At about 10 weeks old Adam began to spit up too often and was losing weight. His doctor was not sure what was going on, so Adam was put in the
hospital for tests. Adam spent a couple of months in and out of the Children's Hospital in Mobile. And was finally moved to Children's in Birmingham.
It was at Children's Hospital in Birmingham that Adam was diagnosed with x-linked SCID, on October 22, 1998. He had no T-cells in his blood.
On October 28, 1998 Adam was transported to Duke University Medical Center for a Bone Marrow Transplant, he would have to remain their in isolation for
100 days. A lot has been going on during the 100 days. Adam is still not doing well eating, and he still has a lot of congestion in his chest.
Adam was transported back to Birmingham Children's on February 23, 1999, to continue to work on his eating, and lungs.
On March 1, 1999 Adam returned home to Daphne, AL. His eating is still a problem, but he is getting better all the time.
Adam was admitted to University of South Alabama hospital for a high fever twice, once in March and once in April after getting Respigam. Blood cultures were done and antibiotics were given. Nothing grew from the blood cultures and no explanation was ever given for the fevers. During the first visit it was found that Adam had outgrown his central venous line (CVL). He had it removed on April 13 and a port was put in. He was also taken off TPN at that time and we began feeding him more food. On April 19 he began drinking from a cup. Two weeks after he came off the TPN, Adam began eating like a horse. He was and is eating everything that we will give him. Some baby food and some table food. He is still drinking Pediasure, but will drink other things too. His weight as of July 21 is 23# 10oz and 31" tall. During this time he has been taken off three of his five medications. He is now only taking two.
We went back up to Duke on May 27 for his follow-up visit. Dr. Buckley was very pleased with his progress. His immune studies were drawn again at that time. The results came back alittle lower than before, but, the doctors at Duke say they are still at a normal range and they are not worried. Adam still does not have any evidence of B-cell function, but, we are still hopeful. He will continue getting IVIG until he shows evidence of B-cells. He gets IVIG every 4 weeks. No more fevers have occurred and he has not been sick since April.
During this time, a Physical Therapist (PT) has been coming and working with Adam twice a week. He has learned to clap, dance, gone from a laying position to sitting, gone from scooting on the floor to crawling to cruising the furniture and on the verge of walking. He is saying a few things and babbling alot. He also has a mouth full of teeth.