| "Meet Marli Possamai and Reinaldo Boneto, from Brazil" |
(May 29, 2000) the following was shared by Marli Possamai and Reinaldo Boneto in response to the 'MoebiUS ADDENDUM' sent out several weeks ago) AMoB (Moebius Association of Brazil) is a group of parents, relatives and friends trying to exchange information and experience by dealing with Moebius Syndrome. I am Marli Possamai (president) and Reinaldo Boneto (director) and I are parents of Gabriel, an eight years old boy with Moebius Syndrome. Since he was born we have being learning and living with that syndrome. At that time we didn't no any other child with the same problems. We have been knowing many other Moebius children whose parents don't have information or condiction to deal with Moebius. So, in 1995 we started with AMoB. Nowadays, we have about 70 families registered around our country. Our web site is www.hitnet.com.br/moebius Best regards, Marli and Reinaldo HOME |