BIENVENIDOS
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|
|||||||||||||||||||
| WELCOME BIENVENIDOS |
|||||||||||||||||||
|
|||||||||||||||||||
| HOME 1st BDAY ENGLISH ESPANOL | |||||||||||||||||||
|
|||||||||||||||||||
| PREGNANCY | |||||||||||||||||||
|
|||||||||||||||||||
| I was so happy when i found out I was having a baby. I couldn't wait untill I had my 1st ultrasound to find out the baby sex. The day came on October 14, 2004 I was schedule to have my 1st ultrasound. My mom, my baby's dad and me went, it was early in the morning, 7am. Everything was going good, I had to go in by myself and than at the end the others would go in. As the nurse started to messure the baby she started to act weird. Thats when i knew something was not good, she turned to me and told me that everything was ok. The problem was that the baby was layin side ways and her bones were on the way to see her heart. So they had me walking around to see if she would move. Than they started calling nurse that had more experince on ultrasounds. They told me that they could only see half of her heart. They send me to Genetics, because they had a better machine and would be able to let me know what was going on. | |||||||||||||||||||
| At Genetics we had a counsuler speak with us about the history of our family and why Congenital Heart Defect happen. They told us that research was been done to determine the cause of heart defects but they still had not found the gene that was to blame. The told me that sometimes baby's with Down Syndrome had problems with the heart. After that we went and had another ultrasound done where they said it look like she had half a heart. I was refer to Children's Hospital of Michigan for an Echo, to verify the dignosis. At this point I had not heard what her condition was called. All I knew was that I was having a baby girl and that she was probably sick. I was crushed, I was hurt I didn't understand why this was happeing to my baby, she was not even born. Yes I cried but I was not going to let this take me down, I started searching for a heart defect that had a half a heart, thats how I got Hypoplastic Left Heart Syndrome (HLHS) and than later on I recieved a letter where I confirm thats what the doctors where talking about. So, I read everything about it, stories of success, of failure, heart breaking but full of hope. I decided to put my baby's life in the Hands Of God, I prayed and asked him, to do what would be best for her, and that what ever he chose to give me strengh to help her. I was now a high risk pregnancy, the Echo that i had done on October 27, 2004, was not so clear because the baby's bones were on the way, but still they didn't want to take any risk. I had many ultrasounds after that and they all suggested that my baby(Sarai) had HLHS. I was told that if I had Sarai before 37 weeks she would not make it, so when at 32 weeks I started having contractions I got scared. I was put in bed rest and given pills to stop me from going into early labor. I also had to take two test evry week until I had my baby to make she was doing good. Two weeks before I gave birth, the doctors told me I had Gestinal Diabeties, the test were done and I was put in insulin. It was a Tuesday January 11, 2005 when i got my fisrt shot of insulin, that same night at 11 pm my water broke and I went to the hospital. 10 Hours later on Wed. January 12, 2005 My baby Girl was Born @ 36 weeks and 6 days.. Her name Sarai. After Sarai was born, I found out the umbibical cord was around her neck when she was born. The doctors took her and I was only allowed to see her and give her a kiss. She was rushed to the PICU and was put in a breathing machine. She was not born blue and did not look sick at all. She was 8lbs and 20in and a half. The doctors told me that if they had not known about her conditions before she was born I would have taken her home. | |||||||||||||||||||
|
|||||||||||||||||||
| 1st Operation | |||||||||||||||||||
| Sarai was trasfer to Children's Hospital two hours after she was born. They planned for her to have her surgery on January, 17. 2005, which was the Norwood. So, five days after her birth she was taken to the operating room. It was very early in the morning when I kissed her and prayed that everythin went well. Time seem to be going way too slow. Than at 4pm we was inform that the operation was finish. We was able to see her before she went to her room. I gave her a kiss and thank God that she was still alive and to please help her get through this 1st step. She was in the Hospital for 4 weeks. I took her home with a feed tube and oxygen. One week later had to take her back and she spend one more week in the Hospital. Sarai did not know how to feed with a bottle, I was told to wait for professial to give her therapy. I didn't i started slowing to encourage her and sure enough she was eating with a bottle two weeks later. She was taken off the feedin tube. The oxygen was take off at around three months old during the day but at night she had to wear it. She was doing good at home, learning and growing like a normal kid, she had a special 24 cal diet but other than that she was good. | |||||||||||||||||||
|
|||||||||||||||||||
| 2nd Operation | |||||||||||||||||||
| On June 9, 2005 Sarai had a Catharezation early in the morning and by the after noon she was eating and look good, so we went home. But when I got home at night she did not want to eat and in the morning she was a bit blue. I called her doctor and rushed her to the hospital. For some reason her oxygen level was at 50, when it should be at 75 and above. She was hospitalized and the surgeon reviewed her case and decided that she would have her 2nd surgery early than expected. We spend one week in the hospital before her surgery cuz she was on oxygen and the insurance would not pay her surgery if we went home. Odd but true. On June 20, 2005 Sarai had the Hemi-fontan. A week later she was sent home, without oxygen and eating with a bottle. She was checked a week later and I was told she was good. The operation was a success. | |||||||||||||||||||
|
|||||||||||||||||||