to see a site devoted to this kind of information! I myself am still technologically impaired, but I'm excited by the possibilities in education brought about by technology! Even though I have taught special ed. for 18 years, there are many t
pes of disabilities I have not had experience with, and I can always use more ideas and tips for myself and to pass along to others. Keep up your great work!
- 12/22/99 03:16:57
My Email:[email protected]
Comments:
Gregory Ulmer - 12/21/99 10:32:10
My Email:[email protected]
Comments:
Exceptional parent magazine november 1999 issue is good. columbia 1-800-454-6612 has support seats, barrier free lifts 1-800-582-8732 for floor and ceiling lifts. wider doors, wider hallways, special handicapped door latches ( go to most good hardware s
ores ) ramps and living on one level are key elements. I don't know if this would be in your project budget, but koehler makes a tub with a door and seat for caregiver for caregiver/nurse. when combined with columbia bath chair, this may work. tub also
as jacuzzi feature. unfortunately this has about $15,000 price tag. if by some miracle you get and read this, please e-mail. thanks!
Yvette Wilson - 11/30/99 23:32:24
My Email:[email protected]
Comments:
grace medici - 11/30/99 13:09:14
My Email:[email protected]
Comments:
I want if you want, that you send me amails about your home cares, because I have a child with multiple disabilities too.
Deneen - 11/29/99 14:11:48
My Email:[email protected]
Comments:
Mary Miller - 11/27/99 23:22:46
My Email:[email protected]
Comments:
Our daughter Debbie, now 23, was hit by a car and severely brain-injured when she was 10. She is in a wheelchair, in diapers, and can eat solid food but takes her liquids by NG tube. I loved the tips on attaching toys to trays, because Debbie's idea of
un is to knock everything off of her tray. If anyone would like information on NG tube feeding or making adult-size bibs, we've been dealing with it for 13 years and would be glad to share.
hoeltke - 11/20/99 15:56:35
My Email:[email protected]
Comments:
We have a child that has many of the same problems just like your little girl. We would love to chat with you. We can communicate through he aol instant message board. We go simply by Hoeltke1
Betsy - 11/18/99 14:13:33
My URL:http://www.gate.net/~labooks
Comments:
Hi,
I found your site through the Special Needs Webring.
I enjoyed visiting your site. Knowledge is powerful in helping us cope
and even overcome handicaps.
If you start posting awards, please apply for my Learning Abilities Books award. I'd like to help people find your site.
My site has children's books to help the children themselves cope with LD, ADD/ADHD, visual impairment, blindness, memory problems, motivation, etc. It also has books for teachers and other educators, lesson plans, and "handy hints" which families appreciate. Please visit and sign my guest book.
Evelyn Knight,RMT - 10/26/99 20:06:47
My Email:[email protected]
Comments:
Hi--I am a single mom of a 13 year old son. He is adopted from Guatemala, and is delayed development due to neglect by his birth family. I am interested in getting to know families with children from Romania, because I have seen many reports about orphans
there with the same problems. Please email me.
Crissie - 10/22/99 22:02:17
My Email:[email protected]
Comments:
Hi! I work in the Birth-Three program in conn. I am so ever thankfull to work with such wonderful children and their families.I truly love and feel blessed to be a part of their lives. I found your site to very informative. I will tell Families about it.
hanks.
anna - 10/22/99 20:52:57
My Email:[email protected]
Comments:
I visited this site today for the first time, I'am so happy I found it.I have a son who is developmentally delayed, he is 6 1/2 yo, he is precious and has contagious smile.
I just came to know he might have Sensory Integration Disfunction also, which i don't know much about so please if you have any suggestions regarding reading material or informative sites pls forward them to me I would really appreciate it.
Anna.
Judy Moe - 10/08/99 04:34:57
My Email:[email protected]
Comments:
What a great site! Most of the sites I've seen our somewhat informative, but your site goes beyond that comepletely. As soon as you read anything on it you feel like you can relate. The info. is coming from a parent who actually cares and is experiencing
imilar things. I'm so glad I found this site. Thanks
trevor - 09/04/99 17:04:45
My Email:gizmo50756
Comments:
jan - 08/15/99 14:51:11
My Email:[email protected]
Comments:
Naz
I liked zoe's page, my son has hypotonia, severe talipes in both feet, and sensory integrative disfunction. He is mobile, and has no cognitive delays. We are lucky with him because he is a ray of light. We are on a great hypotonia support list and ther
are people with kids with static encephalopathy, hypotonic cp and other serious conditions too, as well as some with just hypotonia, myopathies and adhd amongst others. It is a great community, thought you might be interested.
It is marty white's page. I usually find it by putting in benign congenital hypotonia, failing that, planet vulcan and marty white and I think there is a link on band aids and blackboards.
Jan
Juanita - 08/01/99 17:11:46
Comments:
Hi y'all!
Shannon M. from Canada - 06/22/99 03:17:55
Comments:
Margee - 06/18/99 20:03:31
My Email:[email protected]
Comments:
This is a great site and my first time here. It won't be my last. Take care, Margee
Jan Rimkus - 06/08/99 00:54:36
My Email:[email protected]
Comments:
I am a spec ed advocate and the mother of Bethany, a wonderful, self-determined 11 yo with Down Syndrome. As an Advocate I'm constantly looking for site for parents to access. This is a winner!
Keep on supporting other through this site. You're providing a priceless support. also, give yourself a hug.
I'm from Michigan and had never heard of the Silver Ribbon campaign. Can someone tell me where it started?
caryn thomas - 06/03/99 06:32:22
My Email:[email protected]
Comments:
We have a 5 year old little boy who has cerebral palsey. We are always searching for any and all info. It's great to see your website . Would like to chat with other parents.
caryn thomas - 06/03/99 06:31:12
My Email:[email protected]
Comments:
We have a 5 year old little boy who has cerebral palsey. We are always searching for any and all info. It's great to see your website . Would like to chat with other parents.
Dana Lloyd - 06/03/99 02:34:41
My Email:[email protected]
Comments:
Thank you for this page. Iam just discovering that I have some sort of laytex allergy. They are not sure what level yet, they are running test. Tomorrow I will take a blood test.
Dana
amy - 05/28/99 05:48:31
My Email:[email protected]
Comments:
Your web page is great. My daughter is 4 and has pachygyria, and is hard enough trying to spell it let alone trying to find other parents who's children have similar disabilities. I really appreciate the tips on IEP meetings. If anyone else who's child
as pachygyria would like to e mail me I would appreciate any experiences that you have had with this disorder. Amy
Kim Pritchett - 05/23/99 17:03:46
My Email:[email protected]
Comments:
Tammy - 05/22/99 01:42:34
My Email:[email protected]
Comments:
teri fogarty - 05/18/99 18:52:48
My Email:[email protected]
Comments:
I too have a daughter very much like Zoe. I read my story of her birth and development in Zoe's story. I share alot of the same feelings that Zoe's mother does. I hope that Zoe is doing well!!
Please feel free to pass on my email address with Zoe and her family.
Kim Raub - 05/16/99 01:23:57
My Email:[email protected]
Comments:
Hello,
My son also has pachygyria but is a love. Isn't it nice to have one quiet and well-behaved :-)
Please write back when you have time.
Kim
- 05/14/99 19:28:32
Comments:
heidi - 05/14/99 19:25:18
My Email:[email protected]
Comments:
I am impressed by all the information!! Thank you very much. The Electrolyte recipe will be great to have on hand and I'll be passing it on to my friends with little children. The latex info was also great. I tell my friend with a four year old SB chi
d anything that I find on latex allergies.
KIM DRESSEL - 05/08/99 15:03:39
My Email:[email protected]
Comments:
GREAT SITE!!! I REALLY LIKE ALL THE INFO.
Patti Myers - 04/06/99 20:02:37
My URL:http://www.geocities.com/Heartland/Estates/7826/
My Email:[email protected]
Comments:
What a great site loaded with a wealth of information!! I also enjoyed reading about Tim and Zoe -- what a blessing they are to you I'm sure! If you're in my neighborhood, please stop by and learn about my son who has special needs too! God bless!
p.rafton - 03/24/99 14:05:49
Your favorite page on this site: school
Comments:
cheers for all this useful information. it will make a great difference in my life.
Sherrie Robinson - 03/12/99 03:54:47
My URL:http://www.geocities.com/Heartland/Valley/5226
My Email:[email protected]
Your favorite page on this site: Not sure there are so many...
Comments:
I found alot of usefull information here.
I am the mom of 3 wonderful children, 2 boys and a daughter.
My oldest son( 9 years old) has ADHD(5 when we found out), PDD(5 when we found out) & Duchenne Muscular Dystrophy(he was 7 when we found out Dec.22,1996). My younger son (3 years old) Had tubes put in his ears June 1998 and is now learning how to talk and
do sign language, and on June 19, 1998 we found out that he also has Duchenne Muscular Dystrophy. My daughter is 6 and is my best helper.
lisa hoffman - 03/01/99 00:53:25
Comments:
My hats off to you and to all the other parents with children with special needs and I think Tim is great. Zoe too best wishes and thank you
Kay Rogerson - 02/24/99 09:31:05
My Email:[email protected]
Your favorite page on this site: speacial needs site
Comments:
I think everybody deserves a chance in life and i doesn't matter who they are or what they look like.
ingrid westerfield - 02/19/99 19:44:33
My Email:[email protected]
Your favorite page on this site: health/horoscope
Comments:
I am too a mother of a special child and agree with your analogy of our day to day challenges. Pls call me at 425/266-2435 if I can be of help.
Rita Blare - 02/10/99 12:36:39
My Email:[email protected]
Comments:
Well done! I was excited to read your tips. I am an occupational therapist that is attempting to get some pediatric/school contracts but being private practice in geriatrics for three years, this is a huge step for me. Thanks for the information. I am als
very hard of hearing so it's always fun to learn how others cope with any kind of disability. Thanks again!
Rita Blare - 02/10/99 12:37:23
My Email:[email protected]
Comments:
Well done! I was excited to read your tips. I am an occupational therapist that is attempting to get some pediatric/school contracts but being private practice in geriatrics for three years, this is a huge step for me. Thanks for the information. I am als
very hard of hearing so it's always fun to learn how others cope with any kind of disability. Thanks again!
linda weeks - 02/06/99 21:37:33
My URL:http://home.talkcity.com/MinivanAve/chattymom/
My Email:[email protected]
Your favorite page on this site: they are allgood i cantpick one
Comments:
hi my name is linda my nic is crafty inthe s/nchatroom on talkcity i have 2 s/n sons allen is 16 adhd and is finally not on any meds,he has taking riitailin for years and has no trouble with it......eddie is 15....adhd ..odd..biopolar..seizures,he takes t
egtrol,imipramine with the mipramine he has bad mood swings.
Judy Bonnell - 02/06/99 18:06:02
My URL:http://www.geocities.com/Athens/Oracle/1580
My Email:[email protected]
Comments:
You obviously have done a lot of work at your site. The information is great and well presented. Your kids are adorable. As a parent advocate I am always trolling for good information. Thanks for your site!
Ann Forys - 01/28/99 19:52:03
My Email:[email protected]
Comments:
Alicia Webb - 01/24/99 00:40:38
My Email:[email protected]
Your favorite page on this site: The Tips page
Comments:
I really enjoyed looking through this page and have marked it as a favorite! I work with children and adults with disabilities and sometimes it gets hard to think of new things to do. It was refreshing to find this site with some new ideas for the every
ay challenges! Keep up the good work!!
nan cecil - 01/19/99 01:56:12
Comments:
sheri granier rdh - 01/12/99 20:46:58
My Email:[email protected]
Comments:
I am a dental hygienist and have been working in an institutional setting. I am trying to find info on dental management of MRDD- I am primarily concerned about medical risks and modifications needed in the dental office and can find no info-if you know s
meone who can help...let me know. Thanks, Sheri M. Granier, RDH
Gail - 12/18/98 00:51:48
My Email:[email protected]
Your favorite page on this site: Zoe's and Spec. Needs
Comments:
Your children are beautiful! Congratulations! My 22 month old daughter was born will Lissencephaly and is the light of my life. I plan to visit again soon.
Kimberley Hall - 12/11/98 06:14:32
My Email:[email protected]
Your favorite page on this site: Tips
Comments:
Thank-you so much for your site. We are parents of 2 children our youngest son has cerbal palsy,low vison non verbal. My husband and I work off shifts to be able to care for our son. In doing this we are never able to attend family meeting concerning kids
with special needs so we have always felt so alone. What a window your site has given us. Everyone of your tips,we so badly needed. My personal favorite tip was about I.E.P meetings. I have now found someone else who has felt the same as us. Again Thank-y
u Kimberley Hall.
Flamond Hightower - 12/09/98 21:02:10
My Email:[email protected]
Your favorite page on this site: all
Comments:
I enjoyed all that I've seen so far it doesn't have to be spectaucular to get to the point at hand I'll be writing when I get back from my conference.
Gillian Pilcher - 12/09/98 01:53:27
My URL:http://www.geocities.com/Heartland/Village/7366/
My Email:[email protected]
Your favorite page on this site: Tips
Comments:
I really like the tips page. I wonder where you can find Senna Powder.
- 12/06/98 05:16:56
Comments:
Vicky P. - 11/20/98 00:38:37
My URL:http://www.geocities.com/heartland/woods/3910
My Email:[email protected]
Comments:
Thanks for the information. I too have an ADHD child. No one understands what goes on in my family except other people who've had the same experience.
Jackie Johnson - 11/18/98 02:54:31
My Email:[email protected]
Your favorite page on this site: adhd
Comments:
I hope to get more info from your site. What I have found so far has been very helpful.I will be back and visit your site again. Thanks for the work you do on these sites. Jackie
Melissa - 11/13/98 02:05:53
My Email:[email protected]
Your favorite page on this site: Tips for Special Needs
Comments:
Tips for special needs, is such a wonderful page.
I work at a residential school/hospital for children and adults with physical and developmental disabilites and I use many of the tips you give. It is so terrific that there is a place for new and "old" parents of a child/children with a disability to go
and share tips with one another.
Keep up the wonderful work.
- 11/12/98 20:28:59
Comments:
Karen Woodard and John McDonald - 11/04/98 02:30:28
My Email:[email protected]
Your favorite page on this site: zoe's
Comments:
Hello there,
We think your site is great!! Thank-you for taking the time to make such a great site, we are glad we found it.
Karen and John
Francesco Canale Md - 10/22/98 08:35:54
My Email:[email protected]
Comments:
I'm a doctor employed in a children hospital (Istituto Scientifico IRCCS Giannina Gaslini, Genoa, Italy). In our hospital from 1997 we try to increase the "culture" about latex allergy to prevent workers and patients damages.
Nicole Tartal - 10/14/98 01:34:02
My Email:[email protected]
Your favorite page on this site: Tube feeding tips!
Comments:
Wow--I'm going to try the "ear manipulation" technique tomorrow when I'm at school! I have a girl in my class (I'm a special ed teacher) who has a problem with gagging, and I'm willing to try anything to help her! Thanks!
tracy carter - 10/08/98 21:51:43
My Email:Tcarter @ your_net .com
Comments: